
This week we were reminded how devastating epilepsy can be. Our thoughts and prayers go out to the family and friends of actress Skye McCole Bartusiak, as well as all those who have lost someone to sudden unexpected death in epilepsy (SUDEP).
Losing a loved one with seizures is so hard, no matter how old they are. Most people don’t realize how serious epilepsy can be. While death from epilepsy is considered rare, it’s more common than you think.
After losing a loved one to epilepsy, grieving takes on an added dimension. Many questions arise about what happened, why, or could it have been prevented?
What help is available for people who have lost a loved one from seizures and epilepsy?
How else can people get involved and help?
I hope these resources are helpful to people – whether you are grieving now, or are just learning about SUDEP and need to know more. Our thoughts are with you all.
Best wishes,
Patty Osborne Shafer RN, MN
Associate Editor/Community Manager
Epilepsy.com