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I Have Epilepsy

Sat, 07/26/2008 - 20:11
Topic: Medication Issues
Enough said.

Comments

Re: I Have Epilepsy and I Hate My Life...

Submitted by banffgirl on Tue, 2008-08-19 - 23:38

BRITT,

OH SWEETIE, YOU ARE NO LESS INTELLEGENT JUST BECAUSE YOU HAVE SEIZURES. YOUR FRIENDS MAY NOT UNDERSTAND BUT I AM SURE THEY STILL CARE FOR YOU JUST BECAUSE YOU ARE YOU. WE ARE HERE FOR YOU ANY TIME YOU NEED US. IF YOU JUST NEED TO TALK, GO TO CHAT. THERE IS USUALLY SOME GREAT PEOPLE THERE AT ANYTIME TO TALK TO ABOUT THINGS. WRITE A BLOG TO BLOW OFF STEAM. WE  READ THEM AND THERE ARE PEOPLE THAT WILL GIVE YOU ADVISE IF YOU WANT OR GIVE YOU WORDS OF INCOURAGEMENT.

JUST BECAUSE YOU HAVE HAD A SEIZURE AGAIN, DOESNT MEAN YOUR DOCTOR WONT GET THEM UNDER CONTROL AGAIN. HAVE YOU ALREADY GONE TO YOUR NEUROLOGIST TO HAVE YOUR MEDS ADJUSTED? HAVE YOU TALKED TO YOUR DOCTOR ABOUT HOW YOU FEEL WHEN IT COMES TO YOUR FEAR OF HAVING ANOTHER SEIZURE? HE IS THE ONE WHO CAN PUT YOUR MIND AT EASE ON THIS NOTE. 

I KNOW IT DOESNT SEEM LIKE IT RIGHT NOW, BUT WE ARE ACTUALLY PRETTY LUCKY. WE CAN WALK, WE CAN ENJOY LOOKING AT THE BEAUTY THE WORLD HAS TO OFFER, WE CAN ENJOY A GREAT MEAL WITH OUR FAMILY AND FRIENDS, WE HAVE A EDUCATION, WE HAVE ROOFS OVER OUR HEADS, FOOD IN OUR STOMACHES AND CLEAN WATER TO DRINK. AND BELIEVE IT OR NOT, WE DO HAVE OUR HEALTH, WE ARENT SICK, WE JUST HAPPEN TO HAVE EPILEPSY. GOOD LUCK HUN, THINGS WILL START LOOKING UP FOR YOU.

I TYPE IN CAPS FOR VISUALY IMPAIRED

GOD BLESS,

BANFFGIRL

LIFE IS FRAGILE, HANDLE WITH CARE.

BRITT,

OH SWEETIE, YOU ARE NO LESS INTELLEGENT JUST BECAUSE YOU HAVE SEIZURES. YOUR FRIENDS MAY NOT UNDERSTAND BUT I AM SURE THEY STILL CARE FOR YOU JUST BECAUSE YOU ARE YOU. WE ARE HERE FOR YOU ANY TIME YOU NEED US. IF YOU JUST NEED TO TALK, GO TO CHAT. THERE IS USUALLY SOME GREAT PEOPLE THERE AT ANYTIME TO TALK TO ABOUT THINGS. WRITE A BLOG TO BLOW OFF STEAM. WE  READ THEM AND THERE ARE PEOPLE THAT WILL GIVE YOU ADVISE IF YOU WANT OR GIVE YOU WORDS OF INCOURAGEMENT.

JUST BECAUSE YOU HAVE HAD A SEIZURE AGAIN, DOESNT MEAN YOUR DOCTOR WONT GET THEM UNDER CONTROL AGAIN. HAVE YOU ALREADY GONE TO YOUR NEUROLOGIST TO HAVE YOUR MEDS ADJUSTED? HAVE YOU TALKED TO YOUR DOCTOR ABOUT HOW YOU FEEL WHEN IT COMES TO YOUR FEAR OF HAVING ANOTHER SEIZURE? HE IS THE ONE WHO CAN PUT YOUR MIND AT EASE ON THIS NOTE. 

I KNOW IT DOESNT SEEM LIKE IT RIGHT NOW, BUT WE ARE ACTUALLY PRETTY LUCKY. WE CAN WALK, WE CAN ENJOY LOOKING AT THE BEAUTY THE WORLD HAS TO OFFER, WE CAN ENJOY A GREAT MEAL WITH OUR FAMILY AND FRIENDS, WE HAVE A EDUCATION, WE HAVE ROOFS OVER OUR HEADS, FOOD IN OUR STOMACHES AND CLEAN WATER TO DRINK. AND BELIEVE IT OR NOT, WE DO HAVE OUR HEALTH, WE ARENT SICK, WE JUST HAPPEN TO HAVE EPILEPSY. GOOD LUCK HUN, THINGS WILL START LOOKING UP FOR YOU.

I TYPE IN CAPS FOR VISUALY IMPAIRED

GOD BLESS,

BANFFGIRL

LIFE IS FRAGILE, HANDLE WITH CARE.

Re: I Have Epilepsy and I Hate My Life...

Submitted by Texas_med on Wed, 2008-08-20 - 00:47
I completely understand where you're coming from. I have had seizures since I was 6 months old (I am now 22). One main thing I'm sure you've already heard so many times is "NEVER GIVE UP." I actually had to defy my parents since they were so ready to give up when my neurologist that I had been under the care of for 13 years had been unsuccessful in getting my seizures under control. I wound up ignoring them telling me, "there is no way to get the seizures under control or it would have already happened." I can say, parents can be the biggest helpers or the biggest hurt as well.  I see it happen both ways all the time in the hospital I work at in the neurology department. I actually wound up going through three more neurologists until one finally looked at my medical records one time and immediately reffered me to a university-based hospital that he knew could handle my seizures.  They have actually been so successful and have brought my seizures down from an average of anywhere from 20-100 per month to an average of 1 every six months. They were actually even able to find the fibrous tissue on my left temporal lobe that is causing my seizures. I had had 5 EEG's and at least 4 MRI's and CT scans performed on me that were unsuccessful in finding the fibrous tissue. The main things I tell my patients with epilepsy is "never give up" and "if you ever feel like you are being ignored in any way by a neurologist, find a new one." If it comes down to it, try and find a university-based hospital that has a neurology unit since some research we did while I was in College getting my Bachelor's degree in Nursing figured out that they are usually the best prepared for specialty areas like neurology. If you have any questions about the seizures or treatment, just e-mail me at shawn@tcvfd.org and I'll help you any way I can. Just never give up.  

Re: I Have Epilepsy and I Hate My Life...

Submitted by cranberrygirl on Fri, 2008-08-22 - 11:40

Hi 1never,

Epilepsy is not the end of the world, it's just the start of a new one. Yeah it sucks at times, but like one of the other posters mentioned, sometimes a sunset can remind you of how wonderful life can be.

Cran

Hi 1never,

Epilepsy is not the end of the world, it's just the start of a new one. Yeah it sucks at times, but like one of the other posters mentioned, sometimes a sunset can remind you of how wonderful life can be.

Cran

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