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Take control of your epilepsy and seizures. Seizure management has never been easier.
TAKE CONTROL TODAYWelcome to the epilepsy.com Wiki, where you can share your expertise and help create a community-generated encyclopedia of epilepsy information from first-hand, real-life experiences. In the listings below, you can click around to view Wikis that other users have contributed to and you can edit one yourself!
There are several ways to find a Wiki topic that interests you. One option is to use the search box below to search for specific terms that interest you the most. Alternatively, you can find Wiki topics listed under "Browse Topics” in alphabetical order, under “Latest” by the most recently edited, and under "Top 25” by the most commonly edited. You can also help review and edit those topics that other users have suggested are in need of review under "Flagged for Review".
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Absence Seizures
What Are the Symptoms of an Absence Seizure?
Because absence seizures are usually quite brief, tend to strike during
times of inactivity, and closely resemble daydreaming or "being off in
one's own world," they may pass unnoticed by others...
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AEDs cost too much?
Check out PPARx.org Partnership for Prescription Assistance.
1-888-477-2669. They should be able to help you get low cost prescriptions. I found this information from the Epilepsy Foundation of Northern California. EFNC
Good luck!
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Ambulatory EEG
Why do I need one?
The brain’s electrical activity fluctuates from second to second, but routine EEGs provide only a 20- to 40-minute sample of this activity. If epilepsy waves occur in your brain only once every 3 or 4 hours, or if they happen only...
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Asklepios, galanin gene therapy
Philanthropic Funding Provided by: Epilepsy Therapy Project
Tx name
Galanin
Description
Gene therapy
Company
Asklepios
Status
Pre-clinical
Overview
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Atonic Seizures
No members have contributed to this topic yet. Be the first!
Welcome to the Wiki. This space is created for epilepsy.com members to share their own experiences and expertise to help refine and expand the discussion around important topics.
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Atypical Absence Seizures
No members have contributed to this topic yet. Be the first!
Welcome to the Wiki. This space is created for epilepsy.com members to share their own experiences and expertise to help refine and expand the discussion around important topics.
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Visualase, Image-guided Laser Technology for Thermal Ablation
Tx name
Laser Ablation in Epilectic Foci
Description
Image-guided Laser Technology provides minimally invasive thermal ablation
Company
Visualase
Overview
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Fix
i got fix since i'am 14 years n nw m 24.. still the fix never stop. i take epilim chorono 500mg daily per tablet.. nw i married. m scared whether i can get pregnant or not. if so did any problem for my baby. that fix will come just a few second only. it will...
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Living with epilepsy
Does anyone else get tired of hearing they can't do something because of seizures? My whole family reminds me like I have forgotten. I love them and I understand why they do what they do but the only reason I am always bright and cheerful is because I defy...
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Medication & Side Effects
Has anyone had trouble with their medication and side effects? I have the craziest question, but I'm a fitness instructor and now that I'm gaining more muscle mass, less body fat, my seizure medication has been lowered but I still feel dizzy in the morning...
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focal seizures from getting up too fast
I was wondering if anyone out there also experiences focal seizures from getting up too fast?
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Juvenile Myoclonic Epilepsy: Characteristics and Treatment
Juvenile Myoclonic Epilepsy :People with JME have myoclonic seizures (quick little jerks of the arms, shoulder, or occasionally the legs), usually in the early morning, soon after awakening. The myoclonic jerks sometimes are followed by a tonic-clonic seizure....
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personality change
After right temporal lobe surgery to remove a tumor (benign) and a 6 year taper of lamictal, our son's personality has suffered a drastic change. Once a nice, funny family oriented person, he is now irritable, moody, at times mean and has removed himself...
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Paloma, P529 Dual-TORC inhibitor
Tx name
P529
Description
Dual TORC inhibitor
Company
Paloma
Status
Overview
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Frequently Asked Questions
I am a 40 yr old mother of 3. I am overweight. I have tried everything I know to do as far as controlling my weight. Does anyone know what else that people with epilepsy can do so they can loose weight?
I have had seizures since I was 12 yrs. old.
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AEDs cost too much?
Check out PPARx.org Partnership for Prescription Assistance.
1-888-477-2669. They should be able to help you get low cost prescriptions. I found this information from the Epilepsy Foundation of Northern California. EFNC
Good luck!
