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Welcome to the epilepsy.com Wiki, where you can share your expertise and help create a community-generated encyclopedia of epilepsy information from first-hand, real-life experiences. In the listings below, you can click around to view Wikis that other users have contributed to and you can edit one yourself!
There are several ways to find a Wiki topic that interests you. One option is to use the search box below to search for specific terms that interest you the most. Alternatively, you can find Wiki topics listed under "Browse Topics” in alphabetical order, under “Latest” by the most recently edited, and under "Top 25” by the most commonly edited. You can also help review and edit those topics that other users have suggested are in need of review under "Flagged for Review".
Getting started with a Wiki is easy, but if you need more help, just click the orange "Using Wikis" button below.
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Absence Seizures
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Welcome to the Wiki. This space is created for epilepsy.com members to share their own experiences and expertise to help refine and expand the discussion around important topics.
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Ambulatory EEG
Why do I need one?
The brain’s electrical activity fluctuates from second to second, but routine EEGs provide only a 20- to 40-minute sample of this activity. If epilepsy waves occur in your brain only once every 3 or 4 hours, or if they happen only...
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Atonic Seizures
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Atypical Absence Seizures
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Welcome to the Wiki. This space is created for epilepsy.com members to share their own experiences and expertise to help refine and expand the discussion around important topics.
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5 HTP Supplements
5 HTP Supplements - 5 HTP is a forerunner to the neurotransmitter serotonin, and regulates several Vital processes in the body, including sleep, emotioal stability, pain sensitivity and addictive cravings. Buy 5 HTP at HerbsMD.com.
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Has anyone experienced OCD tendencies when weaned off of Depakote?
A few years ago, my pediatric neurologist at the time wanted to try to take me off of my medication (for about the 3rd time since being diagnosed when I was much younger in grade school). I am 24 now, and was about 21 at the time when my doctor and I discussed...
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Summary of Antiepileptic Drugs
I was very surprised in this comprehensive summary of AEDs there was no mention of the side-effects of bone loss that has been proven for at least the older AEDs. Many of us were never told and are suffering now. In the drugs I have taken, and I have taken...
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Social Security
I have been told by many people, to seek S.S.I government benefits for having epilepsy. Others seem to disagree. And Social Security wont address the question squarely.
Does anyone have any straight answers?
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Side Effects of Trileptal
Side effects of Trileptal, an add-on seizure medication often used as an anti-depressant are listed as the following on epilepsy.com:
dizziness
headache
tiredness
drowsiness
double vision
upset stomach
loss of coordination
*Note:...
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2009 AED Trials TESC ETP Pipeline Day
AET Pipeline Day
Coral Gables Florida
4/17/09
These are highly incomplete, raw notes that need editing and amplification.
Please beware, take caution and edit away! wl
1. Breviracetam Update
2. Carisbamate: JNJ: EPY 2006/ EPY 2004
• Median...
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Juvenile Absence Epilepsy
Juvenile Absence Epilepsy :All children with juvenile absence epilepsy (JAE) have absence seizures but usually they are limited to a few episodes per day. Tonic-clonic (grand mal) seizures are usually the symptom that brings the patient to the doctor...
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Driving and Epilepsy
My life isn't over if I can't drive. That much is true. I don't have a problem with living without a driver's license. There are other ways I can get around. And besides, whether you have epilepsy or not doesn't change the fact that anyone driving a car...
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Mitochondrial disease resources
Mitochondrial disease is confusing because the symptoms vary depending not only on the exact type of defect, but also on the individual. There are common features to most mitochondrial disorders, which affect both adults and children, boys and girls, of...
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DMV and licence suspension
I has seizures 16 years ago due to my brain tumor. Just last week I had another siezure. I reported it to my doctor. She reported to the DMV and said my drivers licence would be suspended for 6 months. How do I get to work?!!! How do I run errands?!!! ...
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Introduction to valproic acid: Basic
I like the name brand Depakote for nor getting the side effects,No Name (valproate,valproic acid) Generic
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Q & A Chat Transcripts
i just want to talk with people like me. It feels good to know u deal with the same fears and strengths i do
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EEG
Checking Brain Waves
EEG is the name commonly used for electroencephalography (e-LEK-tro-en-SEF-uh-LOG-rah-fee). EEG is an important test for diagnosing epilepsy because it records the electrical activity of the brain. It is safe and painless. Electrodes...
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Childhood Absence Epilepsy
Childhood
Absence Epilepsy :The seizures of childhood absence epilepsy (CAE) are
usually staring spells during which the child is not aware or responsive...
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Types of Epilepsy - Angelman Syndrome
Angelman Syndrome is a neurological genetic disorder that includes seizures/epilepsy
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Partial seizures
Focal Seizures (Partial Seizures) :Focal seizures (also called partial seizures) are seizures which are characterized by:
* preserved consciousness in simple focal seizures
* impaired consciousness (dream-like) in complex focal seizures
* experience of...
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Lennox Gastaut Syndrome
Lennox-Gastaut Syndrome :The Lennox-Gastaut syndrome is very serious but uncommon. Three basic features define it:
* Generalized seizures of more than one type, which are difficult to control
* Slowness of intellectual growth and associated personality...
