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Ecstatic Seizures

Thu, 08/27/2009 - 07:32

 Hi

Has anyone experienced "ecstatic" seizures?  I've had a series of them recently, and they are amazing: totally outside the range of normal experience and by far the best experiences of my life!  I'm not religious or "spiritual" but recognise that they could be construed by others as deep and meaningful life changing events...evidence of the "divine" as opposed to neurological events. 

I've been told by my neurologist they are very rare and I've not been able to find out much about them/share experiences. 

Victoria

Hello all,  I'm adding this comment just over a month after the original post having realised that the thread is now incredibly confusing and there are some misunderstandings following what seem to be random postings.   You may want to follow the date order of the posts before making comments or coming to conclusions.   

Regards,

Victoria

Comments

Re: Ecstatic Seizures

Submitted by victoria.w on Sun, 2009-10-18 - 19:01

Hi Zealot,

I'm British, well Welsh actually and I hale from a small valley town, a former mining community.  I've lived in England (mainly London) since I was 18 when I traded the valleys for university.  I didn't look back!  I now live on the South Coast, two minutes from the sea and although I travel 30 mins to work each day, my office there is a minute from the sea (hence the seagulls)...more about them later following a comment on another post! There may be some spelling differences in my posts, and I still can't get used to your date order.  For the first few weeks I thought lol meant lots of love:  I know you Americans are more in touch with your emotions than us Brits...  I have since realised and had confirmation that you use lol to mean laugh out loud.  Perhaps youngsters use it the same way over here too, and I'm showing my age!  Victoria

Hi Zealot,

I'm British, well Welsh actually and I hale from a small valley town, a former mining community.  I've lived in England (mainly London) since I was 18 when I traded the valleys for university.  I didn't look back!  I now live on the South Coast, two minutes from the sea and although I travel 30 mins to work each day, my office there is a minute from the sea (hence the seagulls)...more about them later following a comment on another post! There may be some spelling differences in my posts, and I still can't get used to your date order.  For the first few weeks I thought lol meant lots of love:  I know you Americans are more in touch with your emotions than us Brits...  I have since realised and had confirmation that you use lol to mean laugh out loud.  Perhaps youngsters use it the same way over here too, and I'm showing my age!  Victoria

Re: Ecstatic Seizures

Submitted by 3Hours2Live on Tue, 2009-10-20 - 06:36

Hi Victoria,

I spent most of my childhood in an abandoned coal mining community.  Some of the old mines were still on fire, belching fascinating fumes, and great clouds of steam in the winter, though I always found the isolated thick brick-walled dynamite stores the most fascinating with it's coolnest in the hottest summers, warmth in the coldest winters, and a foot-thick iron vault door, begging for disaster, but then, youthful stupidity is also a blessing.  I can't read the forum postings on the last page anymore, but some of them copy to a word editor in a halfway readable format.  Maybe the website is blocking/closing comments to the forum now, then maybe it will go to four readable pages soon.  I hope so!! Lots of Love,

Tadzio   

Hi Victoria,

I spent most of my childhood in an abandoned coal mining community.  Some of the old mines were still on fire, belching fascinating fumes, and great clouds of steam in the winter, though I always found the isolated thick brick-walled dynamite stores the most fascinating with it's coolnest in the hottest summers, warmth in the coldest winters, and a foot-thick iron vault door, begging for disaster, but then, youthful stupidity is also a blessing.  I can't read the forum postings on the last page anymore, but some of them copy to a word editor in a halfway readable format.  Maybe the website is blocking/closing comments to the forum now, then maybe it will go to four readable pages soon.  I hope so!! Lots of Love,

Tadzio   

Re: Ecstatic Seizures

Submitted by victoria.w on Tue, 2009-10-20 - 18:57

Hi Tadzio

We share alot in common!  I'm going to reply to your other message - the Kafkaesque medical saga but it may take a day or so.  Do you have the right to change doctors or ask for a second opinion?  Can you push for a quicker referral?  Are there any patient advocacy groups that offer support and help you access better medical care or is it only wealthy patients/insured patients that can exercise choice?  

On a different note - I've recently discovered if you use the view print option without being connected to a printer the view is much better and the posts readable, lots of love,

Victoria

Hi Tadzio

We share alot in common!  I'm going to reply to your other message - the Kafkaesque medical saga but it may take a day or so.  Do you have the right to change doctors or ask for a second opinion?  Can you push for a quicker referral?  Are there any patient advocacy groups that offer support and help you access better medical care or is it only wealthy patients/insured patients that can exercise choice?  

On a different note - I've recently discovered if you use the view print option without being connected to a printer the view is much better and the posts readable, lots of love,

Victoria

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