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Have you ever heard of Geoff Smith?  If you spend any time on the Internet then you probably have.  He does all sorts of work for some really famous podcasters such as Leo Laporte, Adam Curry, iJustine, etc.  He's an Internet...

Hello Everyone, My mom and dad took me to see Harry Potter & the Half Blood Prince today.  It was great!  I love the intense sound and visuals on the big screen.  I'm glad my E isn't photo sensitive.  My Grandmom is...

Hello Everyone, I'm home and enjoying the comforts of my own house.  Yesterday was pretty much a lazy day for everyone in my family as were all exhausted after being in the hospital for the past week. I've got some new...

Hello Everyone, Well my dad and I finished week 4 of our Marathon training calendar with a long run of 9 miles on Saturday.  My dad and I will be running the 2009 St Jude Marathon in Memphis.  He's going to be pushing my wheelchair...

Hello All, I am working on a site that chronicles my journey through E in order to help other children like me.  I would love suggestions, feedback, advice, or anything that you think could help children understand this illness...

Hello Again, I just wanted to let you all know I'm doing well.  My recovery is going extremely well.  I've been eating and crawling and doing all the things I used to do before my Corpus Callosotomy.  My dad even took me...

Hello All, Well we've had a Flip UltraHD for a few weeks now and it's a great little camera that does way more that $199 camcorder should.  You've surely seen how great the video is if you've been over to visit www.xaviersjourney.org. ...

Hello again, I hope you all had a great Wednesday and July is bringing you good fortunes and your E is at bay.  My Pop Pop came to visit me today which is great because my parents can really use a break.  As I said earlier...

Hello All, Today was a pretty good day although I've got some swelling around my incision on the top of my head.  Dad called my neurologist and they said it's likely hydrocephalus and that we must keep an eye on it.  If any...