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Fri, 5/25/2012

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Wiki Content

Welcome to the epilepsy.com Wiki, where you can share your expertise and help create a community-generated encyclopedia of epilepsy information from first-hand, real-life experiences. In the listings below, you can click around to view Wikis that other users have contributed to and you can edit one yourself!

There are several ways to find a Wiki topic that interests you. One option is to use the search box below to search for specific terms that interest you the most. Alternatively, you can find Wiki topics listed under "Browse Topics” in alphabetical order, under “Latest” by the most recently edited, and under "Top 25” by the most commonly edited. You can also help review and edit those topics that other users have suggested are in need of review under "Flagged for Review".

Getting started with a Wiki is easy, but if you need more help, just click the orange "Using Wikis" button below.

Search Wiki Content Topics
 
example: absence seizures


Browse Topics

A|B|C|D|E|F|G|H|I|J|K|L|M|N|O|P|Q|R|S|T|U|V|W|X|Y|Z
Absence Seizures
What Are the Symptoms of an Absence Seizure? Because absence seizures are usually quite brief, tend to strike during times of inactivity, and closely resemble daydreaming or "being off in one's own world," they may pass unnoticed by others...
AEDs cost too much?
Check out PPARx.org  Partnership for Prescription Assistance. 1-888-477-2669.  They should be able to help you get low cost prescriptions.  I found this information from the Epilepsy Foundation of Northern California.  EFNC   Good luck!
Ambulatory EEG
Why do I need one? The brain’s electrical activity fluctuates from second to second, but routine EEGs provide only a 20- to 40-minute sample of this activity. If epilepsy waves occur in your brain only once every 3 or 4 hours, or if they happen only...
Asklepios, galanin gene therapy
Philanthropic Funding Provided by: Epilepsy Therapy Project Tx name Galanin Description Gene therapy Company Asklepios Status Pre-clinical Overview
Atonic Seizures
No members have contributed to this topic yet. Be the first! Welcome to the Wiki. This space is created for epilepsy.com members to share their own experiences and expertise to help refine and expand the discussion around important topics.
Atypical Absence Seizures
No members have contributed to this topic yet. Be the first! Welcome to the Wiki. This space is created for epilepsy.com members to share their own experiences and expertise to help refine and expand the discussion around important topics.

NeuroTherapeutics Pharma, Inc. (NTP)
Philanthropic Funding Provided by: Epilepsy Therapy Project. Tx name NTP Compounds Description Novel MOA Company NeuroTherapeutics Pharma, Inc. Status Preclinical Overview
Menopause & Epilepsy
I was diagnosed with epilepsy (with gran mal seizures) aprox 30 years ago. I put on Valproatic acid and was completely controled with these drug for 25 years. Aprox 3 years ago I began perimenopase and seizures began again... even in daytime . looking for...
Visualase, Image-guided Laser Technology for Thermal Ablation
Tx name Laser Ablation in Epilectic Foci Description Image-guided Laser Technology provides minimally invasive thermal ablation Company Visualase Overview
Fix
i got fix since i'am 14 years n nw m 24.. still the fix never stop. i take epilim chorono 500mg daily per tablet.. nw i married. m scared whether i can get pregnant or not. if so did any problem for my baby. that fix will come just a few second only. it will...
Living with epilepsy
Does anyone else get tired of hearing they can't do something because of seizures? My whole family reminds me like I have forgotten. I love them and I understand why they do what they do but the only reason I am always bright and cheerful is because I defy...
Medication & Side Effects
Has anyone had trouble with their medication and side effects? I have the craziest question, but I'm a fitness instructor and now that I'm gaining more muscle mass, less body fat, my seizure medication has been lowered but I still feel dizzy in the morning...
focal seizures from getting up too fast
I was wondering if anyone out there also experiences focal seizures from getting up too fast?  
Juvenile Myoclonic Epilepsy: Characteristics and Treatment
Juvenile Myoclonic Epilepsy :People with JME have myoclonic seizures (quick little jerks of the arms, shoulder, or occasionally the legs), usually in the early morning, soon after awakening. The myoclonic jerks sometimes are followed by a tonic-clonic seizure....
personality change
After right temporal lobe surgery to remove a tumor (benign) and a 6 year taper of lamictal, our son's personality has suffered a drastic change. Once a nice, funny family oriented person, he is now irritable, moody, at times mean and has removed himself...
Paloma, P529 Dual-TORC inhibitor
Tx name P529 Description Dual TORC inhibitor Company Paloma Status   Overview
Frequently Asked Questions
I am a 40 yr old mother of 3. I am overweight. I have tried everything I know to do as far as controlling my weight. Does anyone know what else that people with epilepsy can do so they can loose weight? I have had seizures since I was 12 yrs. old.
AEDs cost too much?
Check out PPARx.org  Partnership for Prescription Assistance. 1-888-477-2669.  They should be able to help you get low cost prescriptions.  I found this information from the Epilepsy Foundation of Northern California.  EFNC   Good luck!
Perampanel
Perampanel (E2007) Summary: Perampanel is a first-in-class AMPA-type glutamate receptor antagonist being developed by Eisai for partial onset seizures. Three global Phase III studies have been completed including 1490 patients, and Eisai indicated...
What happens from here with our 4 yr. old?!?!
I am so relieved to have found such an amazing site for my family to come and read stories much like we are going through.   Our son was diagnosed with epilepsy June 2010.  Not knowing really what that meant, they sent us on our way with a prescription...
Disability....how long does it take?
I've been disabled by my epilepsy for over 15 years.  Really, I have to wear a helmet.  I never know when my next seizure will occur.  I currently have SSI, but it took over a year to qualify.  If I didn't have someone to pay my rent, I'd be on the street. I've...
Menstruation
I started having seizures in my sleep about 2 years ago...I take medication regularly but every month about 4 to 6 days before my period I'll have a seizure in my sleep. I'm suppose to take a diffferent medication for about 4 days before..but I wonder if anything...
SmartWatch by Smart Monitor Corporation
Philanthropic Funding Provided by: Epilepsy Therapy Project. Product Name SmartWatch Description Wearable Seizure detection and alert monitor Company Location Smart...
Brain Games
IS there a place on here for brain games?  I find them helpful as my seizures are causing alot of problems wit cognition, memory, talking, etc. 
reflex sympathethetic dystrophy
does neck & shoulder pains have any thing to do with r. d.s.
CortiFlex Headset
Tx name Wireless EEG electrode cap Description ANI Headset (Electrode Cap ) Company Advanced Neurometrics, Inc. Status Phase 1 Overview