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Perampanel
Perampanel (E2007)
Summary: Perampanel is a first-in-class AMPA-type glutamate receptor antagonist being developed by Eisai for partial onset seizures. Three global Phase III studies have been completed including 1490 patients, and Eisai indicated...
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What happens from here with our 4 yr. old?!?!
I am so relieved to have found such an amazing site for my family to come and read stories much like we are going through. Our son was diagnosed with epilepsy June 2010. Not knowing really what that meant, they sent us on our way with a prescription...
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Disability....how long does it take?
I've been disabled by my epilepsy for over 15 years. Really, I have to wear a helmet. I never know when my next seizure will occur. I currently have SSI, but it took over a year to qualify. If I didn't have someone to pay my rent, I'd be on the street.
I've...
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Menstruation
I started having seizures in my sleep about 2 years ago...I take medication regularly but every month about 4 to 6 days before my period I'll have a seizure in my sleep. I'm suppose to take a diffferent medication for about 4 days before..but I wonder if anything...
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SmartWatch by Smart Monitor Corporation
Philanthropic Funding Provided by: Epilepsy Therapy Project.
Product Name
SmartWatch
Description
Wearable Seizure detection and alert monitor
Company
Location
Smart...
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Brain Games
IS there a place on here for brain games? I find them helpful as my seizures are causing alot of problems wit cognition, memory, talking, etc.
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CortiFlex Headset
Tx name
Wireless EEG electrode cap
Description
ANI Headset (Electrode Cap )
Company
Advanced Neurometrics, Inc.
Status
Phase 1
Overview
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Legacy, Adenosine Implant
Tx name
Adenosine-releasing silk-based brain implants for epilepsy therapy
Description
Adenosine delivery to brain
Company
Legacy Hospital System
Status
Overview
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Neurologix, NPY gene therapy
Tx name
NPY gene therapy
Description
In vivo NPY gene transfer allows for high level expression and functional efficacy limited to target region in the temporal lobe
Company
Neurologix
Status
Primate...
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Complex Partial Seizures
Complex
Partial Seizures :These seizures usually start in a small area of the
temporal lobe or frontal lobe of the brain. They quickly involve other areas of
the brain that affect alertness and awareness...
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Absence Seizures
What Are the Symptoms of an Absence Seizure?
Because absence seizures are usually quite brief, tend to strike during
times of inactivity, and closely resemble daydreaming or "being off in
one's own world," they may pass unnoticed by others...
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Temporal Lobe Epilepsy
No members have contributed to this topic yet. Be the first!
Welcome to the Wiki. This space is created for epilepsy.com members to share their own experiences and expertise to help refine and expand the discussion around important topics.
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Juvenile Myoclonic Epilepsy: Characteristics and Treatment
Juvenile Myoclonic Epilepsy :People with JME have myoclonic seizures (quick little jerks of the arms, shoulder, or occasionally the legs), usually in the early morning, soon after awakening. The myoclonic jerks sometimes are followed by a tonic-clonic seizure....
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History of Epilepsy
No members have contributed to this topic yet. Be the first!
Welcome to the Wiki. This space is created for epilepsy.com members to share their own experiences and expertise to help refine and expand the discussion around important topics.
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Atypical Absence Seizures
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Welcome to the Wiki. This space is created for epilepsy.com members to share their own experiences and expertise to help refine and expand the discussion around important topics.
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Infantile Spasms
Infantile Spasms :Infantile spasms consist of a sudden jerk followed by stiffening. Often the arms are flung out as the knees are pulled up and the body bends forward ("jackknife seizures").
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Atonic Seizures
No members have contributed to this topic yet. Be the first!
Welcome to the Wiki. This space is created for epilepsy.com members to share their own experiences and expertise to help refine and expand the discussion around important topics.
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Vagus Nerve Stimulation
Information about the VNS can be located at the listings below for External Links
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Hypothalamic Hamartoma
Hypothalamic Hamartoma :This syndrome consists of
* abnormally early puberty
* partial seizures with laughing as a frequent feature. The partial seizures may be simple or complex and there may be secondarily generalized tonic clonic seizures.
*...
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Types of Seizures - Complex Partial
Complex Partial Seizures :These seizures usually start in a small area of the temporal lobe or frontal lobe of the brain. They quickly involve other areas of the brain that affect alertness and awareness..
