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hearing voices
Thu, 04/03/2008 - 13:47Hi everyone.
Hope you're having a good day. Hope I don't sound like too much of a "newbie" but that's exactly what I am.
OK, here's my story.
About 4 weeks ago my 16 year old son began complaining about being unable to sleep. We gave him advice such as lay off the caffine . Then, on 3/25 he had a seizure at school. (he has since had one almost every day and two on one day.) During his seizures he has some "twitching" of his arms and legs but has always been able to get to a safe place. He is able to answer questions with a yes or no or a nod of the head so he never completely looses control. He remains conscious through the seizures and has at least some memory of them though he is very weak afterwards.
We've taken him to the ER (put him on keppra) and have had an MRI and EEG done. Neither showed anything. We're taking him to a neurologist tomorrow and having another EEG done on his orders today.
Maybe the scariest part for us has been the voices. After he had the first seizure he told us that the reason he hadn't been able to sleep was that he'd heard voices. Sometimes the voices are gibberish but other time they tell him things (in his own voice) like "your friends dont' really like you" or that the voices are going to hurt his friends of family. They never tell him to do things and he knows the voices aren't real.
I've read about aura's and know some folks hear voices with seizures, but haven't been able to find much to tell me what the voices actually usually say. Is what my son is hearing common?
His behavior hasn't changed except he has become even more attached to his friends/family. He's a great kid and everybody loves being around him, but this is scary stuff for all of us.
Any "words of wisdom" from the voices of experience would be much appreciated.
Comments
Re: hearing voices
Submitted by wyboemail on Thu, 2008-04-03 - 15:35
My nine year old son would have horrible night terrors where he would get out of bed and think something was happening to him or someone else in the family. I mean this was scary. this was when he was 7 years old. He would calm down within about 10 minutes. His eyes were open and he was just going crazy. A year later he devoloped what the doctors called benign tic disorder and then had his first seizure on March 26, 2007. He is on Keppra now and has been doing pretty good. He also has Chiari Malformation.
Good luck.
My nine year old son would have horrible night terrors where he would get out of bed and think something was happening to him or someone else in the family. I mean this was scary. this was when he was 7 years old. He would calm down within about 10 minutes. His eyes were open and he was just going crazy. A year later he devoloped what the doctors called benign tic disorder and then had his first seizure on March 26, 2007. He is on Keppra now and has been doing pretty good. He also has Chiari Malformation.
Good luck.
Re: hearing voices
Submitted by matthewdad on Thu, 2008-04-03 - 15:41
He never told us about the voices until after the first seizure because he thought he was "going crazy."
You're right, it's pretty terrifying to everyone when your child wakes you up in the early hours hearing voices in his head.
He never told us about the voices until after the first seizure because he thought he was "going crazy."
You're right, it's pretty terrifying to everyone when your child wakes you up in the early hours hearing voices in his head.
Re: hearing voices
Submitted by ladyMy08 on Fri, 2008-04-11 - 08:46
I thought that I was the only one that this happened to. I'm a complex parital seizure patient and I hear voices in my head. And there was one time when I swear I heard my father was calling me, but I thought how crazy is that when I live so far away from him. I was on the computer when this happened. I also see things that aren't there. I mean...I could swear one time that I thought that someone was in the room with me. I saw a figure of a person from the left side of my eye, but when I turn to look no one is there. I was alone in the house so I thought I was going nuts.
My
I thought that I was the only one that this happened to. I'm a complex parital seizure patient and I hear voices in my head. And there was one time when I swear I heard my father was calling me, but I thought how crazy is that when I live so far away from him. I was on the computer when this happened. I also see things that aren't there. I mean...I could swear one time that I thought that someone was in the room with me. I saw a figure of a person from the left side of my eye, but when I turn to look no one is there. I was alone in the house so I thought I was going nuts.
My