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Juvenile Myoclonic Epilepsy
Juvenile Myoclonic Epilepsy :People with JME have myoclonic seizures (quick little jerks of the arms, shoulder, or occasionally the legs), usually in the early morning, soon after awakening. The myoclonic jerks sometimes are followed by a tonic-clonic seizure....
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Complex Partial Seizures
Complex
Partial Seizures :These seizures usually start in a small area of the
temporal lobe or frontal lobe of the brain. They quickly involve other areas of
the brain that affect alertness and awareness...
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Temporal Lobe Epilepsy
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Absence Seizures
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History of Epilepsy
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Infantile Spasms
Infantile Spasms :Infantile spasms consist of a sudden jerk followed by stiffening. Often the arms are flung out as the knees are pulled up and the body bends forward ("jackknife seizures").
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Vagus Nerve Stimulation
Vagus Nerve Stimulation generally lasts for 6 to 8 years before the battery needs to be replaced.
The left Vagus Nerve is used for the coil in order to not interfere with vital cardiac functions in the right Vagus Nerve.
There's a video about...
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Atypical Absence Seizures
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Atonic Seizures
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Progressive Myoclonic Epilepsies
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Hypothalamic Hamartoma
Hypothalamic Hamartoma :This syndrome consists of
* abnormally early puberty
* partial seizures with laughing as a frequent feature. The partial seizures may be simple or complex and there may be secondarily generalized tonic clonic seizures.
*...
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Juvenile Myoclonic Epilepsy
Juvenile Myoclonic Epilepsy :People with JME have myoclonic seizures (quick little jerks of the arms, shoulder, or occasionally the legs), usually in the early morning, soon after awakening. The myoclonic jerks sometimes are followed by a tonic-clonic seizure....
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Rasmussen's Syndrome
Welcome to the Wiki. This space is created for epilepsy.com members to share their own experiences and expertise to help refine and expand the discussion around important topics.
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Causes of Memory Problems
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Mitochondrial Disorders
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Ring Chromosome 20 Syndrome
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Landau-Kleffner Syndrome
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Reflex Epilepsies
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Intro to Thinking and Memory
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Frontal Lobe Epilepsy
Frontal Lobe
Epilepsy :When areas that control movement (called motor areas) are
affected, abnormal movements occur on the opposite side of the body. Seizures
beginning in motor areas can cause weakness or the inability to use certain
muscles, such...
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Myoclonic Seizures
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Seizure Severity
The Seizure Severity Questionnaire (SSQ) is a review of various aspects of seizures. It is brought to you as a service of Epilepsy Therapy Project. The person who has seizures may ask people who have observed the seizures (family, friends) to help answer...
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Sleep and Epilepsy
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Mood and Behavior Advanced
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What Provokes a Seizure?
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etpweb... etpweb... |
kdredske kdredske |
epi_help epi_help |
ETP ETP |
Joseph... Joseph... |
admin admin |
warren7 warren7 |
my0gre my0gre |
mick02 mick02 |
davemi... davemi... |
spiz spiz |
eesleyc eesleyc |
steven... steven... |
rfisher rfisher |
rebee rebee |
Spike. Spike. |
kimber... kimber... |
health... health... |
cjs84118 cjs84118 |
willsmom willsmom |
Nichol... Nichol... |
abhinay abhinay |
sallyl... sallyl... |
mpotts14 mpotts14 |
abbymom abbymom |
| Title | Posted | |
|---|---|---|
| Have I had a seizure? Any of these symptoms familiar? | Feb 9, 2010 | |
| scotchyscotch | ||
| TLE or PNES? | Feb 9, 2010 | |
| mel239 | ||
