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Musicogenic Epilepsy

Fri, 08/07/2009 - 04:03
I read The Zahir written by Paulo Coelho and one of the characters has musicogenic epilepsy.  He describes it as ecstatic experiences provoked by hearing a particular kind of sound or music.  Has anyone here ever heard of it? I googled it and found that there is only 150 reported cases.When I was 14 I was watching Sister Act and when they choir sang at the end of the movie it felt like someone shook me, I screamed and was filled with fear worst than anything I could comprehend.  My mother had to hold me on her lap to get me to calm down and I cried myself to sleep.  Since then it happened regularly always triggered by music or an alarm.  My sister had an electric alarm clock and I screamed every morning when her alarm went off.  My mother took me to a doctor who told her that I’m doing it to get attention.  From then on she ignored it and told me to get over it.   I had my first grand mal seizure while asleep at 21 and was diagnosed with epilepsy.  Fortunately I only have it when I’m asleep.  I use Lamictin and it’s under control but I still find that certain music, high pitched noise set’s off a kind of aura, I feel spaced out, have intense fear and it sounds almost like water rushing and I hear voices. Has anyone here experienced something similar?

 

Comments

Re: Musicogenic Epilepsy

Submitted by candicee on Mon, 2010-05-31 - 21:56
my name's candice. i'm 16 years old and i can't listen to ANY tpye of music or beats. people singing/humming or even just a simple beat on a table will trigger for me. it's so hard. i realized music ever EVERYWHERE!

Re: Musicogenic Epilepsy

Submitted by tonialpha on Tue, 2010-06-01 - 19:20

I use to be intimidated by flashing lights.  When I was younger strobe lights, seem to do it to me.    A very gentle friend of the family told me the fear is controlling you.  I thought in one way she was right.  I worked at a high school and dances were once a month and they would have a strobe light in the gym and I never went in there.

  I thought I could ride my bike home.  When a siren w/ lights would go by, I would be on the ground!  It got me mad when I realized I had a seizure.  The fire dept. that would pick me up  and they told me that sirens would make me fall asleep!

 When I was in high school certain classical tones of music I would listen to and off I would go into a seizure and I would fall asleep.

When I was in a seizure monitoring unit,  I was fighting an aura while listening to some classical music.  The nurse walked into the room for something else and I told her I am not feeling right.  I could not talk right.  I could not communicate at all. at one point and went to sleep.  They told me I had a group of seizures and have given me medication to stop it.

Sound, light can cause seizures. I have had trouble w/ it but I never knew until now that that was the cause.  I love music!  Reading was a problem when I was younger.  It took me a while to understand and read the print.

We all have challenges I will admit. They effect us differently.

 

I use to be intimidated by flashing lights.  When I was younger strobe lights, seem to do it to me.    A very gentle friend of the family told me the fear is controlling you.  I thought in one way she was right.  I worked at a high school and dances were once a month and they would have a strobe light in the gym and I never went in there.

  I thought I could ride my bike home.  When a siren w/ lights would go by, I would be on the ground!  It got me mad when I realized I had a seizure.  The fire dept. that would pick me up  and they told me that sirens would make me fall asleep!

 When I was in high school certain classical tones of music I would listen to and off I would go into a seizure and I would fall asleep.

When I was in a seizure monitoring unit,  I was fighting an aura while listening to some classical music.  The nurse walked into the room for something else and I told her I am not feeling right.  I could not talk right.  I could not communicate at all. at one point and went to sleep.  They told me I had a group of seizures and have given me medication to stop it.

Sound, light can cause seizures. I have had trouble w/ it but I never knew until now that that was the cause.  I love music!  Reading was a problem when I was younger.  It took me a while to understand and read the print.

We all have challenges I will admit. They effect us differently.

 

Re: Musicogenic Epilepsy

Submitted by phylisfjohnson on Tue, 2010-06-01 - 11:40

Musicogenic Epilepsy is a form of reflexive epilepsy in which a seizure is triggered by music or specific frequencies. Sensitivity to music varies from person to person.  Some people are sensitive to a particular tone from a voice or instrument. Others are sensitive to a particular musical style or rhythm. Still others are sensitive to a range of noises.      Phylis Feiner Johnson   www.epilepsytalk.com

 

Musicogenic Epilepsy is a form of reflexive epilepsy in which a seizure is triggered by music or specific frequencies. Sensitivity to music varies from person to person.  Some people are sensitive to a particular tone from a voice or instrument. Others are sensitive to a particular musical style or rhythm. Still others are sensitive to a range of noises.      Phylis Feiner Johnson   www.epilepsytalk.com

 

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