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I Have Epilepsy
Sat, 07/26/2008 - 20:11Topic: Medication Issues
Enough said.
Comments
Re: I Have Epilepsy and I Hate My Life...
Submitted by jwcronan on Tue, 2008-08-05 - 14:12
in d am age and a stroke as an infant. my left hand is weak i can only do so much but my seizures are on the right.. The dr. says that's not suppse to happen. c I usually have my seizures at night and they wake me up i jerk for a couple of hours. I'm a mother so it's little more nerve racking b/c she has to ride thebus. You never knew when or how long it was going to happen. I do still have a part time job though and they understand my condition.
Re: I Have Epilepsy and I Hate My Life...
Submitted by jada on Mon, 2008-09-08 - 15:48
I am 54 years old. About 5 years ago I was diagnoised with have complex partial seizures. I have changed medications many times and I have a vagus nerve stimulator, that is turned off because it did not seem to stop the seizures. I take keppra and trileptal now. Last week I had a about 4-5 seizures all in one evening. There are parts of the evening that I can not recall. I am getting more frustrated because things seem to be getting worse with my memory. Does anyone else have this situation? What are you doing about it?
Re: I Have Epilepsy and I Hate My Life...
Submitted by capecodmom on Tue, 2008-08-05 - 11:29
Sometimes I hate my life. I don't drive and it's so hard to get around. I hate relying on other people all of the time. I also am on Social Security Disability but it's not enough to live on so I am looking for a part time job. I'm hoping I can handle a few hours a week. I sometimes don't go places because I am afraid I might have an episode while I am out. I call them episodes because I am just recently diagnosed with TLE and I've called them "episodes" my entire life. At least I don't have to hear from doctors, emergency rooms, anymore "you must be having panic attacks". That was frustrating.
I don't lose concscienceness during my seizures. I think, from the reading and researching I have done, that they are similiar to myoclonic seizures. I don't have any control over my limbs, they jerk and spaz all over. My speech also becomes very slurred and my vision is sometimes double. But my neurologist says that my EEG shows seizure activity in the temporal lobe section of my brain. Does anyone else have similiar symptoms?
Sometimes I hate my life. I don't drive and it's so hard to get around. I hate relying on other people all of the time. I also am on Social Security Disability but it's not enough to live on so I am looking for a part time job. I'm hoping I can handle a few hours a week. I sometimes don't go places because I am afraid I might have an episode while I am out. I call them episodes because I am just recently diagnosed with TLE and I've called them "episodes" my entire life. At least I don't have to hear from doctors, emergency rooms, anymore "you must be having panic attacks". That was frustrating.
I don't lose concscienceness during my seizures. I think, from the reading and researching I have done, that they are similiar to myoclonic seizures. I don't have any control over my limbs, they jerk and spaz all over. My speech also becomes very slurred and my vision is sometimes double. But my neurologist says that my EEG shows seizure activity in the temporal lobe section of my brain. Does anyone else have similiar symptoms?