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what's wrong with me and why can't I find a good doctor???

Mon, 08/23/2010 - 20:21

I have deleted this post because I am tierd of people telling me to just accept the fact that I have epilepy! My problem is not acceptance. My problem is that I can't find a competant dr. After doing my own research I feel that I very well may have E. HOWEVER. My previous drs all said so based on NOTHING!!!! Which as a medical professional is completely irresponsible. They NEVER looked at test results... or even looked into my history. My first three drs didn't know anything about my family. ALL of them made their choice based on me having ONE seizure. ONE SEIZURE does not mean epilepsy! I have found a few friends on here... and some support... so thank you to those people. In the future... if you answer my posts... I would greatly appreciate you reading the entire post, as all of the above was stated previously.

Comments

Re: what's wrong with me and why can't I find a good doctor???

Submitted by mamasan on Sun, 2010-09-19 - 15:37

Crissy,

I've read all the other posts and agree with them.  Let me say there is a lot of information that one can learn about epilepsy on this site and others as well.  I, like many of the others, have had epilepsy all my life.  But I'll admit that since I've had it "forever" - I think it is much easier for me to accept than for someone who has been recently diagnosed or has had to change their life. 

We all understand and we have all persevered.  Keep coming back and checking in.  Best to you. 

Crissy,

I've read all the other posts and agree with them.  Let me say there is a lot of information that one can learn about epilepsy on this site and others as well.  I, like many of the others, have had epilepsy all my life.  But I'll admit that since I've had it "forever" - I think it is much easier for me to accept than for someone who has been recently diagnosed or has had to change their life. 

We all understand and we have all persevered.  Keep coming back and checking in.  Best to you. 

Re: what's wrong with me and why can't I find a good doctor???

Submitted by stephaniem64 on Sun, 2010-09-26 - 23:37

This issue recently came up with me and my dr. I am 23 have had 6 seizures (all grand mal) and was "diagnosed" when I was 21. My dr told me that one unprovoked seizure = epilepsy, but one provoked seizure does not. Obviously after my 2nd one i started taking meds and my 3rd i upped my dosage so those were unprovoked??

However my last seizure I forgot to take my morning dose of meds and was working at a wine tasting outdoors in the 90 degree heat all day on little sleep and when i told my doctor about my seizure she said this was provoked? So technically this would not qualify as a diagnoasable seizure??

This makes no sense to me considering no one else working with me that day had seizures, only I did because I have EPILEPSY-- it is so bizarre how they "diagnose" it. Your not the only one with these confusing issues, I have only seen one doctor I like and I can't see him for 2 months (rediculous). Good luck and i'll keep checking this post to see if i can gain any insight into the matter also.

 

Stephanie M :)

This issue recently came up with me and my dr. I am 23 have had 6 seizures (all grand mal) and was "diagnosed" when I was 21. My dr told me that one unprovoked seizure = epilepsy, but one provoked seizure does not. Obviously after my 2nd one i started taking meds and my 3rd i upped my dosage so those were unprovoked??

However my last seizure I forgot to take my morning dose of meds and was working at a wine tasting outdoors in the 90 degree heat all day on little sleep and when i told my doctor about my seizure she said this was provoked? So technically this would not qualify as a diagnoasable seizure??

This makes no sense to me considering no one else working with me that day had seizures, only I did because I have EPILEPSY-- it is so bizarre how they "diagnose" it. Your not the only one with these confusing issues, I have only seen one doctor I like and I can't see him for 2 months (rediculous). Good luck and i'll keep checking this post to see if i can gain any insight into the matter also.

 

Stephanie M :)

Re: what's wrong with me and why can't I find a good doctor???

Submitted by espeller on Wed, 2011-04-27 - 14:05

I, too, am very sick of my doctors.  At the TBI office, they were like "what?  seizures?"  when a common symptom of TBI (traumantic brain injury) is seizures.  I am just hoping (whilst throwing hundreds of dollars to the wind) that someday the Good Doctor Fairy will wave her wand, and I'll find the perfect professional. 

Sometimes I wonder if these doctors even went to school.

 I requested my file from on Neurologist, and was appauled to see he made the note "Keeps talking about her epilepsy journal" like it was a bad thing.  Shouldn't he be reading my entries?  What is wrong with the world?

 I have gotten to the point where I am advocating for myself, and I am in control of my healthcare.  I am in control of my medications.  I will use only medications that work (that don't cause brain-death and vaginal bleeding like Trileptal!)  I will find another doctor if unhappy with one.  I will report any unethical behavior from a doctor to the appropriate authorities (they ALL are held accountable -- look at their intro documents to you, to find out where to lodge complaints.)

I'm not sure if this is going to help you, but I really would like to say thanks for letting me vent a bit. 

I would say: go with your gut.  Yes, I'm sure we've all accepted our Epilepsy.  But if you have that bad feeling, you have to advocate for yourself.  Be your lawyer.  Be the doctor you wished you had.  Think about this creatively, and never say never.  Yes, it's possible!

 Emmie

I, too, am very sick of my doctors.  At the TBI office, they were like "what?  seizures?"  when a common symptom of TBI (traumantic brain injury) is seizures.  I am just hoping (whilst throwing hundreds of dollars to the wind) that someday the Good Doctor Fairy will wave her wand, and I'll find the perfect professional. 

Sometimes I wonder if these doctors even went to school.

 I requested my file from on Neurologist, and was appauled to see he made the note "Keeps talking about her epilepsy journal" like it was a bad thing.  Shouldn't he be reading my entries?  What is wrong with the world?

 I have gotten to the point where I am advocating for myself, and I am in control of my healthcare.  I am in control of my medications.  I will use only medications that work (that don't cause brain-death and vaginal bleeding like Trileptal!)  I will find another doctor if unhappy with one.  I will report any unethical behavior from a doctor to the appropriate authorities (they ALL are held accountable -- look at their intro documents to you, to find out where to lodge complaints.)

I'm not sure if this is going to help you, but I really would like to say thanks for letting me vent a bit. 

I would say: go with your gut.  Yes, I'm sure we've all accepted our Epilepsy.  But if you have that bad feeling, you have to advocate for yourself.  Be your lawyer.  Be the doctor you wished you had.  Think about this creatively, and never say never.  Yes, it's possible!

 Emmie

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