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Feeling a bit like Alice in Wonderland on Topamax!

Thu, 04/03/2008 - 23:28
Hi there, I have been taking Topamax now for around 8 months. Every few days I experience severe burning throughout my head, and sometimes the room even seems to move in waves, and I know this probably sounds completely nuts!...but objects & people seem to shrink in size..as though from 'Alice in Wonderland' at first it was a little funny, but now it is frightening. I have told my neurologist of my concerns, and he has told me to hang in there. I have started taking different vitamins and changing my diet etc, and this has helped a lot, but unfortunately these symptoms come back. Has anyone else experienced these symptoms on Topamax?? Cheers! Summer :)

Comments

Re: Feeling a bit like Alice in Wonderland on Topamax!

Submitted by MindelaBB on Wed, 2010-11-03 - 23:01
I have to say, it is a bit comforting to hear that other people have experienced the same awful side effects that I had with Topamax, not that I would wish it on anyone. It does make me feel better knowing that I am not crazy though, like I sometimes felt. I had horrible issues with my speech; after a little more than a year my speech pattern was drastically altered. I could not retrieve words from vocabulary; I could not put together a sentence correctly. My memory has never been the same; I could no longer retain information in the same way that I had previously. My eyes also began acting funny; all of the sudden, my eyes would cross and it appeared that my nose had grown drastically. Not long after experiencing all of these symptoms, I had a breakthrough seizure and that was the end of my experience with Topamax!

Re: Feeling a bit like Alice in Wonderland on Topamax!

Submitted by sophia_hill on Thu, 2008-04-10 - 10:30
did you know there is a disorder actually called "ALICE IN WONDERLAND" syndrome!! how cool is that. lol i hav this problem but in not on topamax im on lamictral 100mg  ATM but i'm incresing it to 150mg soon. its funny at first like u said , but now it bloody scary !! ive had this problem for years but it still scares me and i suffer from 5 diffrent types of seizures. i hope u find a better med that suits u better.... lots of lov from sophia hill ..uk xxx

Re: Feeling a bit like Alice in Wonderland on Topamax!

Submitted by uberzwitter on Thu, 2008-04-10 - 14:10
I had the Wonderland thing happen only once, when I was weening onto it from Keppra and must have been having psychotic episodes. I was at my counselors office and she's grilling me about tracking down my nuero and getting me lowered since I'm behaving so oddly and I'm instisting its fine and that I'll be over it as soon as the transition is over. Suddenly she looks at me and says "What are you looking at?" "Nothing" I didn't want to tell her the room suddenly began expanding and I was shrinking. "Your eyes are tracking something. And you stared at the flower pot in the waiting office for 15 min. so don't tell me nothings wrong!" It was so the wrong time to start shrinking and expanding and keep a straight face about it.

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