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Progressive Myoclonic Epilepsies
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Frontal Lobe Epilepsy
Frontal Lobe
Epilepsy :When areas that control movement (called motor areas) are
affected, abnormal movements occur on the opposite side of the body. Seizures
beginning in motor areas can cause weakness or the inability to use certain
muscles, such...
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Rasmussen's Syndrome
Welcome to the Wiki. This space is created for epilepsy.com members to share their own experiences and expertise to help refine and expand the discussion around important topics.
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Causes of Memory Problems
No members have contributed to this topic yet. Be the first!
Welcome to the Wiki. This space is created for epilepsy.com members to share their own experiences and expertise to help refine and expand the discussion around important topics.
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Simple Partial Seizures
Focal Seizures (Partial Seizures) :Focal seizures (also called partial seizures) are seizures which are characterized by:
* preserved consciousness in simple focal seizures
* impaired consciousness (dream-like) in complex focal seizures
* experience...
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Myoclonic Seizures
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Mitochondrial Disorders
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Landau-Kleffner Syndrome
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Side Effects of Trileptal
Side effects of Trileptal, an add-on seizure medication often used as an anti-depressant are listed as the following on epilepsy.com:
dizziness
headache
tiredness
drowsiness
double vision
upset stomach
loss of coordination
*Note:...
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Sleep and Epilepsy
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Welcome to the Wiki. This space is created for epilepsy.com members to share their own experiences and expertise to help refine and expand the discussion around important topics.
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Lennox Gastaut Syndrome
Lennox-Gastaut Syndrome :The Lennox-Gastaut syndrome is very serious but uncommon. Three basic features define it:
* Generalized seizures of more than one type, which are difficult to control
* Slowness of intellectual growth and associated personality...
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Ring Chromosome 20 Syndrome
No members have contributed to this topic yet. Be the first!
Welcome to the Wiki. This space is created for epilepsy.com members to share their own experiences and expertise to help refine and expand the discussion around important topics.
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Seizure Severity
The Seizure Severity Questionnaire (SSQ) is a review of various aspects of seizures. It is brought to you as a service of Epilepsy Therapy Project. The person who has seizures may ask people who have observed the seizures (family, friends) to help answer...
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| Title | Posted | |
|---|---|---|
| Is this a seizure? | Feb 6, 2012 | |
| c1a2t19 | ||
| Feeling like a helpless parent | Feb 6, 2012 | |
| montanakate | ||
| help? :( | Feb 6, 2012 | |
| tanyalynn | ||
| help? :( | Feb 6, 2012 | |
| tanyalynn | ||
| Hearing songs | Feb 6, 2012 | |
| nsoeech | ||
| Gray Matter Heterotopia Seizures | Feb 6, 2012 | |
| libann | ||
| lamictal and tooth enamel | Feb 6, 2012 | |
| Brooke71 | ||
| Celiac Disease and seizures | Feb 6, 2012 | |
| Masterjen | ||
| ARE THERE ANY TEENAGERS ON THIS SITE | Feb 6, 2012 | |
| soundwav | ||
| auras and sexual intercourse | Feb 5, 2012 | |
| koko | ||
| View all Forums | ||
| Title | Page Views | |
|---|---|---|
| my.epilepsy.com Updates | 20,610 | |
| epi_help | ||
