In 1996 a study of the information on epilepsy given to newly diagnosed patients (Preston 1997) discovered that rarely, if ever, was the risk of SUDEP mentioned....
Take control of your epilepsy and seizures. Seizure management has never been easier.
TAKE CONTROL TODAYETP New - Accessing information
Created by ETPat12/05/2005 - 1:55pm|203 Views In 1996 a study of the information on epilepsy given to newly diagnosed patients (Preston 1997) discovered that rarely, if ever, was the risk of SUDEP mentioned....
|
ETP New - Certifying SUDEP
Created by ETPat12/05/2005 - 1:51pm|209 Views Epilepsy has long been recognised and invoked as a significant ingredient in the mechanism of sudden unexpected death, particularly in the setting of status seizures, trauma, drownings and aspiration of gastric content. However, a...
|
ETP New - Communicating Risk
Created by ETPat12/05/2005 - 1:56pm|178 Views Very often, how a message is given is more important than the content of the message itself. How many times have you been upset with someone, not for what they said, but how they said it? The same is true when talking about SUDEP....
|
ETP New - Considering medico-legal issues
Created by ETPat01/26/2006 - 9:50am|235 Views SUDEP is essentially an unavoidable complication of epilepsy. It is not experienced as a consequence of something which the doctor has, or has not, done. A recent audit of a single clinic’s experience of SUDEP identified the most...
|
ETP New - Determining the right to know
Created by ETPat01/26/2006 - 9:52am|184 Views The law on medical negligence in the UK relies heavily on the Bolam test whereby a doctor is not negligent (i.e. does not breach the legal standard of care) where their practice is supported by a reasonable body of similar professionals....
|
ETP New - Does SUDEP Occur in Children?
Created by ETPat12/05/2005 - 1:54pm|336 Views There has been much recent discussion as to whether SUDEP exists as an entity in children. Two epidemiological studies have suggested this to be rare; however, the National Sentinel Clinical Audit of Epilepsy-Related Deaths (Hanna,...
|
ETP New - Educating Health Professionals
Created by ETPat01/26/2006 - 9:55am|207 Views The epilepsy community is striving to change the public discourse about seizures and draw attention to epilepsy as a health problem that can yield serious and devastating consequences. Two years ago, the Epilepsy Foundation, the American...
|
ETP New - Empowering the Global Community
Created by ETPat12/05/2005 - 1:56pm|161 Views Epilepsy.com is an online resource provided by The Epilepsy Therapy Development Project. Our mission is to inform and empower two groups of patients and their families: those facing newly diagnosed epilepsy, and those struggling with...
|
ETP New - Facing the Facts
Created by ETPat12/05/2005 - 1:47pm|555 Views In this section we will look at the facts about SUDEP like:
SUDEP and the post mortem
Certifying SUDEP
Guidance on SUDEP: clinical practice
...
|
ETP New - Facing the Future
Created by ETPat01/26/2006 - 10:06am|316 Views This section provides information about SUDEP in the following countries:...
|
