Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

I Have Epilepsy

Sat, 07/26/2008 - 20:11
Enough said.

Comments

Re: I Have Epilepsy and I Hate My Life...

Submitted by budgetwhiz on Tue, 2008-08-19 - 14:55

Oh, Banffgirl, my heart breaks for  you when I read this.  I feel the same way sometimes.  Then, sometimes, I'll see a beautiful sunset, or feel a cool breeze, or hear a bird in the woods, and say "It was worth it just to do that."  I hope you'll have more beautiful moments really really soon.  Hang in there, girl.  I have days exactly like that, but thanks to the miracle of 40mg of Lexapro a day, things have gotten better.

Grey

Oh, Banffgirl, my heart breaks for  you when I read this.  I feel the same way sometimes.  Then, sometimes, I'll see a beautiful sunset, or feel a cool breeze, or hear a bird in the woods, and say "It was worth it just to do that."  I hope you'll have more beautiful moments really really soon.  Hang in there, girl.  I have days exactly like that, but thanks to the miracle of 40mg of Lexapro a day, things have gotten better.

Grey

Re: I Have Epilepsy and I Hate My Life...

Submitted by Raiderchick08 on Tue, 2008-08-19 - 20:44

hello, i have to admit sometimes i hate mine to...i have had 3 miscarraiges, but i have 2 healthy children..however i had to endure alot of pain through those pregnancies....

my seizures are the result of head injuries when i was 11, i am 37 now...i just happened to be somewhat of a tomboy and played rough..i had a hematoma also removed from the top of my head when i was younger...i was told that i would grow out of them, well 26years later i am still having them..high school was very difficult because sometimes i would have seizures in the morning and then go to school with blackeyes from falling into my dresser or my bed posts..i couldn't finish college because every morning afetr i took a shower to go to class i would have one and would wake up having found out someone had to drag my naked body out of the girls shower to put me in my bed....that was embarrassing

i haven't been able to hold a job, i have been on tegratol, dilantin, lexapro, depakote and currently on lamictal, i have experienced severe depression, anxiety and stress....so beleive me i know where you are coming from....i do not feel sorry for myself though...it's irritating to be like this and try to deal with it..i also have myoclonic jerks which feel like seizures to me...

i do however feel like i have had some of my life taken away..i wanted to join the military to give my daughter a better life but of course i couldn't.....so if you hate your life read this...i should continually hate mine..

 

 

hello, i have to admit sometimes i hate mine to...i have had 3 miscarraiges, but i have 2 healthy children..however i had to endure alot of pain through those pregnancies....

my seizures are the result of head injuries when i was 11, i am 37 now...i just happened to be somewhat of a tomboy and played rough..i had a hematoma also removed from the top of my head when i was younger...i was told that i would grow out of them, well 26years later i am still having them..high school was very difficult because sometimes i would have seizures in the morning and then go to school with blackeyes from falling into my dresser or my bed posts..i couldn't finish college because every morning afetr i took a shower to go to class i would have one and would wake up having found out someone had to drag my naked body out of the girls shower to put me in my bed....that was embarrassing

i haven't been able to hold a job, i have been on tegratol, dilantin, lexapro, depakote and currently on lamictal, i have experienced severe depression, anxiety and stress....so beleive me i know where you are coming from....i do not feel sorry for myself though...it's irritating to be like this and try to deal with it..i also have myoclonic jerks which feel like seizures to me...

i do however feel like i have had some of my life taken away..i wanted to join the military to give my daughter a better life but of course i couldn't.....so if you hate your life read this...i should continually hate mine..

 

 

Re: I Have Epilepsy and I Hate My Life...

Submitted by Brittany420 on Tue, 2008-08-19 - 21:26

im 22 years old and I totally understand It is a hard thing to deal with, I am the only one I know that has it and it can be very frusterating to me at times.. I thought I finaly had it under control I hadn't had a sezure in a few years I had gotten my licence back, finished college and had just bought a brand new car... then this morning it all changed .. I had another one.. when will it ever end? the hardest part is people not understanding... that is why i came on here today, i needed to know that there are others feeling the same as I do... I talk to my friends about it but they just don't understand sometimes I feel retarded. I couldn't imagin not taking pills when I wake up and go to bed.. and never knowing when something bad is going to happen, some people just don't know how luckey they got it!

im 22 years old and I totally understand It is a hard thing to deal with, I am the only one I know that has it and it can be very frusterating to me at times.. I thought I finaly had it under control I hadn't had a sezure in a few years I had gotten my licence back, finished college and had just bought a brand new car... then this morning it all changed .. I had another one.. when will it ever end? the hardest part is people not understanding... that is why i came on here today, i needed to know that there are others feeling the same as I do... I talk to my friends about it but they just don't understand sometimes I feel retarded. I couldn't imagin not taking pills when I wake up and go to bed.. and never knowing when something bad is going to happen, some people just don't know how luckey they got it!

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.