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Food-Triggered Siezures
Sun, 05/18/2008 - 14:10Comments
Re: Food-Triggered Siezures
Submitted by TheSmokeMonster on Tue, 2010-07-20 - 05:46
Re: Food-Triggered Siezures
Submitted by tmonwi on Wed, 2009-10-14 - 15:27
I will direct all of you to www.epilepsymom.com
I found this woman's site after I realized and I stress, I , b/c when I talked to a allergiest he told me he's never seen anyone have a seizure due to a food allergy. I disagreed, found evidence on the Internet, told him a list of what I thought my son was allergic to (kept a food diary) told him I didn't want skin tests, only RAST b/c some people won't react for days, as was the case with my son. It could take 2-4 days for a reaction/seizure. Just over the past 3 mos. I have found two other kids who have seizures who allergic to milk. Anyhow, The things I thought my son was allergic to, he was and I got to say, "I told you so!" to his previous allergist as I now have one who worked with me to test for a good range of food, developed a diet to try (allergen free) and my son has been seizure free for nearly 6 months now!
He is on two meds: depakote and Topomax (weaning currently). Previously was on Keppra too, but is off that.
I STRONGLY URGE anyone with seizures to get RAST testing!! There's AGE and AGG tests, do both if you have to. Beg, plee with your Dr., make up symptoms if you have to and DO NOT do the skin tests. They will tell you blood tests aren't as reliable, BULL! Request RAST and even if they tell you it's not an allergy when you get your results back, don't eat that food, for awhile at least.
I got no where relying only on the Dr. I took matters into my own hands and it has paid off...two fold!
Good luck and even if you're not a mom of a child with epilepsy, still visit www.epilepsymoms.com. There's SO much info that I had to realized and find out on my own.
Mom of 2 year old Bauer, SCN1A positive epilepsy
I will direct all of you to www.epilepsymom.com
I found this woman's site after I realized and I stress, I , b/c when I talked to a allergiest he told me he's never seen anyone have a seizure due to a food allergy. I disagreed, found evidence on the Internet, told him a list of what I thought my son was allergic to (kept a food diary) told him I didn't want skin tests, only RAST b/c some people won't react for days, as was the case with my son. It could take 2-4 days for a reaction/seizure. Just over the past 3 mos. I have found two other kids who have seizures who allergic to milk. Anyhow, The things I thought my son was allergic to, he was and I got to say, "I told you so!" to his previous allergist as I now have one who worked with me to test for a good range of food, developed a diet to try (allergen free) and my son has been seizure free for nearly 6 months now!
He is on two meds: depakote and Topomax (weaning currently). Previously was on Keppra too, but is off that.
I STRONGLY URGE anyone with seizures to get RAST testing!! There's AGE and AGG tests, do both if you have to. Beg, plee with your Dr., make up symptoms if you have to and DO NOT do the skin tests. They will tell you blood tests aren't as reliable, BULL! Request RAST and even if they tell you it's not an allergy when you get your results back, don't eat that food, for awhile at least.
I got no where relying only on the Dr. I took matters into my own hands and it has paid off...two fold!
Good luck and even if you're not a mom of a child with epilepsy, still visit www.epilepsymoms.com. There's SO much info that I had to realized and find out on my own.
Mom of 2 year old Bauer, SCN1A positive epilepsy
Re: Food-Triggered Siezures
Submitted by mark_88 on Sun, 2009-10-04 - 23:24
i dont know about anyone else but aspartame triggers mine or sumtimes red food dye