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hearing voices

Thu, 04/03/2008 - 13:47

Hi everyone. 

Hope you're having a good day.  Hope I don't sound like too much of a "newbie" but that's exactly what I am.

OK, here's my story.

About 4 weeks ago my 16 year old son began complaining about being unable to sleep.  We gave him advice such as lay off the caffine .  Then, on 3/25 he had a seizure at school.  (he has since had one almost every day and two on one day.) During his seizures he has some "twitching" of his arms and legs but has always been able to get to a safe place.  He is able to answer questions with a yes or no or a nod of the head so he never completely looses control. He remains conscious through the seizures and has at least some memory of them though he is very weak afterwards. 

We've taken him to the ER (put him on keppra) and have had an MRI and EEG done.  Neither showed anything.  We're taking him to a neurologist tomorrow and having another EEG done on his orders today.

Maybe the scariest part for us has been the voices.  After he had the first seizure he told us that the reason he hadn't been able to sleep was that he'd heard voices.  Sometimes the voices are gibberish but other time they tell him things (in his own voice) like "your friends dont' really like you" or that the voices are going to hurt his friends of family.  They never tell him to do things and he knows the voices aren't real.

I've read about aura's and know some folks hear voices with seizures, but haven't been able to find much to tell me what the voices actually usually say.  Is what my son is hearing common? 

His behavior hasn't changed except he has become even more attached to his friends/family.  He's a great kid and everybody loves being around him, but this is scary stuff for all of us. 

Any "words of wisdom" from the voices of experience would be much appreciated. 

Comments

Re: hearing voices

Submitted by Hapygrl on Sat, 2011-12-17 - 18:07

I agree very scary, but also so related to the epilepsy.

 

I agree very scary, but also so related to the epilepsy.

 

Re: hearing voices

Submitted by Dragool on Thu, 2008-04-03 - 18:03
I've heard of people hearing voices before having seizures. I think it's part of the aura. I have no experience with it though.

Re: hearing voices

Submitted by JayBrick13 on Mon, 2008-04-07 - 04:35
I hear voices, sounds, music....  It makes me feel like I'm crazy!!  It happens right before and during my seizures.  I also stay concious, but the only communication I have with the outside world is that I can make a moan/whine sound.  Other than that, I feel frozen, unable to move a will, even though my jaw is seizing.  As far as I know, its only my jaw.  I can also hear everything around me, just can't say anything back.  And if it gets worse, the outside soudns become distorted, and the fake sounds become louder and clearer, then I feel like I'm having an out of body experience.  I have simple partial seizures.  I'm always extremely tired afterwards.

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