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I Have Epilepsy
Sat, 07/26/2008 - 20:11Topic: Medication Issues
Enough said.
Comments
Re: I Have Epilepsy and I Hate My Life...
Submitted by jenlongoria26 on Sat, 2008-09-13 - 16:43
I am 29 years old and was just recently diagnosed with Epilepsy in Jan. of this year (2008)(First Grand mal on Jan 26 and 2 more following that one, but have not had a grand mal in a little over 5 mos., just the auras.), and right now I do hate it because they can't seem to get my meds straight. I have been through almost all of the possible ones available right now. I have all the major side effects of each one. If they were tolerable I would try really hard to manage, but I can't live like this. I have two children ages 7 and 9. I do work full time. It takes everything I have just to get out of bed every morning and when I get home I get right back in it. Thank God for my husband and his understanding and patience, but I don't know how much longer any of them will be able to take this either. I feel like I am becoming a hermit. I don't go anywhere but work and my daughters soccer games. I was never the type of person to lay around. I was always on the go. The doctor has recently began talking about surgery but they are not exactly sure where the seizures are coming from. They just said they have a pretty good idea. They said I have slowing of brain activity in the right hemisphere of my brain and my eeg also read abnormal in my temporal lobes, I believe in my left side. This is all so confusing. Has anyone else had so many problems with meds???
Re: I Have Epilepsy and I Hate My Life...
Submitted by tenacious on Sat, 2008-09-20 - 01:46
Jen, I live in fear everyday,and anger too because my mother never told me about the epilepsy in her family until she was on her death bed. I would have never had a kid if I had known. My whole life I never felt right, but, my first diagnosed seizure wasn't 'til I was 47. Only other people with seizures and the fear of seizures will ever understand our plight. I want to find a doctor who has seizures, he or she would be the best doctor to have. It seems all meds make you feel like crap, my best days from side affects are with plenty of sleep, exercise and learn bio-feedback.
Re: I Have Epilepsy and I Hate My Life...
Submitted by atenas on Wed, 2008-08-27 - 14:54
I was diagnosed with epilepsy at age 20. It was the worst thing in the world at the time because my family and friends could not understand what I was going through; I felt completely alone. It wasn't until I started learning about epilepsy and how I can still live life the same way as I always had, I just have to be careful. I'm still able to scuba dive, play sports, among other things, but I know what my limitations are. Don't close yourself off because you have epilepsy. Good luck!