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hearing voices

Thu, 04/03/2008 - 13:47

Hi everyone. 

Hope you're having a good day.  Hope I don't sound like too much of a "newbie" but that's exactly what I am.

OK, here's my story.

About 4 weeks ago my 16 year old son began complaining about being unable to sleep.  We gave him advice such as lay off the caffine .  Then, on 3/25 he had a seizure at school.  (he has since had one almost every day and two on one day.) During his seizures he has some "twitching" of his arms and legs but has always been able to get to a safe place.  He is able to answer questions with a yes or no or a nod of the head so he never completely looses control. He remains conscious through the seizures and has at least some memory of them though he is very weak afterwards. 

We've taken him to the ER (put him on keppra) and have had an MRI and EEG done.  Neither showed anything.  We're taking him to a neurologist tomorrow and having another EEG done on his orders today.

Maybe the scariest part for us has been the voices.  After he had the first seizure he told us that the reason he hadn't been able to sleep was that he'd heard voices.  Sometimes the voices are gibberish but other time they tell him things (in his own voice) like "your friends dont' really like you" or that the voices are going to hurt his friends of family.  They never tell him to do things and he knows the voices aren't real.

I've read about aura's and know some folks hear voices with seizures, but haven't been able to find much to tell me what the voices actually usually say.  Is what my son is hearing common? 

His behavior hasn't changed except he has become even more attached to his friends/family.  He's a great kid and everybody loves being around him, but this is scary stuff for all of us. 

Any "words of wisdom" from the voices of experience would be much appreciated. 

Comments

Re: hearing voices

Submitted by plopdan on Thu, 2008-04-03 - 14:50

I only heard a voice once which said "your the one" which left me rather puzzled at the time, i mean I'm the one what?

All can say about the rest at the mo is watch out for any side effects from any meds he may take, remember if in doubt theres always a telephone in my country I can ring the Epi nurses at any time and they get back to me as soon as they can.  Don't know where you live but I assume you have something simular.

Good luck and best wishes

plopdan u.k 

I only heard a voice once which said "your the one" which left me rather puzzled at the time, i mean I'm the one what?

All can say about the rest at the mo is watch out for any side effects from any meds he may take, remember if in doubt theres always a telephone in my country I can ring the Epi nurses at any time and they get back to me as soon as they can.  Don't know where you live but I assume you have something simular.

Good luck and best wishes

plopdan u.k 

Re: hearing voices

Submitted by bex on Mon, 2008-04-07 - 12:15

I often get a ringing in my ears and also hallucinations which were worse on the Lactimal where they got particularty scary especially when its in the night. And must be worse if your younger. Best wishes Bex

I often get a ringing in my ears and also hallucinations which were worse on the Lactimal where they got particularty scary especially when its in the night. And must be worse if your younger. Best wishes Bex

Re: hearing voices

Submitted by xgi on Mon, 2008-04-07 - 15:50

I heard like a muffled conversation when I was tegertol years ago. Drove me darn near crazy. People even a few doctors thought I was nuts. That's got to be hard been only 16. Good luck to your kid....x

I heard like a muffled conversation when I was tegertol years ago. Drove me darn near crazy. People even a few doctors thought I was nuts. That's got to be hard been only 16. Good luck to your kid....x

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