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My Life With Epilepsy or Should I Say No Life?

Thu, 11/11/2010 - 06:55
I used to have a life. A real life, even with epilepsy undiagnosed from childhood. When I started to have bigger problems than I thought I could cope with on my own, I went to the doctor for help. That was the biggest mistake in my life. The rest is history and current events. I started a blog, partly to save my own life. I think it has. I'm alive and kicking (lol, the seizures make me do that). Please read it if you want to know my story. I would love to hear from the rest of you on this site. I complain about this site a lot and many of you probably wonder why I'm here. I'm here because of all of you. Thanks and I'm looking forward to your comments. You can leave them here or on any one of my blog posts. Click on this link to leave a comment on my blog. For those of you who left comments, you can click on the same link to view my replies as you clicked to leave them or you can subscribe. Click on this link to subscribe to the comment feed. Baruch Hashem. Hoshia na.

Comments

Re: My Life With Epilepsy or Should I Say No Life?

Submitted by zealot on Tue, 2010-11-23 - 01:41
Chrissy, Thank you so much. It's like they say. It's always darkest before the dawn. Baruch Hashem. Hoshia na. Devorah Zealot Soodak http://psychout.typepad.com/ the zealot needs help! P.S. Please read my blog. Thanks. P.P.S. Please click here to read my latest post. P.P.P.S. Please click here to read my featured post.

Re: My Life With Epilepsy or Should I Say No Life?

Submitted by zealot on Wed, 2010-11-24 - 02:22
Hi Everyone, I'm not feeling very well. I've been having a lot of seizures so I'm exhausted and kind of down. I'm trying to figure out what to do because what I've been doing isn't working. I'm making phone call after phone call to social service angency after social service agency. Nothing. Nada. Nichts. So I put up a quick post in hopes of regaining some of the lost search rankings for my blog. I got killed in the New York State Office of Mental Health rankings. My Police post used to be page one on their police searches and now it's desaparecido. Oh well. So I put up this one. I don't think I have it quite right yet, but I think I'm getting closer. I hope you like it. There's not too much about me, but there are some cool pictures. Thanks for reading. I love when I get comments. I'm even more thrilled when someone actually leaves one on the blog. Being stuck alone in the Taffy Motel Absecon City dump is pretty miserable. I've no one to talk to. Baruch Hashem. Hoshia na. Devorah Zealot Soodak http://psychout.typepad.com/ the zealot needs help! P.S. Please read my blog. Thanks. P.P.S. Please click here to read my latest post. P.P.P.S. Please click here to read my featured post.

Re: My Life With Epilepsy or Should I Say No Life?

Submitted by zealot on Thu, 2010-11-25 - 16:24
Hello Everyone, I've had a tough couple of days. I went to the doctor yesterday and had a seizure in the waiting room. I really needed to talk to her, but I couldn't argue with her that I did need to go to the ER. It was pretty bad, but it could have been worse. I'm a little too traumatised to write about it yet. Long story short, I'm on Diazepam 5mgs Q8 hours on top of my Levetiracetam 500mg Q6 hours. My alarm goes off five times a day for me to take my meds. The only time I take all my meds at the same time is 06:00. I take my Levothyroxine then too. I hate benzos. They make me feel week and crappy and emotionally disinhibited. I need that like a hole in the head. I'm crying like a baby because I am spending Thanks Giving alone because my sister refuses to speak to me. Her husband said "We're afraid of you." I asked him why. Well, you're combative, but you've never been that way with us. Huh? Am I missing something here? I've never been combative with them and, yet, they're afraid of me because I'm combative? How do they know I'm combative if I've never been combative with them? That stinks of shrink speak to me. I wonder where it came from. Who violated my HIPAA non rights, or is that lefts, now. I really need to put up another post, but they're a lot of work and I'm really feeling pretty sick. If the seizures weren't worse than the Valium, I'd flush the Valium down the toilet. I hate it and I'm gonna pay big time when I have to stop taking it, which I will and soon. I don't think I've had more seizures, but I'm kind of too sick to tell. I keep praying for answers. I keep praying for help. I'm getting search hits on the blog from people googling my name and I'm not sure if that's a good thing or a bad thing. The blog is the blog and I am I and people don't seem to understand that they are different. I need help. The blog doesn't. Maybe I should put this in a post and feature it. I don't know what to do anymore. I just don't want to suffer any more like this. It is just too painful. Oh, and Epi-help. The piece de resistance of this wonderful day is getting spam scrammed for trying to post the link to my still latest post. That really isn't nice. I am not a spammer. In fact, I don' know what you guys do to police this site because I just flagged some pretty serious violations of site policy. That's your job, not mine. Your job is to protect us, not to censor us. My blog is not inappropriate content. Just because the file name has insurance or employment or suicide in the file name to get picked up by the search engines doesn't give you the right to spam it. Besides. Spam is spam and offensive content is offensive content. I am a known user. I do not post spam. White list my domain and any subdirectories and get any of my files off the spam list. It's just disgusting. Sorry for the rant. It's terrible being sick and homeless and voiceless and being deprived of one of the few opportunities I can make myself heard. Please pray for me. I need all the help I can get. Baruch Hashem. Hoshia na. Devorah Zealot Soodak http://psychout.typepad.com/ the zealot needs help! P.S. Please read my blog. Thanks. P.P.S. My latest post is now being spam scrammed. What the h*ll is the matter with you people? You grab all the search rankings anyway. You put the top ten ranked fora all over the site so you can use our words to grab search rankings. Don't think I don't check up on the Google searches to see your tricks. You also publish our fora like blogs. You use us to bolster your search rankings and you won't even let me link to my blog posts so my friends here can read my words without being censored by you. EPILEPSY DOT COM ARE THE THOUGHT POLICE!!!! YOU STINK!!!! P.P.P.S. My featured post is now being spam scrammed. These people really suck.

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