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Wiki Content

Welcome to the epilepsy.com Wiki, where you can share your expertise and help create a community-generated encyclopedia of epilepsy information from first-hand, real-life experiences. In the listings below, you can click around to view Wikis that other users have contributed to and you can edit one yourself!

There are several ways to find a Wiki topic that interests you. One option is to use the search box below to search for specific terms that interest you the most. Alternatively, you can find Wiki topics listed under "Browse Topics” in alphabetical order, under “Latest” by the most recently edited, and under "Top 25” by the most commonly edited. You can also help review and edit those topics that other users have suggested are in need of review under "Flagged for Review".

Getting started with a Wiki is easy, but if you need more help, just click the orange "Using Wikis" button below.

Search Wiki Content Topics
 
example: absence seizures


Browse Topics

A|B|C|D|E|F|G|H|I|J|K|L|M|N|O|P|Q|R|S|T|U|V|W|X|Y|Z
Absence Seizures
No members have contributed to this topic yet. Be the first! Welcome to the Wiki. This space is created for epilepsy.com members to share their own experiences and expertise to help refine and expand the discussion around important topics.
Ambulatory EEG
Why do I need one? The brain’s electrical activity fluctuates from second to second, but routine EEGs provide only a 20- to 40-minute sample of this activity. If epilepsy waves occur in your brain only once every 3 or 4 hours, or if they happen only...
Atonic Seizures
No members have contributed to this topic yet. Be the first! Welcome to the Wiki. This space is created for epilepsy.com members to share their own experiences and expertise to help refine and expand the discussion around important topics.
Atypical Absence Seizures
No members have contributed to this topic yet. Be the first! Welcome to the Wiki. This space is created for epilepsy.com members to share their own experiences and expertise to help refine and expand the discussion around important topics.

Vimpat
Does anyone get a numbness in thier mouth or tougne after takimg Vimpat?
Summary of Antiepileptic Drugs
I was very surprised in this comprehensive summary of AEDs there was no mention of the side-effects of bone loss that has been proven for at least the older AEDs.  Many of us were never told and are suffering now.  In the drugs I have taken, and I have taken...
Support Groups for Teens
do you guys have a chat line???
Social Security
  I have been told by many people, to seek S.S.I government benefits for having epilepsy. Others seem to disagree. And Social Security wont address the question squarely. Does anyone have any straight answers?
Side Effects of Trileptal
Side effects of Trileptal, an add-on seizure medication often used as an anti-depressant are listed as the following on epilepsy.com: dizziness headache tiredness drowsiness double vision upset stomach loss of coordination *Note:...
2009 AED Trials TESC ETP Pipeline Day
AET Pipeline Day Coral Gables Florida 4/17/09 These are highly incomplete, raw notes that need editing and amplification. Please beware, take caution and edit away! wl 1. Breviracetam Update 2. Carisbamate: JNJ: EPY 2006/ EPY 2004 • Median...
Retigabine
Retigabine Summary:
Juvenile Absence Epilepsy
Juvenile Absence Epilepsy :All children with juvenile absence epilepsy (JAE) have absence seizures but usually they are limited to a few episodes per day. Tonic-clonic (grand mal) seizures are usually the symptom that brings the patient to the doctor...
Driving and Epilepsy
My life isn't over if I can't drive. That much is true. I don't have a problem with living without a driver's license. There are other ways I can get around. And besides, whether you have epilepsy or not doesn't change the fact that anyone driving a car...
Mitochondrial disease resources
Mitochondrial disease is confusing because the symptoms vary depending not only on the exact type of defect, but also on the individual. There are common features to most mitochondrial disorders, which affect both adults and children, boys and girls, of...
DMV and licence suspension
I has seizures 16 years ago due to my brain tumor.  Just last week I had another siezure.  I reported it to my doctor.  She reported to the DMV and said my drivers licence would be suspended for 6 months.  How do I get to work?!!!  How do I run errands?!!! ...
Introduction to valproic acid: Basic
I like the name brand Depakote for nor getting the side effects,No Name (valproate,valproic acid) Generic
Q & A Chat Transcripts
i just want to talk with people like me. It feels good to know u deal with the same fears and strengths i do
EEG
Checking Brain Waves EEG is the name commonly used for electroencephalography (e-LEK-tro-en-SEF-uh-LOG-rah-fee). EEG is an important test for diagnosing epilepsy because it records the electrical activity of the brain. It is safe and painless. Electrodes...
Childhood Absence Epilepsy
Childhood Absence Epilepsy :The seizures of childhood absence epilepsy (CAE) are usually staring spells during which the child is not aware or responsive...
Types of Epilepsy - Angelman Syndrome
Angelman Syndrome is a neurological genetic disorder that includes seizures/epilepsy
Partial seizures
Focal Seizures (Partial Seizures) :Focal seizures (also called partial seizures) are seizures which are characterized by: * preserved consciousness in simple focal seizures * impaired consciousness (dream-like) in complex focal seizures * experience of...
Lennox Gastaut Syndrome
Lennox-Gastaut Syndrome :The Lennox-Gastaut syndrome is very serious but uncommon. Three basic features define it: * Generalized seizures of more than one type, which are difficult to control * Slowness of intellectual growth and associated personality...
Juvenile Myoclonic Epilepsy
Juvenile Myoclonic Epilepsy :People with JME have myoclonic seizures (quick little jerks of the arms, shoulder, or occasionally the legs), usually in the early morning, soon after awakening. The myoclonic jerks sometimes are followed by a tonic-clonic seizure....
Hypothalamic Hamartoma
Hypothalamic Hamartoma :This syndrome consists of * abnormally early puberty * partial seizures with laughing as a frequent feature. The partial seizures may be simple or complex and there may be secondarily generalized tonic clonic seizures. *...
Febrile Seizures
Febrile Seizures :Children aged 3 months to 5 years may have tonic-clonic seizures when they have a high fever. These are called febrile seizures (usually pronounced FEB-rile) and occur in 2% to 5% of all children...

