Awareness and Services Go Statewide
The Epilepsy Foundation of Alabama has experienced the best that networking and awareness programs can bring to an affiliate. With the strong support of agencies statewide, in particular Children's Rehabilitation Services and a network of neurologists and epileptologists, the affiliate has been able to raise epilepsy awareness even more.
Leveraging a partnership created with the University of Alabama for a joint research project on the impact of epilepsy, the affiliate is now offering support to people living with epilepsy in every county in the state. While the research project closed on August 30, 2013, its coordinator, Dr. Angelia Paschal, continues to work with the affiliate to provide support to people living with epilepsy.
The state-wide exposure established by the research project has helped the affiliate create new Epilepsy Awareness Clubs in Opelika, Montgomery, Madison, and Baldwin, with Mobile soon to follow. Now people are calling the affiliate to volunteer and spread awareness!
When an epileptologist in Montgomery who is new to the region called to volunteer, the affiliate asked him to present a program called, “What to do in the work place if...?” He and his team, with minor assist from the affiliate, not only presented but re-wrote a PowerPoint to make it usable for any National Epilepsy Awareness Month (NEAM) presentation. Volunteers have assisted with other NEAM events, including a tour of the local epilepsy management unit by the Chair of Neurology, a pet costume parade called the “Pet Doo Dah Strut,” and wearing epilepsy awareness t-shirts at work.
Dr. Dean Naritoku, chair of Neurology, with nurses from the Neurology Department at the University of South Alabama School of Medicine in Mobile, AL.
Dr. William Lievens of Baptist Hospital presented a program called, “What to do in the work place if...?” to the Alabama Department of Revenue in Montgomery
Partnership with University of Alabama on Impact Study
The Epilepsy Foundation of Alabama has been asked to partner with the University of Alabama in a joint research project to determine the impact of epilepsy on the families with children aged 1 to 12. Director of Client Services David Toenes is coordinating the program and is working with Angelia M. Paschal, PhD and Associate Professor Dept of Health Science at the University of Alabama, Tuscaloosa, in the endeavor.
The study seeks to determine how parents obtain, understand, and use health information about their children through personal interviews with parents. Kicking off later this month, the initiative will cover all 67 counties of the state. Toenes is excited about the opportunity that this project presents stating, "This survey effort will help us put the image of the Epilepsy Foundation of Alabama and our broad range of programs into every county in Alabama in a strong, positive posture."
For more information about any of these projects, contact David Toenes via e-mail or phone (1-800-626-1582).