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I Have Epilepsy

Sat, 07/26/2008 - 20:11
Enough said.

Comments

Re: I Have Epilepsy and I Hate My Life...

Submitted by SupportiveGfofAdam on Fri, 2009-01-16 - 18:34

I got started when I read the post because the poster goes by Adz... which is my bf who is epileptics nickname, but the date doesnt match his diagnosis... so there are 2 epileptic Adz floating about the net. I wanted to say that regardless, I'm so proud of all of you and I'm going to encourage my Adam to join the network b/c you all hold each other up, even if you'r complete strangers. It's beautiful. We met in London and when he would have a seizure, I'd just put him on his side and hold his hand and tell him he was going to be okay. He usualy couldnt hear me/respond, but I feel terrible now that he doesnt have me to hold him. He calls up frightened sometimes and it breaks my heart. You guys gotta continue to be awesome to one another. I can only imagine how hard it is.

I got started when I read the post because the poster goes by Adz... which is my bf who is epileptics nickname, but the date doesnt match his diagnosis... so there are 2 epileptic Adz floating about the net. I wanted to say that regardless, I'm so proud of all of you and I'm going to encourage my Adam to join the network b/c you all hold each other up, even if you'r complete strangers. It's beautiful. We met in London and when he would have a seizure, I'd just put him on his side and hold his hand and tell him he was going to be okay. He usualy couldnt hear me/respond, but I feel terrible now that he doesnt have me to hold him. He calls up frightened sometimes and it breaks my heart. You guys gotta continue to be awesome to one another. I can only imagine how hard it is.

Re: I Have Epilepsy and I Hate My Life...

Submitted by zetalov2 on Sat, 2009-01-17 - 22:07
Well ur great too. I know that your friend can not hear you, but from experience, I know that when someone is with me holding and talking to me it'slike what they describe with coma victims, I have a funny memory of it, not of the seizure but of the pressence. I don't really know how to express that but you should know how great you are. It is so rare to be able to find people who are brave enough and who love you enough to stay after witnessing a seizure, including family I can count them on one hand.

Re: I Have Epilepsy and I Hate My Life...

Submitted by A non mouse on Wed, 2008-07-30 - 12:35

I agree, sort of. But I actually love my life. What I hate, more than anything, is when these stupid &*^&^&^ electrical impulses get in the way of me living it. Its complete bull shift. There's no getting around it. It just sucks sometimes.

 

I agree, sort of. But I actually love my life. What I hate, more than anything, is when these stupid &*^&^&^ electrical impulses get in the way of me living it. Its complete bull shift. There's no getting around it. It just sucks sometimes.

 

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