Brandy Fureman, PhD

Brandy Fureman PhD

ELHS Network Coordinating Center Lead

Dr. Brandy Fureman joined the Epilepsy Foundation in 2016 as Vice President for Research and New Therapies and became the Chief Outcomes Officer in 2020. Her main responsibility is to ensure that the Foundation’s activities result in better outcomes and quality of life for individuals and families living with the epilepsies. 
Dr Fureman coordinates the overall direction of the Mission Outcomes Team, composed of Research & New Therapies, Public Health & Education, and Government Relations & Advocacy staff. She also directs the Coordinating Center for the Epilepsy Learning Healthcare System, is a Principal Investigator in the Human Epilepsy Project, and oversees the Foundation’s SUDEP Institute. 

Dr. Fureman previously served with the National Institute of Neurological Disorders and Stroke (NINDS) as a Program Director in the Channels, Synapses and Circuits cluster, overseeing a portfolio of basic, translational and clinical epilepsy research, including clinical trials.  She was a Presidential Management Fellow at the NINDS, graduated from Cedar Crest College with a B.S. in Genetic Engineering Technology and received her Ph.D. in Neuroscience from the Department of Neuroscience and Anatomy at the Pennsylvania State University College of Medicine. Her research interests focused on molecular and behavioral effects of ion channelopathy and triggers of dysfunction in episodic neurological disorders.

Kathleen Farrell, MB, BCh BAO

EHLS Kathleen

Senior Director of Clinical Research

Kathleen Farrell directs initiatives including the Epilepsy Learning Healthcare System, Research Roundtable for Epilepsy, the Clinical Trials Portal, and the Epilepsy Foundation Pipeline Conference — working with industry members, academics, regulators and people living with epilepsy to drive scientific advancement in the seizure disorder space. Dr. Farrell also manages the Epilepsy Foundation’s participation in the Rare Epilepsy Network, which includes a patient-centered database with which to study catastrophic epilepsies, and oversees the SUDEP Institute InnoCentive Challenge, accelerating research into the pathology and possible interventions for sudden unexpected death in epilepsy. She joined the Foundation in 2015.

Dr. Farrell has authored a number of scientific articles, and prior to joining the Epilepsy Foundation worked as a medical resident at Beaumont Hospital in Dublin, Ireland. She earned her medical degree from University College Dublin School of Medicine and Medical Science, and successfully completed the United States Medical Licensing Examinations upon returning to the U.S.

Jeffrey Buchhalter, MD, PHD

EHLS Jeffrey

Co-Investigator, ELHS Clinical Core and Quality Improvement

Jeffrey Buchhalter MD, PhD is Adjunct Professor of Pediatrics at the University of Calgary and former director of the pediatric epilepsy program at Alberta Children’s Hospital, Phoenix Children’s Hospital and the Mayo Clinic, Rochester. He is a former member of the Task Force on Terminology and Classification and current member of the Big Data Task Force of the International League Against Epilepsy. His current research program involves informatics approaches to improving outcomes for children with epilepsy via structured electronic health records. Dr. Buchhalter is the Quality Adviser for the Epilepsy Learning Healthcare System network, a multi-site, quality improvement-based project & leads the Pediatric Epilepsy core of this project. He participates on the American Academy of Neurology Coding (ICD-10) sub-committee, was a member of the task forces that produced practice guidelines for the Vagus Nerve Stimulator and Sudden Unexpected Death in Epilepsy and recently co-lead the group that created the first Quality Measures for Child Neurology.

Susan T. Herman, MD

ELHS Susan

Co-Investigator, ELHS Clinical Core;

Dr. Susan Herman is an Professor of Neurology at Barrow Neurological Institute and the Director of the Barrow Comprehensive Epilepsy Center. Dr. Herman received her undergraduate degree from Johns Hopkins University and her medical degree in 1993 from Columbia University College of Physicians and Surgeons. She completed a medicine internship, neurology residency, and fellowship in clinical neurophysiology and epilepsy at Columbia-Presbyterian Medical Center in New York. At BIDMC, she directs the ICU-EEG monitoring program and the Epilepsy Monitoring Unit. Dr. Herman is board certified in Neurology, Clinical Neurophysiology, and Epilepsy. She is Vice President of the National Association of Epilepsy Centers, a past President of the American Clinical Neurophysiology Society, Co-Chair of the Fellows/Junior Investigator Professional Development Committee of the American Epilepsy Society, and member of the Registry Committee and Epilepsy Quality Measures Workgroup of the American Academy of Neurology. Dr. Herman’s clinical research focuses on treatment of drug resistant epilepsy, use of innovative EEG technology for diagnosis of seizures and epilepsy, and standardization of care for patients with epilepsy. She is Co-PI of the Clinical Core of the Epilepsy LHS.

