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Musicogenic Epilepsy
Fri, 08/07/2009 - 04:03
Comments
Re: Musicogenic Epilepsy
Submitted by tonialpha on Tue, 2010-06-01 - 19:20
I use to be intimidated by flashing lights. When I was younger strobe lights, seem to do it to me. A very gentle friend of the family told me the fear is controlling you. I thought in one way she was right. I worked at a high school and dances were once a month and they would have a strobe light in the gym and I never went in there.
I thought I could ride my bike home. When a siren w/ lights would go by, I would be on the ground! It got me mad when I realized I had a seizure. The fire dept. that would pick me up and they told me that sirens would make me fall asleep!
When I was in high school certain classical tones of music I would listen to and off I would go into a seizure and I would fall asleep.
When I was in a seizure monitoring unit, I was fighting an aura while listening to some classical music. The nurse walked into the room for something else and I told her I am not feeling right. I could not talk right. I could not communicate at all. at one point and went to sleep. They told me I had a group of seizures and have given me medication to stop it.
Sound, light can cause seizures. I have had trouble w/ it but I never knew until now that that was the cause. I love music! Reading was a problem when I was younger. It took me a while to understand and read the print.
We all have challenges I will admit. They effect us differently.
I use to be intimidated by flashing lights. When I was younger strobe lights, seem to do it to me. A very gentle friend of the family told me the fear is controlling you. I thought in one way she was right. I worked at a high school and dances were once a month and they would have a strobe light in the gym and I never went in there.
I thought I could ride my bike home. When a siren w/ lights would go by, I would be on the ground! It got me mad when I realized I had a seizure. The fire dept. that would pick me up and they told me that sirens would make me fall asleep!
When I was in high school certain classical tones of music I would listen to and off I would go into a seizure and I would fall asleep.
When I was in a seizure monitoring unit, I was fighting an aura while listening to some classical music. The nurse walked into the room for something else and I told her I am not feeling right. I could not talk right. I could not communicate at all. at one point and went to sleep. They told me I had a group of seizures and have given me medication to stop it.
Sound, light can cause seizures. I have had trouble w/ it but I never knew until now that that was the cause. I love music! Reading was a problem when I was younger. It took me a while to understand and read the print.
We all have challenges I will admit. They effect us differently.
Re: Musicogenic Epilepsy
Submitted by phylisfjohnson on Tue, 2010-06-01 - 11:40
Musicogenic Epilepsy is a form of reflexive epilepsy in which a seizure is triggered by music or specific frequencies. Sensitivity to music varies from person to person. Some people are sensitive to a particular tone from a voice or instrument. Others are sensitive to a particular musical style or rhythm. Still others are sensitive to a range of noises. Phylis Feiner Johnson www.epilepsytalk.com
Musicogenic Epilepsy is a form of reflexive epilepsy in which a seizure is triggered by music or specific frequencies. Sensitivity to music varies from person to person. Some people are sensitive to a particular tone from a voice or instrument. Others are sensitive to a particular musical style or rhythm. Still others are sensitive to a range of noises. Phylis Feiner Johnson www.epilepsytalk.com
Re: Musicogenic Epilepsy
Submitted by candicee on Mon, 2010-05-31 - 21:56
my name's candice. i'm 16 years old and i can't listen to ANY tpye of music or beats. people singing/humming or even just a simple beat on a table will trigger for me. it's so hard. i realized music ever EVERYWHERE!