| Can bacteria be related to seizures? | Feb 9, 2010 | |
| larryz | ||
| Simple Partial Seizures and EEG/EKG | Feb 9, 2010 | |
| erkadrka | ||
| NyQuil | Feb 9, 2010 | |
| Eilliem | ||
| Can taking OTC medications for cold, flu and sinus infections result in seizures? | Feb 9, 2010 | |
| larryz | ||
| twitchy arm | Feb 9, 2010 | |
| emzclarinet | ||
| How long do your symptoms last (if they ever even go away) | Feb 9, 2010 | |
| jasssmit | ||
| Who is your personal hero? | Feb 9, 2010 | |
| phylisfjohnson | ||
| Causes of Underemployment. | Feb 9, 2010 | |
| Matthew Simington | ||
| View all Forums | ||
| Title | Page Views | |
|---|---|---|
| my.epilepsy.com Updates | 20,442 | |
| epi_help | ||
| topamax and weight loss | 18,960 | |
| alexia mom | ||
| kepra | 18,900 | |
| brian mattingly | ||
| Possible cure for absence seizures | 15,799 | |
| pdl1 | ||
| Epilepsy and marijuana | 15,559 | |
| cjad234 | ||
| Sexual Side Effects | 13,109 | |
| George R | ||
| How exactly do aura's feel | 13,010 | |
| WendyBendy | ||
| MEDICAL ALERT I.D.'s | 11,452 | |
| picnupthepcs | ||
| Over 40 Different Types Of Seizures - Revised | 10,070 | |
| spiz | ||
| electrical shock in head? | 9,454 | |
| Maggie | ||
| View all Forums | ||
| Title | Posted | |
|---|---|---|
| same dose for 6 years possible unidentified seizures | Feb 9, 2010 | |
| mash4077 | ||
| Well, I know.... (Question at bottom of blog.) | Feb 9, 2010 | |
| quesofresco | ||
| nightmares | Feb 9, 2010 | |
| becky89 | ||
| i need to vent... | Feb 8, 2010 | |
| jacky99 | ||
| michelle | Feb 8, 2010 | |
| michelle41 | ||
| Etiology of a Housebound Visionary | Feb 8, 2010 | |
| tigro65 | ||
| Anyone w/ temporal lobe epilepsy and not on medication? | Feb 8, 2010 | |
| hazel baum | ||
| MY 1ST BLOG :) | Feb 8, 2010 | |
| awalkingmiracle | ||
| I hate the hospital. | Feb 8, 2010 | |
| Shenoah | ||
| Visit to a doctor - February 2010 | Feb 8, 2010 | |
| MichaelK | ||
| View all Blogs | ||
| Title | Page Views | |
|---|---|---|
| Inspirational Quote - My Own Personal Inner Thoughts | 8,007 | |
| Butterflygrl | ||
| my partial complex seizures | 3,872 | |
| Zanna1211 | ||
| Topomax... The Dreaded......... | 3,654 | |
| Dr Jason | ||
| Brain Zaps, tics & twitches | 3,473 | |
| JudiS | ||
| side effects of phenobarb. | 3,073 | |
| pksmom | ||
| Feeling Sick | 2,929 | |
| JBJ1984 | ||
| How can you tell if a sleep seizure happens? | 2,891 | |
| epl_controller | ||
| Tegretol XR and ANXIETY meds | 2,811 | |
| Butterflygrl | ||
| TYLENOL, AEDs & SEIZURES | 2,732 | |
| cmscribbles | ||
| Nonepileptic "Events" vs. "Seizures" | 2,601 | |
| teft | ||
| View all Blogs | ||
| Title | Posted | |
|---|---|---|
| Treating Depression with Epilepsy | Feb 4, 2010 | |
| mypetitmal | ||
| Burm80 | Feb 1, 2010 | |
| burm80 | ||
| WHO NEEDS A SEIZURE ALERT DOG | Jan 19, 2010 | |
| MOMMY HOLLIE | ||
| surgery group | Dec 20, 2009 | |
| bobby chen | ||
| Parents of Adult Children with Epilepsy | Nov 22, 2009 | |
| askadis | ||
| Grandparents of grandchildren with Epilepsy | Nov 14, 2009 | |
| EmiliesGrandma | ||
| neeraj clinic, rishikesh,india | Nov 14, 2009 | |
| ankita gupta | ||
| Project Uplift | Nov 4, 2009 | |
| tamliniscute | ||
| SEIZURE FREE | Nov 3, 2009 | |
| gracie9933 | ||
| EPILEPSY SUPPORT GROUP NORTH CAROLINA | Oct 9, 2009 | |
| Roxanne D | ||
| View all Groups | ||
| Title | Posted | |
|---|---|---|
| Do I really have seizures? | Feb 9, 2010 | |
| Elmwoody | ||
| Looking for answers... | Feb 9, 2010 | |
| BSimons | ||
| Finding myself through the years | Feb 8, 2010 | |
| starlitgemini | ||
| Too many times doing the fish!!! | Feb 8, 2010 | |
| Jeffrey Resetar | ||
| My First story | Feb 8, 2010 | |
| eggcoo | ||
| my beautiful 6yr old boy | Feb 8, 2010 | |
| kaiden | ||
| My son has Rolandic Epilepsy | Feb 8, 2010 | |
| klabiche | ||
| My mother's epilepsy | Feb 8, 2010 | |
| Raymond Loh | ||
| A married man with a sick wife | Feb 7, 2010 | |
| russell11 | ||
| Many changes I had and continue to have. | Feb 7, 2010 | |
| Its Me | ||
| View all Stories | ||
| Title | Page Views | |
|---|---|---|
| Jessica Roiz | 2,294 | |
| kroiz | ||
| (TLE) seizures, insurance company denies me for health care due to epilepsy | 888 | |
| wenko | ||
| my story | 473 | |
| snoby | ||
| Always Have On Clean Underwear | 449 | |
| crashllama | ||
| Kelly's Life With Epilepsy | 421 | |
| kjcanada1979 | ||
| my brain has died a thousand deaths........... | 401 | |
| banffgirl | ||
| What My Seizures Are Like...... | 382 | |
| javaman | ||
| Nocturnal grand mal seizures (primary generalized epilepsy) | 341 | |
| karalyeva | ||
| Temporal Lobe Epilepsy | 337 | |
| Life......... | 333 | |
| dizzygal | ||
| View all Stories | ||