Alison Kukla, MPH

Alison Kukla

ELHS Community Engagement Core Lead

Alison Kukla is the Program Manager for National Programs and Services at the Epilepsy Foundation. Within the ELHS, she leads the Community Engagement Core and supports ELHS workgroups focused on seizure documentation and treatment and quality of life. She works cross-departmentally between the research and programs department to coordinate and manage community engagement activities and partnerships between local Epilepsy Foundations and epilepsy centers within the Epilepsy Learning Healthcare System. From 2010-2017, she worked as a political appointee for the Obama Administration in both the White House at the Office of Public Engagement and the U.S. Environmental Protection Agency at the Office of Children’s Health Protection. Alison was diagnosed with epilepsy as a college freshman and since then she has been an epilepsy advocate, volunteering with various epilepsy organizations, foundations, and non-profits. In May 2018, she became a member of the Epilepsy Foundation of Virginia’s Professional Advisory Board. Alison is originally from Youngstown, Ohio, and has a bachelor’s degree from Youngstown State University. She received her master’s degree in public health (MPH) with a concentration in prevention science from the Rollins School of Public Health at Emory University.

Lidia Moura, MD, MPH

ELHS Lidia

Director, ELHS Data Core

Dr. Moura is a neurologist and health services researcher in the Department of Neurology at the Massachusetts General Hospital (MGH) and Assistant Professor of Neurology at the Harvard Medical School. At the MGH, she completed a research fellowship in clinical trials, a two-year clinical fellowship in Clinical Neurophysiology and Epilepsy, and a one-year clinical fellowship in Advanced General/Autoimmune Neurology to focus on the care of patients with multiple clinical needs. She holds a Master's Degree in Public Health from the Harvard T.H. Chan School of Public Health (HSPH) with concentration in Clinical Effectiveness. She is a PhD student in Population Health Sciences (Epidemiology) at the HSPH and the Harvard Graduate School of Arts and Sciences. She is the director of the MGH Neuro Value laboratory. Her work has been sponsored by the American Brain Foundation, Harvard University, and the NIH/National Institute of Aging (NIH-K08, P01 and R01 awards). Dr. Moura's studies combine the use of medical records, registries, patient-reported surveys and large automated data sets to assess care quality and efficiency in neurology. With strong collaborations at the MGH Center for Health Policy Analysis and the Harvard T. H. Chan School of Public Health, Dr. Moura brings clinical, behavioral and economic perspectives to the Epilepsy Learning Health System.

Nathalie Jette, MSc, MD

Nathalie Jett

ELHS Quality Improvement Lead

Dr Jette is a Professor of Neurology and Population Health Science & Policy at the Icahn School of Medicine at Mount Sinai (ISMMS). She is a health services researcher, epileptologist, Vice Chair for Clinical Research Neurology and Chief of the Division of Health Outcomes and Knowledge Translation Research across the ISMMS health system. She is past President of the Canadian League Against Epilepsy, Chair of the North American Commission of the International League Against Epilepsy (ILAE), Chair of the ILAE Guidelines Task Force, and an Associate Editor for Epilepsia. She has been the recipient of over 50 research, teaching and clinical awards, including the ILAE Ambassador for Epilepsy Award in 2017. She studies appropriateness and quality-of-care, outcomes (especially surgical), psychiatric comorbidities and is involved in implementation science (including development of e-tools and apps) for people with neurological conditions, particularly those living with epilepsy.

Nick Abend, MD

ELHS Data Core

Peter Abend

Dr. Nicholas Abend is an Associate Professor of Neurology, Pediatrics, and Anesthesia and Critical Care at the University of Pennsylvania and the Children's Hospital of Philadelphia. He is the Medical Director of Clinical Neurophysiology, the Director of Neurology Strategy and Inpatient Operations, and an Associate Scholar in the Center for Epidemiology and Biostatistics. His clinical practice focuses on seizure management and EEG interpretation in critically ill children and intractable epilepsy management. His research focuses on the significance, pathophysiology, and appropriate management of electrographic seizures in critically ill children and neonates, the treatment of status epilepticus, and the utility of EEG as a prognostic biomarker in children and neonates with acute encephalopathy. He has served as Chair Critical Care EEG Monitoring Research Consortium and a member of the American Clinical Neurophysiology Society's Council, and he is a Fellow of the American Epilepsy Society and American Clinical Neurophysiology Society.

Deepika Dass, MPH

Deepika Dass

Deepika Dass is a Data Analyst at the Institute of Health Policy Research, Massachusetts General Hospital. She is heavily involved in planning and conducting statistical analysis of complex healthcare databases (primary healthcare databases, claims, etc.). She came to the U.S. in 2017 to pursue a master’s degree in public health and graduated in May 2019 with a major in epidemiology and biostatistics. She is originally from India, where she also completed her bachelor’s degree in biotechnology engineering in 2017.

As a part of her education, she was able to intern at a wide variety of institutes some of which include: NGO Nepal Public Health Foundation (Kathmandu, Nepal), University of Applied Sciences (Munich, Germany), and Massachusetts Department of Public Health, (Boston, MA). She aims to strengthen her skillset as a biostatistician and work extensively to expand data driven approaches in the healthcare sector in India.

Authored By: 
Elaine Kiriakopoulos MD, MSc
Authored Date: 
Reviewed By: 
Epilepsy Foundation Communications
Friday, October 11, 2019