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My Life With Epilepsy or Should I Say No Life?

Thu, 11/11/2010 - 06:55
I used to have a life. A real life, even with epilepsy undiagnosed from childhood. When I started to have bigger problems than I thought I could cope with on my own, I went to the doctor for help. That was the biggest mistake in my life. The rest is history and current events. I started a blog, partly to save my own life. I think it has. I'm alive and kicking (lol, the seizures make me do that). Please read it if you want to know my story. I would love to hear from the rest of you on this site. I complain about this site a lot and many of you probably wonder why I'm here. I'm here because of all of you. Thanks and I'm looking forward to your comments. You can leave them here or on any one of my blog posts. Click on this link to leave a comment on my blog. For those of you who left comments, you can click on the same link to view my replies as you clicked to leave them or you can subscribe. Click on this link to subscribe to the comment feed. Baruch Hashem. Hoshia na.

Comments

Re: My Life With Epilepsy or Should I Say No Life?

Submitted by Alize on Thu, 2010-11-18 - 13:28
A. Ballard                 I understand what your talking about but our friends & family members don't.

Re: My Life With Epilepsy or Should I Say No Life?

Submitted by zealot on Thu, 2010-11-18 - 14:10
Alize, Thank you. It's terrible that our friends and families don't understand us. I don't know whether it's because they are unable, unwilling, or some combination of the two. People fear what they do not understand. Baruch Hashem. Hoshia na. Devorah Zealot Soodak http://psychout.typepad.com/ the zealot needs help! P.S. Please read my blog. Thanks. P.P.S. Please click here to read my latest post. P.P.P.S. Please click here to read my featured post.

Re: My Life With Epilepsy or Should I Say No Life?

Submitted by zealot on Mon, 2010-11-22 - 12:57
Hi Everyone, I just put up a new post, but I got "Slam, spam, no thank you, ma'm"ed. The Censorship on this site is unbelievable. It seems that we are not allowed to link to urls containing the word suicide. They even censor our fora like that one where the desperate poster asked "should I just kill myself?" We need to talk about what we need to talk about and suicide is a risk with the meds. So why can't we give links to helpful information about it? My post isn't even about suicide. I just put that there for the search engines to pick up. It carries weight on certain searches. So, I can't give you the link to my latest post. And it isn't the featured post. That means if you go to the blog, you'll have to read past the first humunga-lunga post. I'm pretty upset about this. Every time I think they've fixed the spam trap, they haven't. When are they going to white list my domain? I am not a spammer. If I put the url name in the post without the http:// I'll be buried in the search rankings because this site will gobble me up. I feel like I can't win. The people who run this site are a bunch of money-grubbers. Google the board of directors of this site and you'll see. I'm tired and upset and I have to be in Court tomorrow morning. I've been seizing all day and I feel like caca and now I can't even give you the link to my latest post. These people really suck. They ride our words to top search rankings and they censor us. These are supposed to be our fora, not theirs. WTF? I want to be able to post the links to my posts on this blog. It is easier to load one entry than to load the whole blog, which is huge. If I tailor my url names to the dubious standard of this site, I'll really disappear from the search engines. Why can't we link to WebMd anyway? Did someone get in a fight with them? Or are they the competition? This is the United States of America. The Censor is abhorrent. It goes against everything we in this country stand for. You pretend to advocate for us and you censor us. I know why you won't allow the link to the Harborview Horror. Don't think I didn't Google it. I haven't figured out why you won't allow links to WebMd, but I'll figure that one out, too. Baruch Hashem. Hoshia na. Devorah Zealot Soodak http://psychout.typepad.com/ the zealot needs help! P.S. Please read my blog. Thanks. P.P.S. This is my latest post. It's not about suicide. It's about looking for help and not getting it because of greedy people like the ones who run this site. They want to control everything and every one. You'll have to copy and paste the ul name and they'll really grab my search rankings not. They really suck. If I didn't like you all so hmuch, I'd be long gone from this site. Thank you for caring. psychout.typepad.com/blog/2010/11/new-york-state-office-of-mental-health-police-jail-forensic-regulations-suicide-prevenstion-omh-safety-google-search-epilepsy.html P.P.P.S. Please click here to read my featured post.

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