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Ecstatic Seizures

Thu, 08/27/2009 - 07:32

 Hi

Has anyone experienced "ecstatic" seizures?  I've had a series of them recently, and they are amazing: totally outside the range of normal experience and by far the best experiences of my life!  I'm not religious or "spiritual" but recognise that they could be construed by others as deep and meaningful life changing events...evidence of the "divine" as opposed to neurological events. 

I've been told by my neurologist they are very rare and I've not been able to find out much about them/share experiences. 

Victoria

Hello all,  I'm adding this comment just over a month after the original post having realised that the thread is now incredibly confusing and there are some misunderstandings following what seem to be random postings.   You may want to follow the date order of the posts before making comments or coming to conclusions.   

Regards,

Victoria

Comments

Re: Ecstatic Seizures

Submitted by wichitarick1 on Wed, 2011-01-12 - 01:27

peace R.C.   

 Hi not High!

   PSSSSTTT!!!! someones listening! Sorry have had a problem communicating for a while ! I can read it I can relate to it but then the process of re-writing it puts such a strain on my mind (right front) it actually hurts ,twitching, blinking, sweats, REAL pain ?????

 Try telling that one to neuro mmm? I try to write my thoughts down and twitch and float above my chair if I try real hard then? lol 

 Think I will keep some of that a secret for now . 

 Just a note to say PEACE to you all and let you understand that others are out there and do "feel" a lot of the things , I have recently read every word of this post and in all honesty have felt about 75% of it since child hood

 I experience partials now that are 45 sec. to about 2 min long that can best be described as orgasmic ? also a lot of the same feelings a person may get in the millisecond after you are electrocuted ,before it hurts. a lot of these feelings are also the same rush that is addicting from drug use or adrenaline rush .

  I also "feel" a lot of the hyper-sensitive I experience when in postictal phases during recovery from long g-mals would fit into what is being described as "ECSTATIC"

  Just my personal BUMP to say thanks  Rick Wichita Ks.

 "It's not the crazy people you worry about--It's the ones that don't know it" R.C.  

peace R.C.   

 Hi not High!

   PSSSSTTT!!!! someones listening! Sorry have had a problem communicating for a while ! I can read it I can relate to it but then the process of re-writing it puts such a strain on my mind (right front) it actually hurts ,twitching, blinking, sweats, REAL pain ?????

 Try telling that one to neuro mmm? I try to write my thoughts down and twitch and float above my chair if I try real hard then? lol 

 Think I will keep some of that a secret for now . 

 Just a note to say PEACE to you all and let you understand that others are out there and do "feel" a lot of the things , I have recently read every word of this post and in all honesty have felt about 75% of it since child hood

 I experience partials now that are 45 sec. to about 2 min long that can best be described as orgasmic ? also a lot of the same feelings a person may get in the millisecond after you are electrocuted ,before it hurts. a lot of these feelings are also the same rush that is addicting from drug use or adrenaline rush .

  I also "feel" a lot of the hyper-sensitive I experience when in postictal phases during recovery from long g-mals would fit into what is being described as "ECSTATIC"

  Just my personal BUMP to say thanks  Rick Wichita Ks.

 "It's not the crazy people you worry about--It's the ones that don't know it" R.C.  

Re: Ecstatic Seizures

Submitted by victoria.w on Sun, 2009-10-11 - 17:40

Hi Rick,

I share Zealot's concern about your condition and I'm sure many other people on this forum do to.  Have you contacted someone to help?  Let us know.  Follow your instincts...

Victoria

Hi Rick,

I share Zealot's concern about your condition and I'm sure many other people on this forum do to.  Have you contacted someone to help?  Let us know.  Follow your instincts...

Victoria

Re: Ecstatic Seizures

Submitted by zealot on Sat, 2009-10-03 - 20:35
Victoria, When your brain keeps frying itself and you take meds to stop it from frying itself, there's bound to be some fall out. Seizures change our brains and eventually result in permanent damage. The meds can also result in irreversible changes. Do not despair. Physiology is not destiny. I was depressed as hell and having suicidal thoughts because my thyroid levels are too low. I haven't had a thought like that in a long time. I reminded myself that it was my mind and my body playing tricks on me and even though I'm pretty incapacitated, I'm not unhappy and miserable anymore. I've identified the problem, accepted it for what it is. That doesn't mean that I'm not going to try to get my meds fixed, but fighting with the State of New York is not at the top of my "to do" list. M Meds help, but please be very careful. Polypharmacy is dangerous because most MDs don't know what they're doing. I've tried talking basic neurophys and biochem to my MDs and the results were not good. Make sure you ask about titration when starting a new med, cross titration when changing meds, and, this is critical, drug interactions. Go to rxlist.com. You can look up all your meds there and they have the complete prescribing information and patient. Also, go to the "for professionals" part of this site. I was doing a google search and got a link to there and that's how I found this site. Lot's of really good stuff there and some of it should be comprehensible to an educated lay person. Also, be really careful about what you are calling depression. Think carefully about what triggers the suicidal thoughts. You may be able to beat them. Are you feeling guilty and worthless? Or are you anhedonic and avolitional. Just don't feel like doing anything any more. Nothing beings you pleasure anymore. Is your concentration worse than it usually is. Do you wake up early in the morning and can't get back to sleep or would you sleep 24/7 if given the chance. How is your appetite? These answers are critical and if your MD doesn't ask you these questions run, don't walk out of his office. They are critical in making a proper choice of medication. An SSRI will be useless if you are suffering from anhedonia, in fact it will make you feel worse. Bupropion and a couple of newer ones are weak DAT inhibitors, but they are also NET inhibitors and a substantial seizure risk. I take Modafinil, which is very expensive and I soon won't be able to afford it. Armodafinil is even better. If you don't live in the US, Tianeptine (Stablon, I think, from Labatoire Servier [spelling?]) is an SSRE! This will elevate your DA levels and take care of the anhedonia and lack of volition. If it didn't have corn starch in it (allergy), I would be ordering it from Canada for myself! I'm also thinking about Memantadine for myself. That's the one I told Johnny about (if he was able to find the post). Trileptal can cause depression. It is the med of choice for treating CPs, but as we know, everything has its price. If you have the worthless, guilty kind of depression, well, you're in luck. Serotonin's the ticket and there are lots of SSRIs to choose from. If you're also having concentrating, there are several SNRIs on the market. I don't remember how much of a seizure risk there is. Generally, anything that raises NE levels increase seizure risk. . If you've got the whole shebang, that's tricky. Transdermal Selegiline, the EMSAM patch, is a very good med, but MAOIs are tricky. It is contraindicated with trileptal because it has three rings just like the tricyclics. That is bogus. The dosing is tricky because Oxcarbazepine raises the serum concentrations of selegiline by up to double. I used to use half a patch. This is also a No No, but when your MD is a hotshot research scientist, he makes the rules. It works very well; I just can't tolerate that much SE. It also has q gazillion med interactions. Because of the interaction with the Trileptal, you'd have to be careful with your diet, but that's a small price to pay for no more misery. Do not under any circumstances take an atypical. I don't have a medical license, but from my own disasters, Johnny's disaster, and a plethora of others I have witnessed, it just seems like a bad idea. I hope some of this helps. I am not an MD, but I started studying medicine on my own when I was 15. You have to make up your mind. Educate yourself, advocate for yourself, and remember you can always change doctors. And especially remember that meds are not the whole answer. How you cope with mind fucks this stuff gives us is ultimately the key to your survival. Best of luck, Zealot

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