How exactly do aura's feel

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How exactly do aura's feel? Can you have aura's and not have an actual seizure? I think I had some this weekend. I went off into like a "spacy" feeling. Like I was tingling and I couldn't make myself snap out of it for a few seconds. I have had a headache since I has these feelings. I have had E a long time, but I am new to all the terminology and so forth. Thanks.

Comments

Re: Deja vu feeling

Submitted by bjr on Fri, 2008-10-24 - 21:04

BJR - having it is certanly strange. the first thing i do is put somthing in my mouth, sit down and hope i don't bite my tounge off. once i had one i fell over, wiped out a rocking chair, broke my glasses and put a scar under my eye it looks just like a tattoo. people sometimes look at me thinking i killed someone. what a bummer.

Re: your description of Auras

Submitted by cateh on Tue, 2008-11-04 - 06:10

Graham, this is brilliant, I am going to forward it to my neurologist and GP, because I have had so much trouble describing my auras to them. I was having them for 3 years before I had my first fit and nobody could diagnose them, the closest we got was post natal psychosis at first and I thought I was losing my mind and was so scared.

My auras scare me rigid, I go cold with fear and find myself looking at people next to me on a train or in a work meeting and think for a split second - "Who are you? Where the h*** am I?" and then think something lawful is going to happen - I know what you mean about the black hole. Also I can't believe that nobody notices what I am going through - if I look half as scared as I feel it should be obvious but apparently not. The ridiculous memory thing is so true, I hear sounds in my head like a section of dialogue from a TV programme, or have deja vu feelings - somebody putting an item of clothing back on a rack on a shop - trivial bizarre memories.

They also happen in my sleep when I am particularly bad and I wake up with a mouth full of saliva and feeling sick. Afterwards my stomach has filled with acid because of the fear and I have stomach ache and headache for hours afterwards. Sleep is the only way to recover.

I am on Epilim 500 for my fits (which are only in my sleep) and these auras don't occur when I am super diligent about taking them but if I am under great stress and forget a tablet or two they come flying in from nowhere.

Interesting to hear you had encephalitis that started your fits - my auras started at 37 soon after giving birth to my second child who was a challenging baby and I was under a lot of stress at home and at work - then my first fit happened out of the blue at 40 years old after a temperature and tummy bug.

I would love to understand more about why I develped this so late in life and also whether anybody feels like this.. It doesn't always follow that I end up having a fit.

Graham, this is brilliant, I am going to forward it to my neurologist and GP, because I have had so much trouble describing my auras to them. I was having them for 3 years before I had my first fit and nobody could diagnose them, the closest we got was post natal psychosis at first and I thought I was losing my mind and was so scared.  My auras scare me rigid, I go cold with fear and find myself looking at people next to me on a train or in a work meeting and think for a split second - "Who are you? Where the h*** am I?" and then think something lawful is going to happen - I know what you mean about the black hole. Also I can't believe that nobody notices what I am going through - if I look half as scared as I feel it should be obvious but apparently not. The ridiculous memory thing is so true, I hear sounds in my head like a section of dialogue from a TV programme, or have deja vu feelings -  somebody putting an item of clothing back on a rack on a shop - trivial bizarre memories.   They also happen in my sleep when I am particularly bad and I wake up with a mouth full of saliva and feeling sick. Afterwards my stomach has filled with acid because of the fear and I have stomach ache and headache for hours afterwards. Sleep is the only way to recover. I am on Epilim 500 for my fits (which are only in my sleep) and these auras don't occur when I am super diligent about taking them but if I am under great stress and forget a tablet or two they come flying in from nowhere. Interesting to hear you had encephalitis that started your fits - my auras started at 37 soon after giving birth to my second child who was a challenging baby and I was under a lot of stress at home and at work - then my first fit happened out of the blue at 40 years old after a temperature and tummy bug.  I would love to understand more about why I develped this so late in life and also whether anybody feels like this..  It doesn't always follow that I end up having a fit.  

Graham, this is brilliant, I am going to forward it to my neurologist and GP, because I have had so much trouble describing my auras to them. I was having them for 3 years before I had my first fit and nobody could diagnose them, the closest we got was post natal psychosis at first and I thought I was losing my mind and was so scared.

My auras scare me rigid, I go cold with fear and find myself looking at people next to me on a train or in a work meeting and think for a split second - "Who are you? Where the h*** am I?" and then think something lawful is going to happen - I know what you mean about the black hole. Also I can't believe that nobody notices what I am going through - if I look half as scared as I feel it should be obvious but apparently not. The ridiculous memory thing is so true, I hear sounds in my head like a section of dialogue from a TV programme, or have deja vu feelings - somebody putting an item of clothing back on a rack on a shop - trivial bizarre memories.

They also happen in my sleep when I am particularly bad and I wake up with a mouth full of saliva and feeling sick. Afterwards my stomach has filled with acid because of the fear and I have stomach ache and headache for hours afterwards. Sleep is the only way to recover.

I am on Epilim 500 for my fits (which are only in my sleep) and these auras don't occur when I am super diligent about taking them but if I am under great stress and forget a tablet or two they come flying in from nowhere.

Interesting to hear you had encephalitis that started your fits - my auras started at 37 soon after giving birth to my second child who was a challenging baby and I was under a lot of stress at home and at work - then my first fit happened out of the blue at 40 years old after a temperature and tummy bug.

I would love to understand more about why I develped this so late in life and also whether anybody feels like this.. It doesn't always follow that I end up having a fit.

Re: your description of Auras

Submitted by gjopric on Mon, 2008-11-10 - 10:21

I had viral encephalitis when I was 4 years old. During my childhood, I would always have what I would describe as "weird dreams" that would be a deja vu like sensation. It included the weird tastes and smells. I could usually hear myself talking, saying this sentence over and over and while hearing that would produce a strong euphoric feeling, like all my pleasure receptors firing at once. I could never remember what it was I was saying but while having these, what I now know as auras, it always seemed to be the same thing I was saying before. I can relate to what was described in another post as that black hole you see and if you enter it your sucked in. When I feel the aura coming on, because I strangely enjoyed the sensation, I would try to focus on it and make sure i had one (similar to the black hole analogy). They ran all kinds of tests on me but never while they were occurring so not much progress was made. It wasn't until that I became an adult that the auras developed into seizures. Before I knew I was having them, I would wonder why I would wake up so exhausted when I had a good night sleep. I would also wonder why my muscles were all sore and later wondered why my tongue was sore and there was blood on my pillow. It didn't take long after that that my wife witnessed one and we took action. My neurologist prescribed me with Trileptal and that drug pretty much eliminated the seizures. Now I don't have insurance and cannot afford the medication. I have auras from time to time. And I have a few seizures a year. I have had pretty good luck with controlling on them on my own. Usually mine are triggered when my immune system is out of whack, lack of sleep, or taking of any drugs or alcohol. I have learned that I cannot take any cold medication with pseudoephedrine, several different pain medications, or even drinking alcohol can put my body off balance enough to trigger them. But, I still feel as though I should be back on the medication because I don't know for sure completely how they are triggered.

How exactly do aura's feel

Comments

Re: Deja vu feeling

Submitted by bjr on Fri, 2008-10-24 - 21:04

Re: your description of Auras

Submitted by cateh on Tue, 2008-11-04 - 06:10

Re: your description of Auras

Submitted by gjopric on Mon, 2008-11-10 - 10:21

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