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Photosensitivity anyone???

Tue, 12/07/2004 - 18:47

Hi all, I was just wondering who (children or adults) was photosensitive and to what and what type of seizures it ellicited?

The only types of seizures that are produced form this, from what my epi tells me, are Absence, Myoclonic and some types of Primary Generalized TCs.

I am Photosensitive to about everything, and had to recently buy polarized sunglasses to avoid some of it.  However I can't hide behind them all the time and some things are unavoidable, but they do cut down on the glare and UV rays that cause the brightness of things. 

Can you believe that even Christmas lights set me off.

The other night I was at a Christmas party with my for a ladies group at my church and some clown started taking pictures, and BAM, I had fallen into my mom who was standing next to me or the next stop would have been the floor had she not caught me.

I only had an Absence that lasted about 15 seconds or so, according to her.  After this person took about 10 pictures, and ellicited about 5-8 seizures out of me, my mom told her she needed to cut down on it for this evening.  She was mad and that was Thursday, and this is now Sunday, and she is still not talking to me. 

I also have Myoclonics as well, and they were also tripped by the other activity, so I had multiple seizure types going on at once.

The seizures continued for the next 48 hours.

I had to spend the later part of the party with my head in the hood of my coat everytime she took a picture, because she just couldn't not do it.

Nancy

 

Comments

RE: Photosensitivity anyone???

Submitted by aurora on Mon, 2004-12-06 - 02:52
How unbelievably inconsiderate! It's not like you just don't like flashes! They cause you serious harm. That makes me really mad. I am photosensitive, mostly to flashes from cameras (especialy the kind that flash several times in a row), strobe lights, and sometimes blinking neon, sunlight flickering through trees (especially when riding in a car) and a few other things. iget nauseated, get internal flashing lights, and then facial twitches and limb jerks, and it can take hours to recover. I went to see The Lion King, and spent an hour recovering in the lobby after the show. I has asked about strobes, and the usher said no, but they did have very rapidly flashing lights in a scene late in the show, and that did it. I get really angry because i'll tell store managers or theater staff that it's dangerous and they need to warn people, or turn off strobes, and they smile and say of course, and thendon't. I had seizuresina street in Key West several times in a few days because of store window strobes.I don't get why your mom is mad at you. You didn't design your brain. It shouldn't have taken more than one mention to get the camera put away. I can't believe you had to put your head in a coat. I'm hopping mad! Aurora

RE: RE: Photosensitivity anyone???

Submitted by mexican_fire on Tue, 2004-12-07 - 18:47

My mom is NOT mad at me, she has NEVER been mad at me for having epilepsy.  I was born with it, so she has been living with it for 31 years, most of which have been undiagnosed.

The person who is still mad at me is the one who was taking the pictures, and got her underpants all in a wad when my mom told her she had to watch it with the camera and not take as many pictures as she was or with the vengence that she was.  This person just gets ridiculous with the camera, and takes like 100 or more at every single church event.

It is that kind of ignorance that I can't handle or deal with.  It makes me want to somehow ring their necks until their stupid little heads pop off.

Nancy

My mom is NOT mad at me, she has NEVER been mad at me for having epilepsy.  I was born with it, so she has been living with it for 31 years, most of which have been undiagnosed.

The person who is still mad at me is the one who was taking the pictures, and got her underpants all in a wad when my mom told her she had to watch it with the camera and not take as many pictures as she was or with the vengence that she was.  This person just gets ridiculous with the camera, and takes like 100 or more at every single church event.

It is that kind of ignorance that I can't handle or deal with.  It makes me want to somehow ring their necks until their stupid little heads pop off.

Nancy

Re: RE: RE: Photosensitivity anyone???

Submitted by xwovie on Tue, 2010-11-02 - 23:48
HI, I think I'm Photosensitive w/o Epilepsy. and have been that way for about a year. Funny thing is that I was first trigged by Christmas lights. Any way. If the person forces you into in the hood. You ask nicely a couple of times to please turn of the flash. If they don't ask the host to have them stop taking pitchers. and if that don't work you walk up to them grab the camera remove the batteries and the Flash Card ( or rip the film out), hand back the camera and tell them if they want the pitchers back they can have it at the end of the night. Then walk over to Host hand over Items to Host and go on with evening. It is then up to the Host what happen next. If the person that keeps flashing the camera at you after they have been notified of your condition presets, then that person is committing assault on your person. If need be call cops and/or break camera. My triggers are any flashing light, light and shadow, TV, & pattern. I'm on Topamax and that keep my seizures from hours long to minuets long.

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