| topamax and weight loss | 19,311 | |
| alexia mom | ||
| kepra | 19,197 | |
| brian mattingly | ||
| Possible cure for absence seizures | 16,342 | |
| pdl1 | ||
| How exactly do aura's feel | 13,990 | |
| WendyBendy | ||
| Sexual Side Effects | 13,513 | |
| George R | ||
| MEDICAL ALERT I.D.'s | 12,427 | |
| picnupthepcs | ||
| Over 40 Different Types Of Seizures - Revised | 10,405 | |
| spiz | ||
| electrical shock in head? | 10,072 | |
| Maggie | ||
| Weight Gain and Depakote | 9,005 | |
| galinda | ||
| View all Forums | ||
| Title | Posted | |
|---|---|---|
| Epilepsy Pipeline Update Conference | Feb 6, 2012 | |
| bryan_farley | ||
| marijuana | Feb 6, 2012 | |
| ccraven | ||
| Baby Chloe's/ Mommy's Bad Day (absence seizure?) | Feb 5, 2012 | |
| 2 seizure infants | ||
| Past Life Regressions, Detox Diet, and Other Strange Musings | Feb 5, 2012 | |
| Writing Tumbler | ||
| 1st post :) | Feb 5, 2012 | |
| bethmummyofisla | ||
| Surgery To Eliminate Epilepsy | Feb 5, 2012 | |
| xyz123dpzlis | ||
| Natural Control Of Epilepsy | Feb 4, 2012 | |
| xyz123dpzlis | ||
| my partial complex seizures | Feb 4, 2012 | |
| Zanna1211 | ||
| Know How To Operate Embossing Machine | Feb 3, 2012 | |
| davidstewart1127 | ||
| My walk towards surgery | Feb 3, 2012 | |
| pfincher | ||
| View all Blogs | ||
| Title | Page Views | |
|---|---|---|
| my partial complex seizures | 4,399 | |
| Zanna1211 | ||
| Topomax... The Dreaded......... | 3,780 | |
| Dr Jason | ||
| Brain Zaps, tics & twitches | 3,579 | |
| JudiS | ||
| How can you tell if a sleep seizure happens? | 3,537 | |
| epl_controller | ||
| Feeling Sick | 3,308 | |
| JBJ1984 | ||
| side effects of phenobarb. | 3,211 | |
| pksmom | ||
| Tegretol XR and ANXIETY meds | 2,903 | |
| Butterflygrl | ||
| TYLENOL, AEDs & SEIZURES | 2,831 | |
| cmscribbles | ||
| Nonepileptic "Events" vs. "Seizures" | 2,710 | |
| teft | ||
| newborn seizure | 2,254 | |
| Sunny_80 | ||
| View all Blogs | ||
| Title | Posted | |
|---|---|---|
| Dravet Spectrum Disorder | Feb 4, 2012 | |
| mytboy | ||
| Diving with eplilepsy | Feb 1, 2012 | |
| p59 | ||
| Moms of epileptic toddlers | Jan 24, 2012 | |
| Xaviersmom2 | ||
| Autism | Jan 15, 2012 | |
| Aaron Chan | ||
| brain surgery | Dec 26, 2011 | |
| jen020309 | ||
| People in their 20's with epilepsy | Dec 7, 2011 | |
| Mandy911 | ||
| TEAM ETP | Nov 28, 2011 | |
| krisj | ||
| 24yr old male | Sep 21, 2011 | |
| Dave24 | ||
| Could I be Epileptic | Sep 13, 2011 | |
| kathygardendancer | ||
| Lamotrogine....Severe feelings of detachment, with fear of dying or going insane? | Sep 8, 2011 | |
| DazzlinDessie | ||
| View all Groups | ||
| Title | Posted | |
|---|---|---|
| For my daughter | Feb 6, 2012 | |
| britni1780 | ||
| Why can't I find out what is going on with me? | Feb 5, 2012 | |
| dgreer27 | ||
| nightime seizure | Feb 5, 2012 | |
| ishaq | ||
| my grandchild with possible panayiotopolous syndrome | Feb 5, 2012 | |
| krys | ||
| Please Read and Help | Feb 4, 2012 | |
| WALLIGAT0R | ||
| Hello. I'm new to the forum | Feb 3, 2012 | |
| Tom S. | ||
| Maxx | Feb 3, 2012 | |
| MDS2006 | ||
| Lyme Disease as a cause for seizures | Feb 1, 2012 | |
| ssidah | ||
| new member | Jan 31, 2012 | |
| cricketsgidget | ||
| Living with photo-sensitive seizures | Jan 30, 2012 | |
| photo-sense_grl | ||
| View all Stories | ||
| Title | Page Views | |
|---|---|---|
| Jessica Roiz | 2,412 | |
| kroiz | ||
| my story | 553 | |
| snoby | ||
| Temporal Lobe Epilepsy | 531 | |
| Always Have On Clean Underwear | 499 | |
| crashllama | ||
| my brain has died a thousand deaths........... | 470 | |
| banffgirl | ||
| Kelly's Life With Epilepsy | 467 | |
| kjcanada1979 | ||
| What My Seizures Are Like...... | 418 | |
| javaman | ||
| Nocturnal grand mal seizures (primary generalized epilepsy) | 389 | |
| karalyeva | ||
| Life......... | 371 | |
| dizzygal | ||
| My Daily Philosophy..... | 364 | |
| KatieFerguson88 | ||
| View all Stories | ||
