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hearing voices

Thu, 04/03/2008 - 13:47

Hi everyone. 

Hope you're having a good day.  Hope I don't sound like too much of a "newbie" but that's exactly what I am.

OK, here's my story.

About 4 weeks ago my 16 year old son began complaining about being unable to sleep.  We gave him advice such as lay off the caffine .  Then, on 3/25 he had a seizure at school.  (he has since had one almost every day and two on one day.) During his seizures he has some "twitching" of his arms and legs but has always been able to get to a safe place.  He is able to answer questions with a yes or no or a nod of the head so he never completely looses control. He remains conscious through the seizures and has at least some memory of them though he is very weak afterwards. 

We've taken him to the ER (put him on keppra) and have had an MRI and EEG done.  Neither showed anything.  We're taking him to a neurologist tomorrow and having another EEG done on his orders today.

Maybe the scariest part for us has been the voices.  After he had the first seizure he told us that the reason he hadn't been able to sleep was that he'd heard voices.  Sometimes the voices are gibberish but other time they tell him things (in his own voice) like "your friends dont' really like you" or that the voices are going to hurt his friends of family.  They never tell him to do things and he knows the voices aren't real.

I've read about aura's and know some folks hear voices with seizures, but haven't been able to find much to tell me what the voices actually usually say.  Is what my son is hearing common? 

His behavior hasn't changed except he has become even more attached to his friends/family.  He's a great kid and everybody loves being around him, but this is scary stuff for all of us. 

Any "words of wisdom" from the voices of experience would be much appreciated. 

Comments

Re: hearing voices

Submitted by Ice on Wed, 2011-05-11 - 10:33

Hi Steve,

  My daughter experienced something similar a few years back which is why I looked at Mathew's original post.  Her situation was almost exactly the same as Mathews. She was diagnosed with something called post ictal psychosis caused from her Epilepsy. She was put on a medication called Abilify and after 24 for hours all symtoms were gone. Everyone and every situation is different but that was my daughter experience. I hope it helps, Bill

 

Hi Steve,

  My daughter experienced something similar a few years back which is why I looked at Mathew's original post.  Her situation was almost exactly the same as Mathews. She was diagnosed with something called post ictal psychosis caused from her Epilepsy. She was put on a medication called Abilify and after 24 for hours all symtoms were gone. Everyone and every situation is different but that was my daughter experience. I hope it helps, Bill

 

Re: hearing voices

Submitted by techgeek on Wed, 2011-05-11 - 15:02

I am new here as well , My big event was in march of  this year when I was taken to the hospital unconcious with continuous complex partial seizures and had completely stopped breathing for about 7 minutes. In the interview with the neurologist it turns ot I have had seizures and aura's for a long time I had no idea what they were. One of my aura's is that I my hearing becomes kind of like voices in a dream and sometimes they are real sometimes not. My uneducated 1.5 cents worth theory is that they are fragments of sounds from our past which maybe persons, t.v., movies, whatever and are being put into our concious mind in garbled fragments by the cross firing mess of neurons that happens inthe seizure. we are not crazy we just have all our wires jumbled up for a few moments. Unkindnesses from our past weather they were directed at us or at someone else tend to make a stronger memory and tend to "stick" especially with children. that may be why  negative words tend to be more prevelant.

just my warped theory

 

I am new here as well , My big event was in march of  this year when I was taken to the hospital unconcious with continuous complex partial seizures and had completely stopped breathing for about 7 minutes. In the interview with the neurologist it turns ot I have had seizures and aura's for a long time I had no idea what they were. One of my aura's is that I my hearing becomes kind of like voices in a dream and sometimes they are real sometimes not. My uneducated 1.5 cents worth theory is that they are fragments of sounds from our past which maybe persons, t.v., movies, whatever and are being put into our concious mind in garbled fragments by the cross firing mess of neurons that happens inthe seizure. we are not crazy we just have all our wires jumbled up for a few moments. Unkindnesses from our past weather they were directed at us or at someone else tend to make a stronger memory and tend to "stick" especially with children. that may be why  negative words tend to be more prevelant.

just my warped theory

 

Re: hearing voices

Submitted by Hapygrl on Sat, 2011-12-17 - 17:20
I so agree with your thinking

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