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How exactly do aura's feel
Mon, 05/15/2006 - 11:30Comments
Re: aura's
Submitted by Terribee on Wed, 2010-03-24 - 22:22
Hi Hannah:
I was reading your post and I was wondering how you know you're having an aura. I have had nocturnal TCs for 38 years and I think I've just started experiencing them but they can be really freaky. Sometimes I'm in bed just before I drift off and all of a sudden I see floating red specks (sometimes other colours too) and they slowly drift toward me, sometimes blinking on and off really fast. I start feeling panicky because I know what could come next. Sometimes it does happen other times it doesn't. I've tried explaining this to my neurologist but he just doesn't get it. Do you think I should try getting up and walking around or just stay put?
The other type of aura? is I'm thinking about something strange and zone out for a couple of seconds. Most of the time this does not preclude a seizure but it still is a little disconcerting. I'll definitely try to do something different if I feel one of these types of auras coming on.
I have no idea what I should do. All tests have been inconclusive since I was 2 and every time I go to the neurologist he says there is nothing he can do for me. Can anyone give me some suggestions?
Thanks!:)
Hi Hannah:
I was reading your post and I was wondering how you know you're having an aura. I have had nocturnal TCs for 38 years and I think I've just started experiencing them but they can be really freaky. Sometimes I'm in bed just before I drift off and all of a sudden I see floating red specks (sometimes other colours too) and they slowly drift toward me, sometimes blinking on and off really fast. I start feeling panicky because I know what could come next. Sometimes it does happen other times it doesn't. I've tried explaining this to my neurologist but he just doesn't get it. Do you think I should try getting up and walking around or just stay put?
The other type of aura? is I'm thinking about something strange and zone out for a couple of seconds. Most of the time this does not preclude a seizure but it still is a little disconcerting. I'll definitely try to do something different if I feel one of these types of auras coming on.
I have no idea what I should do. All tests have been inconclusive since I was 2 and every time I go to the neurologist he says there is nothing he can do for me. Can anyone give me some suggestions?
Thanks!:)
Re: loving the feeling of auras
Submitted by princessjujuba on Sat, 2011-02-12 - 10:18
its the same with me. i just recently found out that i have epilepsy and its really not fun. but i went through all my life not knowing that what was happening to me was seizures, because they werent grand mal. And now that i am on medication, im tired, and my eyes do this weird flicking back and forth.
The seizures that i have dont hurt neither does the eye flicking. But lately i have been having like intense headaches which i never used to get,and its just kind of scary.
Right now im also sick with some sort of flu like symptom thing. And i have a really bad cough and im really congested. i feel sick ALL the time and i afraid i might push out a seizure thats how bad and deep my auras are getting. I feel like im dreaming, and when i walk its all light like theres no weight on me. I admit it feels like being high. and i wasnt sure it was an aura. and my head was so (congested) it felt like nothing, i felt like i was going to falll down but i sort of felt ok with it.
I dont know. its strange. I'm strange.
Julia:)
its the same with me. i just recently found out that i have epilepsy and its really not fun. but i went through all my life not knowing that what was happening to me was seizures, because they werent grand mal. And now that i am on medication, im tired, and my eyes do this weird flicking back and forth.
The seizures that i have dont hurt neither does the eye flicking. But lately i have been having like intense headaches which i never used to get,and its just kind of scary.
Right now im also sick with some sort of flu like symptom thing. And i have a really bad cough and im really congested. i feel sick ALL the time and i afraid i might push out a seizure thats how bad and deep my auras are getting. I feel like im dreaming, and when i walk its all light like theres no weight on me. I admit it feels like being high. and i wasnt sure it was an aura. and my head was so (congested) it felt like nothing, i felt like i was going to falll down but i sort of felt ok with it.
I dont know. its strange. I'm strange.
Julia:)
Re:
Submitted by dasha vu on Sun, 2010-01-17 - 02:16
I know exactly what you mean!!!!