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Ecstatic Seizures

Thu, 08/27/2009 - 07:32

 Hi

Has anyone experienced "ecstatic" seizures?  I've had a series of them recently, and they are amazing: totally outside the range of normal experience and by far the best experiences of my life!  I'm not religious or "spiritual" but recognise that they could be construed by others as deep and meaningful life changing events...evidence of the "divine" as opposed to neurological events. 

I've been told by my neurologist they are very rare and I've not been able to find out much about them/share experiences. 

Victoria

Hello all,  I'm adding this comment just over a month after the original post having realised that the thread is now incredibly confusing and there are some misunderstandings following what seem to be random postings.   You may want to follow the date order of the posts before making comments or coming to conclusions.   

Regards,

Victoria

Comments

Re: Ecstatic Seizures

Submitted by wichitarick1 on Sun, 2009-10-11 - 17:33

peace R.C.

  Hello

  YES i,M "FINE"  I knew I was jabbering to much as it was.

  All I meant to say in this thread was my experience with hallucugens and the similarities to the outer mind ,wow far out feelings so many are describing. 

  As for me I,m a little better it has been a LONNNNNGGGG week 

  I,m not alone thanks, I,m a single father of an exceptionally bright 11 yr old girl  that has witnessed a few dozen of these szs now .

 She is under strict orders NOT to call an ambulance and understands when to do so .

  I,m having long gmals in my sleep now a days 1 a week miniumum .most last 30 min. 

  Me and my d.d got h1 n1, the first hrs I got this the fever kicked in and it was clear I was not O.K.  I feel the fever was a trigger and set 2 maybe 3 gmals in one at 2a.m another at 6 a.m both 30 min. long, shew well that caused 9,10 hrs sleep then hunger confusion etc etc. a cpl days of pure hell .

  I have never been unable to care for myself in my life I,m only 46, very scary stuff.

  I,m rambling because I,m so out of focus.  I fully understand what you said about a "STOIC" attitude that is not where I,m at at all. lol  I,m on ssdi now and is actually how I ended up here from worrying about other folks problems andlet my self slip in a hole ?

  I was placed on ssdi in less that 90 days on first try ? so I I GUESS I was sick lol huh? that has been a real duh moment for me . I have been telling others for yrs now , it takes 8 full days to recover from "one" of these szs.  so three or four a month and with some of todays laws I can be liable if I hurt someone ? 

I did not mean to imply I read all this material at once lol lol 

 oh no about 4 yrs time but mainly over one summer when I broke my foot and was imobile . 

  Oh yes and to some degree you are right about concussions Just my life in general has led up to a lot of this .

   I now understand I have had "auras" all my life and possibly starting from being hit by a car as a 5 yr. old? 

   But that dejavu auras that we are talking about here (on topic) lol  I have experienced all of my life .

   To varying degrees some good,some GREAT, and different times bad.  I posted here to just simply say what I said about the enlightening feelings from dope and the ones you are talking about .

  Can be a lot of fun I suppose . I see all of this completly as just a bunch of loose receptors and brain cells .

  I appreciate the concern  I do feel a little better today very weak , 5th day, but yes here is proof the fever and seizures DO NOT go together. lol.  RIck 

 disclaimer.....I havelearned to type 8 times from memory loss some days I get it some I don,t . R.C.

peace R.C.

  Hello

  YES i,M "FINE"  I knew I was jabbering to much as it was.

  All I meant to say in this thread was my experience with hallucugens and the similarities to the outer mind ,wow far out feelings so many are describing. 

  As for me I,m a little better it has been a LONNNNNGGGG week 

  I,m not alone thanks, I,m a single father of an exceptionally bright 11 yr old girl  that has witnessed a few dozen of these szs now .

 She is under strict orders NOT to call an ambulance and understands when to do so .

  I,m having long gmals in my sleep now a days 1 a week miniumum .most last 30 min. 

