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Pseudo Seizures
Fri, 01/20/2006 - 13:47Comments
Re: Pseudo Seizures
Submitted by Maggie on Mon, 2008-05-12 - 23:54
Hello Star~Wow this sounds to familar as to my case.Here goes...I was in car accident in '04,at the site I started with seizures the paramedics said.At hospital they said a slight concusion and sent me home.I have never had a seizure before.Went to 4 neuros and they said not epilespy.Had an MRI,EEG,CT scan,VEEG etc.all came back normal.Dx~pseudo seizures.Saw epileptologist also.Was told to see a psychiatrist,he says not psychiatric,saw psychologist he says not psychological.If you have pseudo seizures any anti epileptic med can bring on more seizures.Neuro will not prescribe but psych is but can only give up to a limit on meds then the neuro has to take over and he will not.Psych has me on Lamictal,Klonopin and Effexor.These meds do seem to be working some,maybe with increase they will help more.Pseudo seizures use to mean a fake seizure...seizures are real.Also told that it is an underlying problem that is coming out as a seizure and once that is talked about the seizures will go away.I have never had anything in my past to cause seizures.Well the neuro is so wrong,the meds are helping,the psychologist and psychiatrist say these are not pseudo seizures.Talk about being confused.This has been going on for 4yrs now.I cannot drive,swim alone,take a bath unless someone is home,no climbimg ladder,no riding lawn mower.....OK so tell me what I can do?I feel as though I have done everything the neuro said to do so now it is back in his lap.I will continue to see psych for the meds.Neuro says well,I have to watch you for Parkinsons...Ummm what does that have to do with seizures?He had no answer.I wish you the very best of luck,hun.Try not to be hard on yourself and get other opinions.Sorry this is so long but I thought you might like to hear it from someone that has been in your shoes.One good thing to do is to keep a log book...put...date,time it happened,how you felt before and after,aura also.May God bless you through this rough time in your life.Wish you only the best
*Peace I leave with you; my peace I give to you.I do not give to you as the world gives.Do not let your hearts be troubled,and do not let them be afraid.* ~John 14:27
Hello Star~Wow this sounds to familar as to my case.Here goes...I was in car accident in '04,at the site I started with seizures the paramedics said.At hospital they said a slight concusion and sent me home.I have never had a seizure before.Went to 4 neuros and they said not epilespy.Had an MRI,EEG,CT scan,VEEG etc.all came back normal.Dx~pseudo seizures.Saw epileptologist also.Was told to see a psychiatrist,he says not psychiatric,saw psychologist he says not psychological.If you have pseudo seizures any anti epileptic med can bring on more seizures.Neuro will not prescribe but psych is but can only give up to a limit on meds then the neuro has to take over and he will not.Psych has me on Lamictal,Klonopin and Effexor.These meds do seem to be working some,maybe with increase they will help more.Pseudo seizures use to mean a fake seizure...seizures are real.Also told that it is an underlying problem that is coming out as a seizure and once that is talked about the seizures will go away.I have never had anything in my past to cause seizures.Well the neuro is so wrong,the meds are helping,the psychologist and psychiatrist say these are not pseudo seizures.Talk about being confused.This has been going on for 4yrs now.I cannot drive,swim alone,take a bath unless someone is home,no climbimg ladder,no riding lawn mower.....OK so tell me what I can do?I feel as though I have done everything the neuro said to do so now it is back in his lap.I will continue to see psych for the meds.Neuro says well,I have to watch you for Parkinsons...Ummm what does that have to do with seizures?He had no answer.I wish you the very best of luck,hun.Try not to be hard on yourself and get other opinions.Sorry this is so long but I thought you might like to hear it from someone that has been in your shoes.One good thing to do is to keep a log book...put...date,time it happened,how you felt before and after,aura also.May God bless you through this rough time in your life.Wish you only the best
*Peace I leave with you; my peace I give to you.I do not give to you as the world gives.Do not let your hearts be troubled,and do not let them be afraid.* ~John 14:27
Re: Pseudo Seizures
Submitted by zealot on Sat, 2011-01-08 - 12:34
There is no such thing as pseudoseizures. These are real seizures. It is another case of blame the victim. I was told I had pseudo seizures for years because I have PTSD. They said I was doing it to get out of doing things. I told them wrong diagnosis. That's Malingering. These are real seizures and cause real damage. I have severe brain damage because of abuse and malpractice and having the nurses tell the other patients to "just step over her" as they left me lying in partial status on the floor in front of the nurses station. The cocktail of meds is most likely aggravating the seizures or even causing them. Stress will trigger epileptic seizures in epileptics because adrenilin is a cholinergic agonist in the down stream signal cascade. You need a neurologist. Not a Psycho Neurologist. Not a psychiatrist. Those people almost killed me. I am brain damaged and physically crippled from all of the injuries from my "fake seizures." Btw, PNEW is not feigning seizures for secondary gain. That is malngering. It is also not a Facticious Disorder where someone says they have symptoms for some sort of secondary gain. It is a real medical condition requiring medical attention. I am incapacitated from the mistreatment and abuse I received. Find new doctors and get checked out. Your seizures sound a lot like mine. It wasn't until it got so bad that I ended up with a dent in the middle of my forehead from sever convulsions that I finally got a diagnosis of epilepsy. Now I literally can't see straight. I have trouble touching my finger to my nose. I have trouble using my mouse. I have trouble reading. I have trouble writing. The list goes on. Please do not let this happend to you. "Pseudoseizures" or PNES are temporal lobe seizures/limbic system seizues with hippocampal involvement for the most part. The newer research is confirming this. Please get yourself new doctors. No one should have to suffer this abuse. My health and my life are in ruins because of this and I have had epilepsy since infancy that was never diagnosed for a variety of reasons ranging from abusive parents to incompetent doctors. Baruch Hashem. Hoshia na. Devorah Zealot Soodak www.psychout.typepad.com/ the zealot needs help! P.S. Please click here to read my latest post. P.P.S. Please click here to read my latest or last featured post. P.P.P.S. My first video! Please watch it!