Complex Partial Seizures
Complex Partial Seizures :These seizures usually start in a small area of the temporal lobe or frontal lobe of the brain. They quickly involve other areas of the brain that affect alertness and awareness...
Absence Seizures
What Are the Symptoms of an Absence Seizure? Because absence seizures are usually quite brief, tend to strike during times of inactivity, and closely resemble daydreaming or "being off in one's own world," they may pass unnoticed by others...
Temporal Lobe Epilepsy
No members have contributed to this topic yet. Be the first! Welcome to the Wiki. This space is created for epilepsy.com members to share their own experiences and expertise to help refine and expand the discussion around important topics.
Juvenile Myoclonic Epilepsy: Characteristics and Treatment
Juvenile Myoclonic Epilepsy :People with JME have myoclonic seizures (quick little jerks of the arms, shoulder, or occasionally the legs), usually in the early morning, soon after awakening. The myoclonic jerks sometimes are followed by a tonic-clonic seizure....
History of Epilepsy
No members have contributed to this topic yet. Be the first! Welcome to the Wiki. This space is created for epilepsy.com members to share their own experiences and expertise to help refine and expand the discussion around important topics.
Atypical Absence Seizures
No members have contributed to this topic yet. Be the first! Welcome to the Wiki. This space is created for epilepsy.com members to share their own experiences and expertise to help refine and expand the discussion around important topics.
Infantile Spasms
Infantile Spasms :Infantile spasms consist of a sudden jerk followed by stiffening. Often the arms are flung out as the knees are pulled up and the body bends forward ("jackknife seizures"). Sabril (Vigabitrin) is now available in the US and...
Atonic Seizures
No members have contributed to this topic yet. Be the first! Welcome to the Wiki. This space is created for epilepsy.com members to share their own experiences and expertise to help refine and expand the discussion around important topics.
Vagus Nerve Stimulation
Information about the VNS can be located at the listings below for External Links
Hypothalamic Hamartoma
Hypothalamic Hamartoma :This syndrome consists of * abnormally early puberty * partial seizures with laughing as a frequent feature. The partial seizures may be simple or complex and there may be secondarily generalized tonic clonic seizures. *...
Types of Seizures - Complex Partial
Complex Partial Seizures :These seizures usually start in a small area of the temporal lobe or frontal lobe of the brain. They quickly involve other areas of the brain that affect alertness and awareness..
Progressive Myoclonic Epilepsies
No members have contributed to this topic yet. Be the first! Welcome to the Wiki. This space is created for epilepsy.com members to share their own experiences and expertise to help refine and expand the discussion around important topics.
Frontal Lobe Epilepsy
Frontal Lobe Epilepsy :When areas that control movement (called motor areas) are affected, abnormal movements occur on the opposite side of the body. Seizures beginning in motor areas can cause weakness or the inability to use certain muscles, such...
Rasmussen's Syndrome
Welcome to the Wiki. This space is created for epilepsy.com members to share their own experiences and expertise to help refine and expand the discussion around important topics.
Causes of Memory Problems
No members have contributed to this topic yet. Be the first! Welcome to the Wiki. This space is created for epilepsy.com members to share their own experiences and expertise to help refine and expand the discussion around important topics.
Simple Partial Seizures
 Focal Seizures (Partial Seizures) :Focal seizures (also called partial seizures) are seizures which are characterized by: * preserved consciousness in simple focal seizures * impaired consciousness (dream-like) in complex focal seizures * experience...
Myoclonic Seizures
No members have contributed to this topic yet. Be the first! Welcome to the Wiki. This space is created for epilepsy.com members to share their own experiences and expertise to help refine and expand the discussion around important topics.
Side Effects of Trileptal
Side effects of Trileptal, an add-on seizure medication often used as an anti-depressant are listed as the following on epilepsy.com: dizziness headache tiredness drowsiness double vision upset stomach loss of coordination *Note:...
Mitochondrial Disorders
No members have contributed to this topic yet. Be the first! Welcome to the Wiki. This space is created for epilepsy.com members to share their own experiences and expertise to help refine and expand the discussion around important topics.
Landau-Kleffner Syndrome
No members have contributed to this topic yet. Be the first! Welcome to the Wiki. This space is created for epilepsy.com members to share their own experiences and expertise to help refine and expand the discussion around important topics.
Lennox Gastaut Syndrome
Lennox-Gastaut Syndrome :The Lennox-Gastaut syndrome is very serious but uncommon. Three basic features define it: * Generalized seizures of more than one type, which are difficult to control * Slowness of intellectual growth and associated personality...
Sleep and Epilepsy
No members have contributed to this topic yet. Be the first! Welcome to the Wiki. This space is created for epilepsy.com members to share their own experiences and expertise to help refine and expand the discussion around important topics.
Ring Chromosome 20 Syndrome
No members have contributed to this topic yet. Be the first! Welcome to the Wiki. This space is created for epilepsy.com members to share their own experiences and expertise to help refine and expand the discussion around important topics.
Seizure Severity
The Seizure Severity Questionnaire (SSQ) is a review of various aspects of seizures. It is brought to you as a service of Epilepsy Therapy Project. The person who has seizures may ask people who have observed the seizures (family, friends) to help answer...