Temporal Lobe Epilepsy
No members have contributed to this topic yet. Be the first! Welcome to the Wiki. This space is created for epilepsy.com members to share their own experiences and expertise to help refine and expand the discussion around important topics.
Complex Partial Seizures
Complex Partial Seizures :These seizures usually start in a small area of the temporal lobe or frontal lobe of the brain. They quickly involve other areas of the brain that affect alertness and awareness...
Absence Seizures
No members have contributed to this topic yet. Be the first! Welcome to the Wiki. This space is created for epilepsy.com members to share their own experiences and expertise to help refine and expand the discussion around important topics.
History of Epilepsy
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Infantile Spasms
Infantile Spasms :Infantile spasms consist of a sudden jerk followed by stiffening. Often the arms are flung out as the knees are pulled up and the body bends forward ("jackknife seizures").
Atypical Absence Seizures
No members have contributed to this topic yet. Be the first! Welcome to the Wiki. This space is created for epilepsy.com members to share their own experiences and expertise to help refine and expand the discussion around important topics.
Vagus Nerve Stimulation
Vagus Nerve Stimulation generally lasts for 6 to 8 years before the battery needs to be replaced. The left Vagus Nerve is used for the coil in order to not interfere with vital cardiac functions in the right Vagus Nerve.
Hypothalamic Hamartoma
Hypothalamic Hamartoma :This syndrome consists of * abnormally early puberty * partial seizures with laughing as a frequent feature. The partial seizures may be simple or complex and there may be secondarily generalized tonic clonic seizures. *...
Progressive Myoclonic Epilepsies
No members have contributed to this topic yet. Be the first! Welcome to the Wiki. This space is created for epilepsy.com members to share their own experiences and expertise to help refine and expand the discussion around important topics.
Atonic Seizures
No members have contributed to this topic yet. Be the first! Welcome to the Wiki. This space is created for epilepsy.com members to share their own experiences and expertise to help refine and expand the discussion around important topics.
Rasmussen's Syndrome
Welcome to the Wiki. This space is created for epilepsy.com members to share their own experiences and expertise to help refine and expand the discussion around important topics.
Juvenile Myoclonic Epilepsy
Juvenile Myoclonic Epilepsy :People with JME have myoclonic seizures (quick little jerks of the arms, shoulder, or occasionally the legs), usually in the early morning, soon after awakening. The myoclonic jerks sometimes are followed by a tonic-clonic seizure....
Causes of Memory Problems
No members have contributed to this topic yet. Be the first! Welcome to the Wiki. This space is created for epilepsy.com members to share their own experiences and expertise to help refine and expand the discussion around important topics.
Mitochondrial Disorders
No members have contributed to this topic yet. Be the first! Welcome to the Wiki. This space is created for epilepsy.com members to share their own experiences and expertise to help refine and expand the discussion around important topics.
Ring Chromosome 20 Syndrome
No members have contributed to this topic yet. Be the first! Welcome to the Wiki. This space is created for epilepsy.com members to share their own experiences and expertise to help refine and expand the discussion around important topics.
Landau-Kleffner Syndrome
No members have contributed to this topic yet. Be the first! Welcome to the Wiki. This space is created for epilepsy.com members to share their own experiences and expertise to help refine and expand the discussion around important topics.
Reflex Epilepsies
No members have contributed to this topic yet. Be the first! Welcome to the Wiki. This space is created for epilepsy.com members to share their own experiences and expertise to help refine and expand the discussion around important topics.
Intro to Thinking and Memory
No members have contributed to this topic yet. Be the first! Welcome to the Wiki. This space is created for epilepsy.com members to share their own experiences and expertise to help refine and expand the discussion around important topics.
Seizure Severity
The Seizure Severity Questionnaire (SSQ) is a review of various aspects of seizures. It is brought to you as a service of Epilepsy Therapy Project. The person who has seizures may ask people who have observed the seizures (family, friends) to help answer...
Sleep and Epilepsy
No members have contributed to this topic yet. Be the first! Welcome to the Wiki. This space is created for epilepsy.com members to share their own experiences and expertise to help refine and expand the discussion around important topics.
Frontal Lobe Epilepsy
Frontal Lobe Epilepsy :When areas that control movement (called motor areas) are affected, abnormal movements occur on the opposite side of the body. Seizures beginning in motor areas can cause weakness or the inability to use certain muscles, such...
Mood and Behavior Advanced
No members have contributed to this topic yet. Be the first! Welcome to the Wiki. This space is created for epilepsy.com members to share their own experiences and expertise to help refine and expand the discussion around important topics.
Myoclonic Seizures
No members have contributed to this topic yet. Be the first! Welcome to the Wiki. This space is created for epilepsy.com members to share their own experiences and expertise to help refine and expand the discussion around important topics.
What Provokes a Seizure?
No members have contributed to this topic yet. Be the first! Welcome to the Wiki. This space is created for epilepsy.com members to share their own experiences and expertise to help refine and expand the discussion around important topics.


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