young girl with facemask on ready for advocacy

On January 31, 2020, the Secretary of the U.S. Department of Health and Human Services declared a public health emergency due to cases of the 2019 novel coronavirus (COVID-19). While most people who develop this viral illness will have only mild to moderate symptoms, some people may need to see a health care provider or be hospitalized. COVID-19 has greatly impacted how Americans and everyone around the world lives their daily lives, personal and family finances, countries’ economies and how people access health care.

Stay up to date by reading the Foundation's FAQ on COVID-19 (Coronavirus) and Epilepsy, which will be updated as information becomes available.


Through COVID-19, the Foundation has been advocating on behalf of people living with the epilepsies to ensure policies will enable people to follow CDC guidelines on social distancing and have the health care and supports they need, including access to essential treatments, access to care via telehealth, paid leave, unemployment benefits, housing and special education given increased virtual learning.


Congress has passed a few large packages to provide support and relief to the American people and economy. The last congressional package was passed in late March. The House of Representatives passed a subsequent package in May, but the Senate has not advanced a package. State legislatures have also significantly shifted focus during 2020 to put policies in place to protect their residents and economies.

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Engagement & Resources

Below is a sampling of the Foundation’s engagement and advocacy through COVID-19: