young girl with facemask on ready for advocacy

On January 31, 2020, the Secretary of the U.S. Department of Health and Human Services declared a public health emergency due to cases of the 2019 novel coronavirus (COVID-19). While most people who develop this viral illness will have only mild to moderate symptoms, some people may need to see a health care provider or be hospitalized. COVID-19 has greatly impacted how Americans and everyone around the world lives their daily lives, personal and family finances, countries’ economies and how people access health care.

Stay up to date by reading the Foundation's FAQ on COVID-19 (Coronavirus) and Epilepsy, which will be updated as information becomes available.

Position

Through COVID-19, the Foundation has been advocating on behalf of people living with the epilepsies to ensure policies will enable people to follow CDC guidelines on social distancing and have the health care and supports they need, including access to essential treatments, access to care via telehealth, paid leave, unemployment benefits, housing and special education given increased virtual learning.

Status

Congress has passed a few large packages to provide support and relief to the American people and economy. Most recently in December 2020, Congress passed additional COVID-19-related support including $600 stimulus checks for eligible individuals making up to $75,000 and $1,200 for those filing jointly making up to $150,000 (though unfortunately, these checks will not be available for adult dependents with disabilities, as the disability community and Foundation advocated for) and extending CARES Act unemployment support and an extra $300/week through March 14, 2021.

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Engagement & Resources

Below is a sampling of the Foundation’s engagement and advocacy through COVID-19:

on: 
Thursday, January 28, 2021