Mimi was born on june 21, 1995.

Apparently a healthy baby, almost 8 lbs and 21 inches long.

Mimi always appeared delayed. But when I asked the pediatrician about her delays, she always presented herself "borderline" delayed.

At 1 1/2 years old Mimi suffered her first seizured. It appeared to be a febrile seizure, until the seizures started to occur without the onset of a fever.

We started our journey of going from doctor to doctor.

Finally, we found a neurologist in NYC who started testing Mimi to see if she did have epilepsy or not. In our family background no one has ever had epilepsy.

After an MRI, a CT scan, several blood samples, and video monitors, the doctor concluded, Mimi had epilepsy.

Now, the difficult task was to see which form of epilepsy she had.

Currently,she is diagnosed as having Astatic Epilepsy of Doose.

She ranges from body drops, to head drops, once in a while gran mal(if she has a high fever), plus absence seizures.

Finding the right medication has been a challenge to the doctors treating her.

She has been on at least 10 different medications. We are running out of medications for her uncontrollable seizures.

Currently, she takes Keppra, Depakote, Carnitor, and Clobazam.

Clobazam has been working very well, but according to Customs, since the medication comes from Canada, they are confiscating the Clobazam until I speak to the FDA for special consideration.

Mimi's silent world refers to her lack of speech. She is not deaf or mute, but lacks the ability to speak. She makes sounds and yells. On occassion she might say a word, but it is quickly forgotten.

She will be 11 years old soon.

Entering puberty will be quite a challenge for all of us at home.

Hopefully, we will get through it.