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Title Posted
Nocturnal seizures  
nocturnal11
Lamictal & Seizure questions - help???  
PPlex
Severe Epilepsy And Pregnancy  
AmyBoop88
7 yr old seizures and autism/hearing loss/adhd, etc  
jackjack
epilepsy and hormonal effects  
cindyloowho
Tried Potiga yet?  
tcameron
Can exercise induce seizures?  
MichaelK
Lamictal Nausea, Dizzy Spells  
karyliin6
Anyone on Lamictal AND Keppra?  
Bloodyrose
Paying for your seizure pills with no insurance?  
Tatianalee
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Title Page Views
my.epilepsy.com Updates  
epi_help
topamax and weight loss  
alexia mom
kepra  
brian mattingly
Possible cure for absence seizures  
pdl1
How exactly do aura's feel  
WendyBendy
Sexual Side Effects  
George R
MEDICAL ALERT I.D.'s  
picnupthepcs
Over 40 Different Types Of Seizures - Revised  
spiz
electrical shock in head?  
Maggie
Weight Gain and Depakote  
galinda
View all Forums

Title Posted
Update 2012 -- lots has happened!  
ninabva68
My Blog Disappeared! Can't my seizures too?  
MichaelK
SEIZURES ARE CHANGING. WHY? WHAT KIND AM I HAVING NOW? BRAIN EXPLOSION I FELT IS A MYSTERY TO ME  
ROCKNROLL
Hyperventilation & epilepsy, a way to help yourself.  
buteykomike
Medicine adjustments  
fashionlove45
NOT YELLING, VISUALLY IMPAIRED. POSTICTAL SHOPPING. ANYONE ELSE WITH THIS PROBLEM? TBI AND SHOPPING  
ROCKNROLL
Seizures and medical marijuana  
seizureprone134
being unigue and being hypocrite  
futuer poet
Coming out?  
fashionlove45
RWAY40  
rway40
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Title Page Views
my partial complex seizures  
Zanna1211
Topomax... The Dreaded.........  
Dr Jason
Brain Zaps, tics & twitches  
JudiS
How can you tell if a sleep seizure happens?  
epl_controller
Feeling Sick  
JBJ1984
side effects of phenobarb.  
pksmom
Tegretol XR and ANXIETY meds  
Butterflygrl
TYLENOL, AEDs & SEIZURES  
cmscribbles
Nonepileptic "Events" vs. "Seizures"  
teft
newborn seizure  
Sunny_80
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Title Posted
Imagining the past  
jrgeorge
Feeling Epilepsy as a part of Life.......  
Avnish
My life with epilepsy  
BigTom_85
I thought there was nothing wrong  
Mendoza87
New to this  
kitkat2503
Is it Emotional  
frustrated1965
Adjusting with the thought of epilepsy after misdiagnosis for over 20 years  
goofyheather
Continuing with life  
nastaran
Working my life around having epilepsy  
1505loupylou
The frustration of not knowing exaclty what is wrong...  
cag122
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