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Grey Matter Heterotopia

Sat, 01/30/2010 - 19:28
I am 35 and recently found that I have grey matter heterotopia. I am currently on seizure meds that have made the seizures less harsh but I still get them. I have memory loss, confusion, dizzy spells (head-rushes), body numbness, tingling, vision impairment at times, loss of coordination and difficulty speaking clearly. Although I can live with these problems I would like to know other people with this disorder and maybe what they have done for treatment.

Comments

Re: Grey Matter Heterotopia

Submitted by brittnyh on Tue, 2010-02-02 - 10:50

Hi Nic,

Do you have anything else besides the seizures...numbness, tingling, deja-vu, dizziness, slurred speech, confusion, loss of coordination or what exactly are your seizures like? What about memory loss?

Hi Nic,

Do you have anything else besides the seizures...numbness, tingling, deja-vu, dizziness, slurred speech, confusion, loss of coordination or what exactly are your seizures like? What about memory loss?

Re: Grey Matter Heterotopia

Submitted by Nic_nack on Tue, 2010-02-02 - 20:10
One of my seizures is like a mini stroke, where my left hand and leg will got dead, and sometimes it 'pounds'. It can last from seconds, upto about 15 minutes. The other seizure, is a huge panic attack. Ill suddenly get a fright for no reason, and my eyes will start darting around the room. Ill hear people talking to me, but I wont register what they are saying. It usually only lasts about 30 seconds to a minute, but ive had one which lasted eleven minutes before. I also hav a really bad memory, which is REALLY annoying!!

Re: Grey Matter Heterotopia

Submitted by reillymom2boys on Tue, 2010-02-02 - 23:07

Hey nic nack, thank you so so much for your insight.  My son has "episodes" as I call them - but they are very short.  It's usually when he gets anxious, so it leads me to believe it's like your panic attack. 

 When you talk about your bad memory, is it short term memory or long-term?  Also, if you don't mind answering this type of question, what age range are you?

 Thanks

Hey nic nack, thank you so so much for your insight.  My son has "episodes" as I call them - but they are very short.  It's usually when he gets anxious, so it leads me to believe it's like your panic attack. 

 When you talk about your bad memory, is it short term memory or long-term?  Also, if you don't mind answering this type of question, what age range are you?

 Thanks

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