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what's wrong with me and why can't I find a good doctor???
Mon, 08/23/2010 - 20:21I have deleted this post because I am tierd of people telling me to just accept the fact that I have epilepy! My problem is not acceptance. My problem is that I can't find a competant dr. After doing my own research I feel that I very well may have E. HOWEVER. My previous drs all said so based on NOTHING!!!! Which as a medical professional is completely irresponsible. They NEVER looked at test results... or even looked into my history. My first three drs didn't know anything about my family. ALL of them made their choice based on me having ONE seizure. ONE SEIZURE does not mean epilepsy! I have found a few friends on here... and some support... so thank you to those people. In the future... if you answer my posts... I would greatly appreciate you reading the entire post, as all of the above was stated previously.
Comments
Re: what's wrong with me and why can't I find a good doctor???
Submitted by cissy166 on Sat, 2010-09-04 - 23:08
Re: what's wrong with me and why can't I find a good doctor???
Submitted by Nowell on Sat, 2010-09-18 - 13:26
Crissy:
I have had seizures all my life. As a result of Spinalmeningits when I was 17 months old. I have taken meds for 46 years. In that time I have been to several doctors most of them did not know what was going on or did not want to deal with it. Others gave it a try but, caused more problems in addition to my seizure problem. So to answer your question The reason you can't find a good doctor is because these people after they go through medical school learning how to take care of patients in the class room the try their knowledge on people. Remember that every doctor you see may have a family member who has epilepsy but, they have not been through this themselves. I went through brain surgery 1 year and 4 months ago to hopefully get rid of my seizures. When I asked the doctor if I would be seizure free he said, "Only time will tell." He also informed me that Medicine is not an exact science. The doctors are trying to help but, they rely on their knowledge and not show true feelings of the patient when they go through their battery of tests and medications and if you fight with them they look at you like your crazy. So here are the steps I have been doing to help me out. I hope this helps.
1. Learn everything you can about your seizures.
2. Have fun with your past since you can't change it.
3. Keep yourself so busy that you don't have time to even think about them.
4. Ask the doctor to help you find the balance and if he can't help you do it yourself.
I have learned about the side effects of every medication I take and keep on top of it. If I do not want these side effects I am doing like what the meds said. I stop taking it. So, I am weaning myself off my meds and I am in control of my health not the other way around.
I have a lot of faith and determination to get my life back once in for all. Self Confidence goes along way.
Doctors give conflicting information so, when that happens do not listen to it.
Take control of your life and you will feel better.
Good luck.
Crissy:
I have had seizures all my life. As a result of Spinalmeningits when I was 17 months old. I have taken meds for 46 years. In that time I have been to several doctors most of them did not know what was going on or did not want to deal with it. Others gave it a try but, caused more problems in addition to my seizure problem. So to answer your question The reason you can't find a good doctor is because these people after they go through medical school learning how to take care of patients in the class room the try their knowledge on people. Remember that every doctor you see may have a family member who has epilepsy but, they have not been through this themselves. I went through brain surgery 1 year and 4 months ago to hopefully get rid of my seizures. When I asked the doctor if I would be seizure free he said, "Only time will tell." He also informed me that Medicine is not an exact science. The doctors are trying to help but, they rely on their knowledge and not show true feelings of the patient when they go through their battery of tests and medications and if you fight with them they look at you like your crazy. So here are the steps I have been doing to help me out. I hope this helps.
1. Learn everything you can about your seizures.
2. Have fun with your past since you can't change it.
3. Keep yourself so busy that you don't have time to even think about them.
4. Ask the doctor to help you find the balance and if he can't help you do it yourself.
I have learned about the side effects of every medication I take and keep on top of it. If I do not want these side effects I am doing like what the meds said. I stop taking it. So, I am weaning myself off my meds and I am in control of my health not the other way around.
I have a lot of faith and determination to get my life back once in for all. Self Confidence goes along way.
Doctors give conflicting information so, when that happens do not listen to it.
Take control of your life and you will feel better.
Good luck.
Re: what's wrong with me and why can't I find a good doctor???
