Managing Epilepsy with the Ketogenic Diet: A Family's Experience

Join Us Tuesday, November 10th at 7:00 p.m. ET

Join us on Tuesday, November 10th at 7:00 pm ET to learn more about the medical ketogenic diet for the management of drug-resistant seizures. Join Beth Zupec-Kania, Registered Dietician and Nutritionist, of the Charlie Foundation and 10-year-old Nehe and his dad Juno. They’ll both be sharing their knowledge and experiences with the ketogenic diet.

You will have an opportunity to learn about the medical ketogenic diet—what it is, who it could help, and where to learn more. You will also have an opportunity to hear how the ketogenic diet works in real life.

This Facebook Live is brought to you in part by support from Nutricia.

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Speakers

Nehe and Family: Community Representative

Nehe and his family will join us to share their real-life experiences with the medical ketogenic diet. Nehe’s family found the medical ketogenic diet through their connection with their local Epilepsy Foundation. After about 6 months on the ketogenic diet along with anti-seizure medications, Nehe’s family worked with his epilepsy team to stop his medication. He’s now seizure free!

Moderator

Dr. Brandy Fureman joined the Epilepsy Foundation in 2016 as Vice President for Research and New Therapies and became the Chief Outcomes Officer in 2020. Her main responsibility is to ensure that the Foundation’s activities result in better outcomes and quality of life for individuals and families living with the epilepsies.

Dr. Fureman coordinates the overall direction of the Mission Outcomes Team, composed of Research & New Therapies, Public Health & Education, and Government Relations & Advocacy staff. She also directs the Coordinating Center for the Epilepsy Learning Healthcare System, is a Principal Investigator in the Human Epilepsy Project, and oversees the Foundation’s SUDEP Institute.

Dr. Fureman previously served with the National Institute of Neurological Disorders and Stroke (NINDS) as a Program Director in the Channels, Synapses and Circuits cluster, overseeing a portfolio of basic, translational and clinical epilepsy research, including clinical trials. She was a Presidential Management Fellow at the NINDS, graduated from Cedar Crest College with a B.S. in Genetic Engineering Technology and received her Ph.D. in Neuroscience from the Department of Neuroscience and Anatomy at the Pennsylvania State University College of Medicine. Her research interests focused on molecular and behavioral effects of ion channelopathy and triggers of dysfunction in episodic neurological disorders.

Professional Expert

Beth Zupec-Kania is a Registered Dietitian Nutritionist who has promoted safe and effective ketogenic diet therapies (KDTs) since 1991. She has managed KDTs in individuals with neurologic, mitochondrial, and metabolic disorders, and tumorous cancers.

Beth has authored multiple education guides, co- authored The Modified Keto Cook Book (Demos), co-organized three global ketogenic symposiums and is the designer of KetoDietCalculator, a web-based program for calculating diets. She’s provided training to over 300 medical centers worldwide, owns Ketogenic Therapies, LLC and is a consultant to the Charlie Foundation.

Note: presenters cannot address individual medical concerns and cannot provide individual advice.

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