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Ecstatic Seizures

Thu, 08/27/2009 - 07:32
Topic: Living With Epilepsy - Adults

 Hi

Has anyone experienced "ecstatic" seizures?  I've had a series of them recently, and they are amazing: totally outside the range of normal experience and by far the best experiences of my life!  I'm not religious or "spiritual" but recognise that they could be construed by others as deep and meaningful life changing events...evidence of the "divine" as opposed to neurological events. 

I've been told by my neurologist they are very rare and I've not been able to find out much about them/share experiences. 

Victoria

Hello all,  I'm adding this comment just over a month after the original post having realised that the thread is now incredibly confusing and there are some misunderstandings following what seem to be random postings.   You may want to follow the date order of the posts before making comments or coming to conclusions.   

Regards,

Victoria

Comments

Re: Ecstatic Seizures

Submitted by victoria.w on Thu, 2009-10-01 - 17:27

Hi Zealot,  great to see your spate of postings - I agree the thread is all over the place. This is a shame.  I've responded to the person who has taken offence.  Perhaps I'll post something at the top to suggest that people take time to read the posts in date order before commenting or passing judgement.  Are you feeling any better now? 

Hi Johnny, sorry to hear about your recent problems with the medication.  Nightmarish.  I think you're very wise to give the latest ones a  miss. 

Hi Tadzio - you OK?  I worry a bit when you go quiet...

Victoria

Hi Zealot,  great to see your spate of postings - I agree the thread is all over the place. This is a shame.  I've responded to the person who has taken offence.  Perhaps I'll post something at the top to suggest that people take time to read the posts in date order before commenting or passing judgement.  Are you feeling any better now? 

Hi Johnny, sorry to hear about your recent problems with the medication.  Nightmarish.  I think you're very wise to give the latest ones a  miss. 

Hi Tadzio - you OK?  I worry a bit when you go quiet...

Victoria

Re: Ecstatic Seizures

Submitted by 3Hours2Live on Fri, 2009-10-02 - 04:39
Hi Victoria, I'm OK for me. I'm trying for a new MD to get more intermittent regular Keppra to stop tonic-clonics when I get a good warning. The width's about to disappear!! I thought I better mention here too about being very careful and concerned over any major change in "regular" seizure types and patterns. Many physical incidents, compounded with epilepsy, can result in great change in seizure characteristics/patterns/incidents, and can be a signal of great alarm, easily missed because of epilepsy always taking the blame, especially for transitory events. About 3 years ago, with one of my tonic-clonic seizure migraines, I waited way longer than normal for the severe migraine to leave, until after another cluster of seizures hit about a month later, and still, my migraine continued, until both sides of my body started to go numb. Then emergency was called, and ER said I had about 3 hours to live without emergency surgery for a frontal subdural hematoma. Tadzio

Re: Ecstatic Seizures

Submitted by victoria.w on Fri, 2009-10-02 - 17:24
Ah - I did wonder about the 3 hours to live tag and suspected it was based on a real event which is why  I like to check.  I also wanted to say all your posts have been really helpful even if it's taken me time to fathom out what some of them mean.   Oh just a thought, but correct me if I respond to someone and get it wrong - you're much better on the technical stuff.  I am seeking help re: altered seizures and depression/suicidal thoughts.  I've already met with my neurologist (who is decent and helpful) and he wants to work jointly with a close colleague to come up with a plan of action.  I am sussed enough now, to realise when I need to ask for help, although my natural inclination thus far has been to go it alone as much as possible.  I don't really like medical professionals having too much input into my life and it seems as if you feel the same way.  However, if they display compassion and understanding, it's easier to overcome my medic phobia.  Actually it's not a phobia as it's based on previous negative experiences and therefore not irrational...but I'm not sure what the correct term is.  Whatever it's called I know that far too people with epilepsy end up feeling the same way which is rather sad.  I hope you find the right MD.  Victoria.

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