  Me and my d.d got h1 n1, the first hrs I got this the fever kicked in and it was clear I was not O.K.  I feel the fever was a trigger and set 2 maybe 3 gmals in one at 2a.m another at 6 a.m both 30 min. long, shew well that caused 9,10 hrs sleep then hunger confusion etc etc. a cpl days of pure hell .

  I have never been unable to care for myself in my life I,m only 46, very scary stuff.

  I,m rambling because I,m so out of focus.  I fully understand what you said about a "STOIC" attitude that is not where I,m at at all. lol  I,m on ssdi now and is actually how I ended up here from worrying about other folks problems andlet my self slip in a hole ?

  I was placed on ssdi in less that 90 days on first try ? so I I GUESS I was sick lol huh? that has been a real duh moment for me . I have been telling others for yrs now , it takes 8 full days to recover from "one" of these szs.  so three or four a month and with some of todays laws I can be liable if I hurt someone ? 

I did not mean to imply I read all this material at once lol lol 

 oh no about 4 yrs time but mainly over one summer when I broke my foot and was imobile . 

  Oh yes and to some degree you are right about concussions Just my life in general has led up to a lot of this .

   I now understand I have had "auras" all my life and possibly starting from being hit by a car as a 5 yr. old? 

   But that dejavu auras that we are talking about here (on topic) lol  I have experienced all of my life .

   To varying degrees some good,some GREAT, and different times bad.  I posted here to just simply say what I said about the enlightening feelings from dope and the ones you are talking about .

  Can be a lot of fun I suppose . I see all of this completly as just a bunch of loose receptors and brain cells .

  I appreciate the concern  I do feel a little better today very weak , 5th day, but yes here is proof the fever and seizures DO NOT go together. lol.  RIck 

 disclaimer.....I havelearned to type 8 times from memory loss some days I get it some I don,t . R.C.

Re: Ecstatic Seizures

Submitted by zealot on Sun, 2009-10-11 - 18:52
Rick, What a relief to hear from you. Fever and the brain don't mix. PERIOD. If you didn't have a seizure problem before a fever, you could end up with one after. The brain, being mostly fat (lipids) literally starts to melt. We have a surprising amount in common. Taking care of others instead of myself is how I gained entry to the booby hatch. I also got my SSD within 90 days the first time and on a psych DX. Me disabled? Not. I am now thanks to the people who are supposed to help. I suffered the first head injury I can remember when I was six months old. I had what could be my first ecstatic "aura" at less than one year. I've had myoclonic seizures for as long as I can remember, mostly at night. I've woken up on the floor. I've bitten my tongue in my sleep. I've lost time and found that I was covered with bruises. I never knew what it was. I didn't have a clue until a very good resident told me they were seizures. Then I started reading. I still can't get a DX. You have an extraordinary daughter. Do her a favor and take good care of yourself. Please keep in touch and let us know how you are doing. Zealot

Re: Ecstatic Seizures

Submitted by grlowe126 on Mon, 2010-08-23 - 17:19
Would this count as an ecstatic seizure? I lived next door to Army Navy Country Club as a Georgetown Law student in 2001. I applied to several federal internships in order to beef up my resume, and I woke up one night with a projection of three special air services guys and one Saudi Arabian man who reached over and choked me. My seizures became worse and I was never notified by a federal agency or case officer. I was not hallucinating. I remember the incident being frightening and a waste of someone's life. Is this a seizure? I was also drugged twice with GHB and I think now someone might use it as a defense because I have a noticeable CNS tremor and seizures where I twist and wring my hands. I don't think it should be legal to say we needed to drug her with GHB for her own good, do you? I think they might be trying to make it seem like I am mentally retarded so they are not charged with attempted murder with the GHB thing. I'd like to think the first thing was just a hallucination but it seemed more like harassment. I was unable to finish my JD and my epilepsy never presented a problem nor did my nervous system disorder.

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