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My Life With Epilepsy or Should I Say No Life?
Thu, 11/11/2010 - 06:55I used to have a life. A real life, even with epilepsy undiagnosed from childhood. When I started to have bigger problems than I thought I could cope with on my own, I went to the doctor for help.
That was the biggest mistake in my life. The rest is history and current events.
I started a blog, partly to save my own life. I think it has. I'm alive and kicking (lol, the seizures make me do that). Please read it if you want to know my story.
I would love to hear from the rest of you on this site. I complain about this site a lot and many of you probably wonder why I'm here. I'm here because of all of you.
Thanks and I'm looking forward to your comments. You can leave them here or on any one of my blog posts. Click on this link to leave a comment on my blog.
For those of you who left comments, you can click on the same link to view my replies as you clicked to leave them or you can subscribe. Click on this link to subscribe to the comment feed.
Baruch Hashem. Hoshia na.
Comments
Re: My Life With Epilepsy or Should I Say No Life?
Submitted by zealot on Mon, 2010-11-22 - 12:50
Neil,
Thank you so much for your empathy.
I am very sorry that your life has gone so badly. It is very difficult. I get the "bad thoughts" too, but I would never act on them.
I, too, believe that He does not give us more than we can carry. I also know that when it is my time, it is my time. It may be that my death has more meaning than my life. I won't know that in this one.
That said, I'm not ready to leave this life yet. Plan A didn't work, Plan B didn't work, I'm not sure which letter of the alphabet I'm up to, but I don't think I've run out of letters yet.
You really shouldn't expose your email address in a comment like this. If you want to contact me, use the "contact this user" feature in my profile. That will send me an email.
I pray that your dream of an understanding wife becomes a reality. I pray that your doctors find a way to get your seizures under control and that you are well enough to work again.
We will both find a way.
Baruch Hashem. Hoshia na.
Devorah Zealot Soodak http://psychout.typepad.com/ the zealot needs help!
P.S. Please read my blog. Thanks.
P.P.S. Please click here to read my latest post.
P.P.P.S. Please click here to read my featured post.
Re: My Life With Epilepsy or Should I Say No Life?
Submitted by zealot on Mon, 2010-11-22 - 12:50
Neil,
Thank you so much for your empathy.
I am very sorry that your life has gone so badly. It is very difficult. I get the "bad thoughts" too, but I would never act on them.
I, too, believe that He does not give us more than we can carry. I also know that when it is my time, it is my time. It may be that my death has more meaning than my life. I won't know that in this one.
That said, I'm not ready to leave this life yet. Plan A didn't work, Plan B didn't work, I'm not sure which letter of the alphabet I'm up to, but I don't think I've run out of letters yet.
You really shouldn't expose your email address in a comment like this. If you want to contact me, use the "contact this user" feature in my profile. That will send me an email.
I pray that your dream of an understanding wife becomes a reality. I pray that your doctors find a way to get your seizures under control and that you are well enough to work again.
We will both find a way.
Baruch Hashem. Hoshia na.
Devorah Zealot Soodak http://psychout.typepad.com/ the zealot needs help!
P.S. Please read my blog. Thanks.
P.P.S. Please click here to read my latest post.
P.P.P.S. Please click here to read my featured post.
Re: My Life With Epilepsy or Should I Say No Life?
Submitted by p59 on Mon, 2010-11-22 - 12:10
I feel your pain. I was diagnosed 2 years ago and now it has cost me my job because the seizures are not responding to well to medication. On top of it all last month my wife of 14 years tells me that she has had an affair and asks for a divorce and leaves me for the other man. I have had very bad thoughts during this time but I can tell you that there has to be a silver lining for all of us. God well not place any more burdens on us then what he knows we can bear. If you want add me to your email list my email address is p59emt@gmail.com and I would be happy to write to you. We all have our struggles but with help we can overcome them. I am going to miss my wife but God does have something planned for me and I am sure that as soon as the pain subsides I will see that. I will find someone that accepts the fact that my condition is not going away and can handle the seizures and understand that they maybe scared while the seizure is taking place but I am the one that has to deal with it during and after.
God Bless You.
Neil
I feel your pain. I was diagnosed 2 years ago and now it has cost me my job because the seizures are not responding to well to medication. On top of it all last month my wife of 14 years tells me that she has had an affair and asks for a divorce and leaves me for the other man. I have had very bad thoughts during this time but I can tell you that there has to be a silver lining for all of us. God well not place any more burdens on us then what he knows we can bear. If you want add me to your email list my email address is p59emt@gmail.com and I would be happy to write to you. We all have our struggles but with help we can overcome them. I am going to miss my wife but God does have something planned for me and I am sure that as soon as the pain subsides I will see that. I will find someone that accepts the fact that my condition is not going away and can handle the seizures and understand that they maybe scared while the seizure is taking place but I am the one that has to deal with it during and after.
God Bless You.
Neil