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hearing voices

Thu, 04/03/2008 - 13:47

Hi everyone. 

Hope you're having a good day.  Hope I don't sound like too much of a "newbie" but that's exactly what I am.

OK, here's my story.

About 4 weeks ago my 16 year old son began complaining about being unable to sleep.  We gave him advice such as lay off the caffine .  Then, on 3/25 he had a seizure at school.  (he has since had one almost every day and two on one day.) During his seizures he has some "twitching" of his arms and legs but has always been able to get to a safe place.  He is able to answer questions with a yes or no or a nod of the head so he never completely looses control. He remains conscious through the seizures and has at least some memory of them though he is very weak afterwards. 

We've taken him to the ER (put him on keppra) and have had an MRI and EEG done.  Neither showed anything.  We're taking him to a neurologist tomorrow and having another EEG done on his orders today.

Maybe the scariest part for us has been the voices.  After he had the first seizure he told us that the reason he hadn't been able to sleep was that he'd heard voices.  Sometimes the voices are gibberish but other time they tell him things (in his own voice) like "your friends dont' really like you" or that the voices are going to hurt his friends of family.  They never tell him to do things and he knows the voices aren't real.

I've read about aura's and know some folks hear voices with seizures, but haven't been able to find much to tell me what the voices actually usually say.  Is what my son is hearing common? 

His behavior hasn't changed except he has become even more attached to his friends/family.  He's a great kid and everybody loves being around him, but this is scary stuff for all of us. 

Any "words of wisdom" from the voices of experience would be much appreciated. 

Comments

Re: hearing voices: sorry I pressed the button twice.

Submitted by ladyMy08 on Fri, 2008-04-11 - 08:46

I thought that I was the only one that this happened to. I'm a complex parital seizure patient and I hear voices in my head. And there was one time when I swear I heard my father was calling me, but I thought how crazy is that when I live so far away from him. I was on the computer when this happened. I also see things that aren't there. I mean...I could swear one time that I thought that someone was in the room with me. I saw a figure of a person from the left side of my eye,  but when I turn to look no one is there. I was alone in the house so I thought I was going nuts.

My

I thought that I was the only one that this happened to. I'm a complex parital seizure patient and I hear voices in my head. And there was one time when I swear I heard my father was calling me, but I thought how crazy is that when I live so far away from him. I was on the computer when this happened. I also see things that aren't there. I mean...I could swear one time that I thought that someone was in the room with me. I saw a figure of a person from the left side of my eye,  but when I turn to look no one is there. I was alone in the house so I thought I was going nuts.

My

Re: hearing voices: sorry I pressed the button twice.

Submitted by Orien2 on Sun, 2008-04-13 - 23:38

Maybe we are all cracking up.  Just be glad we aren't facing this alone.  I thought I was going crazy but then I decided it's no good trying to stop myself from going crazy it makes more sense to give up and save sanity for later

-Douglas Adams Hitch hiker's guide to the galaxy

I haven't lost my marbles I just can't find them

-Katz Heitmann

Don't mind the voices it's just the rages and the fear that bothers me in addition to the nightmares I have sometimes.  I thought it was just PTSD and I could safely ignore it until I had a full blown seizure in front of the pastor 15 days after my maternal grandma's death and after a really lousy day.  I have PAs they are just episodes where you think you are going to die, but it's no big deal:)  Found out I was crazy and had TLE what a *$%# of a thing to have happen. Oh well as long as I can laugh at it then it can't be all bad.    

Maybe we are all cracking up.  Just be glad we aren't facing this alone.  I thought I was going crazy but then I decided it's no good trying to stop myself from going crazy it makes more sense to give up and save sanity for later

-Douglas Adams Hitch hiker's guide to the galaxy

I haven't lost my marbles I just can't find them

-Katz Heitmann

Don't mind the voices it's just the rages and the fear that bothers me in addition to the nightmares I have sometimes.  I thought it was just PTSD and I could safely ignore it until I had a full blown seizure in front of the pastor 15 days after my maternal grandma's death and after a really lousy day.  I have PAs they are just episodes where you think you are going to die, but it's no big deal:)  Found out I was crazy and had TLE what a *$%# of a thing to have happen. Oh well as long as I can laugh at it then it can't be all bad.    

just stared hearing voices this summer....

Submitted by veronikahoy3 on Fri, 2008-11-07 - 20:39

 

hi everyone, 

i've had epilepsy since i was 14 and now i'm 19 and i take keppra and zonogran and last month i had these crazy hallucinations and i though i was going psycotic and i still hear voices as of now. At least i'm not the only one i also had vivid dreams and kept having deja vu'. i would see ghosts on my street and things float across the room. Is anybody else hear taking zonogran? The voices would sometimes confuse me and say i'm godlike an angel and that i have awareness or that she walks like a supermodel. sometimes i wonder if i have esp. 

 

 

hi everyone, 

i've had epilepsy since i was 14 and now i'm 19 and i take keppra and zonogran and last month i had these crazy hallucinations and i though i was going psycotic and i still hear voices as of now. At least i'm not the only one i also had vivid dreams and kept having deja vu'. i would see ghosts on my street and things float across the room. Is anybody else hear taking zonogran? The voices would sometimes confuse me and say i'm godlike an angel and that i have awareness or that she walks like a supermodel. sometimes i wonder if i have esp. 

 

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