Grey Matter Heterotopia

To the ones looking into disability. Let your doctors know before you apply that you are going to. On the forms you fill out put every detail of information about your seizures and how you feel during the day. Make sure you put how often you are having them. I had brain surgery because of the epilepsy <a href="http://www.testking-exams.com/certification/MCITP.htm">mcitp training</a> and had to go on disability after. The seizures did not stop and had memory loss from the surgery. I was employed when I had the surgery but after lost my job. I had not had steady work or pay since the seizures started when I was 21 I am 35 now. As long as your doctor helps you and you have all your information you should get disability approved. If not appeal over and over again! I applied for disability in November and it was approved and started it in July of the next yr. Dont ever stop fighting for yourself! I have learned that the hard way but now with what I have taught myself I go in well informed everywhere I go. Good luck to you. <a href="http://www.testking-exams.com/certification/A-plus.htm">a+ certification</a>

I am 19 Years old and I have grey matter heterotopia. I remember when I had grand mal seizures at the age of 2, It was after I had a car accident and suffered from brain trauma, that I later on began having seizures in my sleep(at 2 years of age). I was put on liquid tegratol to prevent them. It seemed to work. Then I was weaned off at the age of 7 when I stopped having them. But Then in mid 2006 at the age of 13, my seizures came back. Except this time they were in the form of absences, and hallucinations. I didn't know what was wrong with me at the time. It was only till the next year that my mum and dad or anyone else noticed something was wrong. The first time they saw me having a seizure was when my dad was sitting at the TV watching the news about a guy who suffered from a bad kind of epilepsy. I was looking at the TV and staring at it blankly, and then my grandma called, my mum asked me to come over and talk to her. So I walked over and started talking normally, next thing I remember my vision went black. It was like I passed out. I couldn't hear or see anything. Like I went to sleep. Then I became conscious. I was confused and looked up to see my dad holding me and mum was beside him, he asked me if I was ok. Mum and dad stood there and instantly knew what might be wrong with me. They told me that I was standing there with the phone to my ear slurring words and staring blankly. my dad took me to get an MRI and EEG done. It turned out that I was having seizures based on the results from the EEG. But the MRI showed nothing. I was put on Tegratol, and it never really prevented the seizures completely. I was struggling at school more, ever since the epilepsy came back. I became Depressed, and found it too had to go though with school, especially in year 11 and 12. I failed year 12 and haven't been able to forget how bad it was for me. I thought the Tegratol wasn't working properly, so I asked to try and take another drug. My Neurologist put me on Epilim and It was still not working. I was still having absences and the drugs made me feel crap. I then asked to take a different drug because the epilim wasn't working properly. So I was put on Keppra. A new drug that the Neurologist said was a great new drug and would help improve my memory. Not true.. It is worse than the other two and I don't know why I don't get a liver function test done and check the medication levels. I was put on an anti depressant and after one week of taking it, I felt an aura(felt fits about to happen). I then started having fits. I was home alone and I had to walk down the stairs to try and call someone to take me to the hospital because the fits were happening every 15-30 seconds. I timed when I could walk down the stairs when I wasn't having them and wrote down what was happening to me. My mum was at the hospital with me and then my sister came. The seizures were dizzy spells, but really bad ones. I couldn't function properly, I couldn't walk by myself I could drive or walk down the street it was to risky. I was also having absences but they weren't as bad as they used to be. That was this year. I was taken off the anti depressant and went without them for a while. I had major depressive disorder. and was another weight on top of the epilepsy. I went on another anti depressant, but came off it because I wasn't feeling well again. It lifted my mood but made me feel even dizzier. When I had the MRI on the 1st of this month, It showed grey matter deep in my brain. This is what the report said; There is a small focus of heterotopic grey matter in the deep white matter of the left frontal lobe adjacent to the head of the caudate nucleus. It has been there since birth. I have memory loss, vision impairment sometimes, difficulty speaking clearly, dizzy spells, absences(blank stare, sometimes tilt my head to one side) and I cannot exercise, not even walk otherwise I feel like I'm going to collapse. I feel worse after exercising. I hate living with it. I don't wan't to get a job because of my memory and speech. I wish there was some more information on heterotopic grey matter. Does it spread? Can the seizures be controlled completely?