In 1996 a study of the information on epilepsy given to newly diagnosed patients (Preston 1997) discovered that rarely, if ever, was the risk of SUDEP mentioned....
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View Editorial Pages for Tag:
“SUDEP”
 ETP New - Accessing information
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ETP New - Australia
Australian epilepsy organisations began to face the issue of SUDEP around nine years ago. Initially the most pressing need was to provide support for bereaved people seeking answers as to why a death had occurred. The unexpected loss...
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ETP New - Can Children Die From Epilepsy?
Seeing your child have a seizure is frightening. Many parents fear that their child could die during a seizure. The doctor may have tried to reassure you by telling you that children who are generally healthy will not die as a result...
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ETP New - Canada
In Canada, the incidence of SUDEP has not been evaluated. Epilepsy Canada reported that the incidence of SUDEP was lower than the one for asthma, a condition with much less taboo than epilepsy. The incidence was higher than for Sudden...
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ETP New - Chile
It is known that the mortality in epilepsy is two or three times higher than in the general population, but in Chile we do not have studies about it. This situation gets more difficult due to the lack of precision in the death certificates...
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ETP New - China
According to the reports of the World Health Organisation, there are around 50 million people with epilepsy (PWE) in the world, including 40 million patients in the developing countries. Of these people, 60-90% do not receive medical...
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ETP New - Communicating Risk
Very often, how a message is given is more important than the content of the message itself. How many times have you been upset with someone, not for what they said, but how they said it? The same is true when talking about SUDEP....
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ETP New - Considering medico-legal issues
SUDEP is essentially an unavoidable complication of epilepsy. It is not experienced as a consequence of something which the doctor has, or has not, done. A recent audit of a single clinic’s experience of SUDEP identified the most...
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ETP New - Cuba
Despite the fact that some articles and books have been published in Cuba dealing with Sudden Death, only three articles relate it to epilepsy (González Pal S et al. 1982, 2004, 2005). These articles include patients suffering from...
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