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Grey Matter Heterotopia

Sat, 01/30/2010 - 19:28
I am 35 and recently found that I have grey matter heterotopia. I am currently on seizure meds that have made the seizures less harsh but I still get them. I have memory loss, confusion, dizzy spells (head-rushes), body numbness, tingling, vision impairment at times, loss of coordination and difficulty speaking clearly. Although I can live with these problems I would like to know other people with this disorder and maybe what they have done for treatment.

Comments

Re: Grey Matter Heterotopia

Submitted by penguino1 on Sat, 2012-02-18 - 22:42
I was just diagnosed last year at 43 yrs old. I've been having symptoms for years but brushed it off since I have a rare congenital lung/heart disability. I began having Parkinson-like and drop mal seizures about 5 years ago. I am now having more stroke like symptoms. They believe something is also wrong with my brain stem and it's connected to my heart/lung situation. I am doing balancing exercises (as my left side is a lot weaker and I have the partial seizures). Also, doing brain games and have an oxygen machine at all. Has any of yours gotten worse with time? I know I read it does not progress but I think with my age and my body changing... symptoms have changed. Again, though, I have other medical complications. Seizure meds don't work but sometimes Benedryl or low dose Valium help. I was just doing the balancing ball for exercise. Other times, I have to be carried across the room. I am trying out different things to see what helps.

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