Submitted by Sjsanchez on Sat, 2010-09-04 - 15:17
I have had epilepsy pretty much my whole life and done tons of research on the topic myself to see if I can ever be med. free. I can tell you this, epilepsy seems to be diffrent for each person, I know it may not be what youwant to hear, but seizure's can be triggered by light patterns, sounds, migrains, and stress, also lack of sleep. they can become very violent the longer they are not medicated. trust me I know, I went off my meds after not having a seizure for 7yrs. and had 2 in one day 4 1/2hrs. apart that I broke my back just from the force of my body seizing, my 14yr. old son was home alone with me during the second one while my husband was at the pharmacy trying to get the meds. filled the ER had prescribed to me. he arrived home to the ambulance being back again and my son scared to death. I would never wish that on anyone. I don't have seizures as often as you seem to think people with it do. and on meds they are controlled, the only time I had a seizure onmeds was 1yr. after I started the meds. I also have sever migrains and you get blurry vision, nausea, and ringing in your ears. they are debilitating to where I can't get out of bed. Epilepsy does not have a definate diagnosis where you can take a test and that points to the exact diagnosis, all of my test came back normal too. CT, MRI, EEG nothing showed, yet I continue to have seizures. Grand Mal. they are scary and hard to go through. sometime acceptance is the hardest part about all of this, since all of this started I have found out that I have a family history for E. my Dad's side of my family has it. while seizure's show up every few years now. my little sister had about 12 a month as a very young child we have same father but diffrent mothers and she is also 26yrs. yoounger I know don't ask. but she was on meds thru all of this. then one day they just stopped. she is now 11yrs. old and has not had one since she was 4yrs. old her mom said that they never found anything on any of her test either. this condition is somewhat of a mystery to the medical profession also. I hope you are able to come to terms and get help good luck to you. I know myself after having my son think I could die from this I will never go off meds again. I don't want to put him thru that. I stop breathing during my seizure's and have the full body convulsions, they last for several minutes wich seems like a life time for my family having to watch. I don't remeber any of it but they say I come out of them fighting for air. and crawling on floor to get away.
I have had epilepsy pretty much my whole life and done tons of research on the topic myself to see if I can ever be med. free. I can tell you this, epilepsy seems to be diffrent for each person, I know it may not be what youwant to hear, but seizure's can be triggered by light patterns, sounds, migrains, and stress, also lack of sleep. they can become very violent the longer they are not medicated. trust me I know, I went off my meds after not having a seizure for 7yrs. and had 2 in one day 4 1/2hrs. apart that I broke my back just from the force of my body seizing, my 14yr. old son was home alone with me during the second one while my husband was at the pharmacy trying to get the meds. filled the ER had prescribed to me. he arrived home to the ambulance being back again and my son scared to death. I would never wish that on anyone. I don't have seizures as often as you seem to think people with it do. and on meds they are controlled, the only time I had a seizure onmeds was 1yr. after I started the meds. I also have sever migrains and you get blurry vision, nausea, and ringing in your ears. they are debilitating to where I can't get out of bed. Epilepsy does not have a definate diagnosis where you can take a test and that points to the exact diagnosis, all of my test came back normal too. CT, MRI, EEG nothing showed, yet I continue to have seizures. Grand Mal. they are scary and hard to go through. sometime acceptance is the hardest part about all of this, since all of this started I have found out that I have a family history for E. my Dad's side of my family has it. while seizure's show up every few years now. my little sister had about 12 a month as a very young child we have same father but diffrent mothers and she is also 26yrs. yoounger I know don't ask. but she was on meds thru all of this. then one day they just stopped. she is now 11yrs. old and has not had one since she was 4yrs. old her mom said that they never found anything on any of her test either. this condition is somewhat of a mystery to the medical profession also. I hope you are able to come to terms and get help good luck to you. I know myself after having my son think I could die from this I will never go off meds again. I don't want to put him thru that. I stop breathing during my seizure's and have the full body convulsions, they last for several minutes wich seems like a life time for my family having to watch. I don't remeber any of it but they say I come out of them fighting for air. and crawling on floor to get away.