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My Life With Epilepsy or Should I Say No Life?

Thu, 11/11/2010 - 06:55
I used to have a life. A real life, even with epilepsy undiagnosed from childhood. When I started to have bigger problems than I thought I could cope with on my own, I went to the doctor for help. That was the biggest mistake in my life. The rest is history and current events. I started a blog, partly to save my own life. I think it has. I'm alive and kicking (lol, the seizures make me do that). Please read it if you want to know my story. I would love to hear from the rest of you on this site. I complain about this site a lot and many of you probably wonder why I'm here. I'm here because of all of you. Thanks and I'm looking forward to your comments. You can leave them here or on any one of my blog posts. Click on this link to leave a comment on my blog. For those of you who left comments, you can click on the same link to view my replies as you clicked to leave them or you can subscribe. Click on this link to subscribe to the comment feed. Baruch Hashem. Hoshia na.

Comments

Re: My Life With Epilepsy or Should I Say No Life?g

Submitted by zealot on Fri, 2010-11-26 - 10:01
Hi Everyone, I'm having a tough time. I spent all day yesterday crying because my sister and her husband have a house full of guests for Thanks Giving and refused to invite me. Someone told them I am "combative" although admittedly I have never been so with them. Another violation of my HIPAA non rights or lefts by Josh Shapiro of Jewish Family Service. He sabotaged my relationship with my family and my last remaining life line. I spend Wednesday afternoon in the ER with seizures and am having an allergic reaction to the Valium. It's the day after Thanks Giving and how the hell am I going to find a doctor? I put out a new post. It has no pictures. I'm just too sick and too miserable. I hope you are all ejoying your holiday. And now the mofo-ing censor that they call a spam filter won't let me insert the links to my latest posts. What the hell is wrong with you peopl? Why don't you get a life? I am not a spammer and my blog is not spam. I just flagged a user for inserting flashing blinking animations that the censor let through and I can't link to my blog posts. WTF? When my brain starts working I plan to write a letter to the board of directors of this site complaining about the censor. Perhaps they are unaware of the negligence and incompetentce of admin, webmaster, and epi-help. They are supposed to protect us and they don't. I flag spam. I flag the animations. I shouldn't have to. And I shouldn't be censored. Baruch Hashem. Hoshia na. Devorah Zealot Soodak http://psychout.typepad.com/ the zealot needs help! P.S. Please read my blog. Thanks. P.P.S. Please click here to read my latest post. P.P.P.S. Please click here to read my featured post.

Re: My Life With Epilepsy or Should I Say No Life?g

Submitted by 3Hours2Live on Sat, 2010-11-27 - 19:32
Hi Zealot, I can't tell if my comment posted at http://psychout.typepad.com/blog/2010/11/www_omy_state_ny_us_new_york_office_of_mental_health_mind_jewish_epileptic_zealot_lunatic_homeless_family_federation_service.html , so I'll post here too. I've been down with a severe migraine the last few days. Trying to read a few website postings at times is about all I've accomplished. My Keppra refill was made without any problems at the drugstore, and the pharmacist's staff displayed friendliness. The five mile walk in cold weather was the biggest challenge this time, and as I was recovering back home, my migraines decided to return with a vengeance.The statistical history of my migraines points more to just coincidence than anything else, so while that will protect me from unwanted opportunistic rattlesnakes, it also provides an excuse for all the would-be wonderful Mother Teresas' to look the other way. The social workers there in New Jersey sound the case. In High School, my Vice-Principal utilized much the same Machiavellian strategy with my first complaints that my teacher raped me. It is as if he knowingly aggravated discord in my family, while evading any hint of the truth at issue. He didn't try to protect much else than the School's image, and I was left with the only recourse of avoiding my teacher whenever there might not be other remaining protecting witnesses between us. Epilepsy undermined the official rattlesnake's strategy though, with my teacher succumbing to his temptation again, at the opportunity of my seizure in class, but then with an otherwise disoccupied classroom full of witnesses available to be confronted, and a sudden exponential growth of gossip to the event, though the official record remains pristine, subject to Catch-22. Here in California, with expensive impairments and near poverty, the official strategy game seems to be, firstly, Medicare versus Medicaid. The magic Medicaid flip-flop age of 55 years, removing the future estate from protection of medical creditors' and the State's carnivorous appetites for any meat left on estate bones, often makes Medicaid more attractive than Medicare, which instills fear in family members more worried about their own future pickings. "Spend-Down" requirements for Medicare to the dreaded magic of Medicaid, does little more than increase expenses and technical accounting hassles for medical care with expensive impairments while being near poverty. The Arnold even made a short unsuccessful attempt to revitalize the old common-laws of even any distant relatives bearing the expense of mandated social and medical care at any age, though Medicaid recovery after-55 taking precedence over Deeds of Joint Tenancy and all such legal ilk, and realms of inheritances and all transfer rights, still stands. With the threat of the Medicaid beast, my direct family wants me to plead with Uncle Godbucks, while Uncle Godbucks curses socialized anything (except when it gives his own luxury means of actualization), and he doesn't want to taint my Medicaid with his money, I can't resist the urge to stick pins in his Ayn Rand philosophy at any opportunity, though the threat of myself writing his Gospel is more and more imminent with the threat of the reaper. (Poor Uncle Godbucks, the rest of the family members offer at best an artless brown nose biography. Maybe Morris is available for Reaganesque cash payment, to invent better, and Rand's "objectivism" affirming (what a travesty of the word "objective"), characters in my uncle's official stenchless "truth" biography). Each state has its own set of bizarre Medicare becoming Medicaid becoming an estate lien, set of rules, subject to Federal requirements/guidelines, and many complex state court cases involving distant financial issues. So far, the individual person still has the choice of which state to attempt residency in, but carrying out such right is being affronted by rich technicalities, including ID, and again, address of residence, and mailing addresses. With my seizures stopping an/or causing arrhythmia, cardiac and respiratory arrest with diazepam for bouts of clusters most like status epilepticus, has discouraged me from trying any benzodiazepines (along with their addictive potential). I sometimes wondered about Dilantin adding to arrhythmia problems too. Just a few more days, and the sunsets will start getting later again!!! Lots of Love, Tadzio

Re: My Life With Epilepsy or Should I Say No Life?

Submitted by zealot on Sun, 2010-11-28 - 11:01
Tadzio, I replied to your comment on my blog. My reply is here. The benzos are making me non compis mentis. It's a bit better than dead. I have to survive the year. I need to figure out how to change my part D do no pay for meds insurance so a least I don't have to pay %50 a month to have them do not pay for my meds. How am I supposed to do that without a mailing address? They mail all the info to you! I wish I were dead, but I'm too tired to do anything about it. No, you stupid screeners, that doesn't mean I'm suicidal. I have no plan. I have no ideation. I just wish it would all go away because the physical pain is excruiciating. Diazepam has corn starch and I'm allergic to it, but without it I can't sleep through the night. The Lorazepam does caca and I have to take it 1mg Q4 hours; otherwise, it's worse than nothing at all. Nothing at all was intolerable because I was losing count of how many seizures I had in one eight hour period. The whole thing is intolerable. I can't keep this up for much longer. If I go silent, will someone please send in the troops? I do not want to die in vain. If I am to die soon, I pray that my death will help make things better for others like me. Baruch Hashem. Hoshia na. Devorah Zealot Soodak http://psychout.typepad.com/ the zealot needs help! P.S. Please read my blog. Thanks. P.P.S. Please click here to read my latest post. P.P.P.S. Please click here to read my featured post.

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