In 1996 a study of the information on epilepsy given to newly diagnosed patients (Preston 1997) discovered that rarely, if ever, was the risk of SUDEP mentioned....
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TAKE CONTROL TODAYETP New - Accessing information
Created by ETPat12/05/2005 - 1:55pm|203 Views In 1996 a study of the information on epilepsy given to newly diagnosed patients (Preston 1997) discovered that rarely, if ever, was the risk of SUDEP mentioned....
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ETP New - Australia
Created by ETPat01/26/2006 - 10:16am|226 Views Australian epilepsy organisations began to face the issue of SUDEP around nine years ago. Initially the most pressing need was to provide support for bereaved people seeking answers as to why a death had occurred. The unexpected loss...
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ETP New - Can Children Die From Epilepsy?
Created by ETPat12/29/2006 - 7:36am|686 Views
Seeing your child have a seizure is frightening. Many parents fear that their child could die during a seizure. The doctor may have tried to reassure you by telling you that children who are generally healthy will not die as a result...
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webmaster New - Causes of Death Among People with Epilepsy in the Developing World
Created by webmasterat08/09/2011 - 6:48am|63 Views
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ETP New - Certifying SUDEP
Created by ETPat12/05/2005 - 1:51pm|209 Views Epilepsy has long been recognised and invoked as a significant ingredient in the mechanism of sudden unexpected death, particularly in the setting of status seizures, trauma, drownings and aspiration of gastric content. However, a...
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ETP New - Chile
Created by ETPat12/12/2006 - 12:03pm|186 Views It is known that the mortality in epilepsy is two or three times higher than in the general population, but in Chile we do not have studies about it. This situation gets more difficult due to the lack of precision in the death certificates...
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ETP New - Communicating Risk
Created by ETPat12/05/2005 - 1:56pm|177 Views Very often, how a message is given is more important than the content of the message itself. How many times have you been upset with someone, not for what they said, but how they said it? The same is true when talking about SUDEP....
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ETP New - Considering medico-legal issues
Created by ETPat01/26/2006 - 9:50am|232 Views SUDEP is essentially an unavoidable complication of epilepsy. It is not experienced as a consequence of something which the doctor has, or has not, done. A recent audit of a single clinic’s experience of SUDEP identified the most...
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ETP New - Does SUDEP Occur in Children?
Created by ETPat12/05/2005 - 1:54pm|333 Views There has been much recent discussion as to whether SUDEP exists as an entity in children. Two epidemiological studies have suggested this to be rare; however, the National Sentinel Clinical Audit of Epilepsy-Related Deaths (Hanna,...
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