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People Stories

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Share your story with friends, family and our community. Talk about your interests and experiences while sharing your photos and podcasts. Spread the word about your pages so other users can post guestbook entries, read your blog, and learn more about you! Customize your space however you wish! Begin creating your own Story by clicking the orange button below. Not ready yet? Use the links below to browse through others' Stories and learn more about your fellow epilepsy.com members! (Please note that any People Stories created on epilepsy.com prior to November 2007 can be found in the People Stories Archive.) Learn more in our People Stories Help Section.

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People Stories Index

 
june03
june03
New - Along came a hurdle
Created by june03at10/11/08 - 12:39 am|4 Views
I wake up every morning and wonder what my day will be like, and I never use to do that until I became sick. And because of that horrible night , I wonder soemtimes a little too much.

Lovebuggs
Lovebuggs
New - My Epilepsy and effects on my life.
Created by Lovebuggsat10/10/08 - 8:31 pm|1 View
This is a story about my epilepsy and how in 6 months it has taken over my life and effected me in so many ways.

dyanna
dyanna
New - My name is Dyanna & this is my story with Epilepsy
Created by dyannaat10/10/08 - 2:34 pm|2 Views
My name is Dyanna & I am a mother of 2 beautiful children who are the highlights of my day! I eBay for a living. I recently decided to start a foudation to benefit Women with Epilepsy in my area. We do not have an area Epilepsy Foundation close and there...

Lemondrop
Lemondrop
New - Emily's epilepsy story
Created by Lemondropat10/10/08 - 9:57 am|6 Views
Emily is a 3 year old girl with autism and new onset seizures.

deonyc...
deonyc...
New - SILENT BUT DEADLY...
Created by deonyc...at10/10/08 - 9:06 am|6 Views
I AM LIVING WITH SILENT SEIZURES

nitya
nitya
New - Diagnosed of epilepsy,but reports seem normal.
Created by nityaat10/10/08 - 8:57 am|3 Views
My sister has an epileptic problem from the last 4 years. She has had seizures for 24 times since then

AuntAnna
AuntAnna
New - newly diagnosed
Created by AuntAnnaat10/9/08 - 12:58 pm|13 Views
 i am 33 and newly diagnosed with Generalized Tonic Clonic Epilepsy

nareema
nareema
New - living with epilepsy..
Created by nareemaat10/9/08 - 9:50 am|8 Views
my name is nareema hajj..31 years old female..living with epilepsy since age of 17..

elijah...
elijah...
New - Mr
Created by elijah...at10/9/08 - 9:33 am|3 Views
Hi guys, I hope you are well. I am a graduate student at Kenyatta university taking graduate studies in sports science (Exercise physiology). I have selected a topic going this way "The effects of physical activities and exercise on youths with...

skohtz
skohtz
New - sEE52
Created by skohtzat10/9/08 - 7:34 am|3 Views
i have complex partial seizures

suzie d
suzie d
New - my children
Created by suzie dat10/9/08 - 3:37 am|4 Views
two children23 and 14, son 14 global development delay daughter 23 just discovered shes pregnant

stfrec...
stfrec...
New - My son's seizures are out of control!
Created by stfrec...at10/8/08 - 1:15 pm|2 Views
My son was  diagnosed with epilepsy almost a year ago.  We went 6 months without having any seizures and now we can't even go half a day without one.

Dustin...
Dustin...
New - My daughter and her battle with Tuberous Sclerosis tsc-1
Created by Dustin...at10/7/08 - 9:42 pm|2 Views
Ashlee's Battle with Tuberous Sclerosis

precio...
precio...
New - My daughter Sarah and her life with epilepsy and seizures
Created by precio...at10/7/08 - 9:26 pm|3 Views
My daughter Sarah is currently a very energetic 6 year old. She loves to play with her friends and enjoys playing soccer with our local YMCA. 

tena
tena
New - losing hope
Created by tenaat10/7/08 - 10:16 am|8 Views
Epilepsy and learning disabilities from age 9 to 18 is there any hope or relief to be found for sufferers

sincer...
sincer...
New - Sin'Cere Seizures
Created by sincer...at10/7/08 - 8:40 am|3 Views
My son Sin'Cere had his first seizure at the age of two at which they got worse by the time he was 5yrs of age this is a mothers cry for need of understanding a condition better know as epilepsy

ehedst...
ehedst...
New - My hero
Created by ehedst...at10/7/08 - 7:58 am|6 Views
My 11 year old brother has had epilepsy since he was born, and has been my biggest inspiration of courage, and strength.

annam
annam
New - My Son's Healing Journey with alternative therapies.
Created by annamat10/6/08 - 12:51 pm|5 Views
My Son has had seizures since the age of 10 years old. At one point , Ty, was being treated in the hospital for 3 months having 50 seizures daily. Medicines were not controlling the activity so I began researching alternative therapies. He now only has a...

jorgebeth
jorgebeth
New - My little sunshine
Created by jorgebethat10/6/08 - 9:50 am|2 Views
One year is already past, and we still working!

dupuisjr
dupuisjr
New - SURPRISE
Created by dupuisjrat10/5/08 - 7:51 pm|9 Views
Out of nowhere E jumped on me.

cherylr6
cherylr6
New - I had my first seizure- any chance this is just a precursor to my developing super powers?
Created by cherylr6at10/4/08 - 4:55 pm|4 Views
I had my first seizure at age 38. I have tenatively been diagnosised as having epilepsy. We are waiting to see how this goes before we start medication.

linmarie
linmarie
New - Keppra
Created by linmarieat10/4/08 - 2:46 pm|8 Views
5 yr old son with epilepsy

christ...
christ...
New - normal life?
Created by christ...at10/4/08 - 11:54 am|5 Views
christine /european person 26 years old junior lawyer

Dr.Ofe...
Dr.Ofe...
New - Dr.Ofembe Cornelius
Created by Dr.Ofe...at10/4/08 - 3:40 am|6 Views
Dear Friends.                      I am from Cameroon.From the North West Province in Momo Division.My village is called Teze.In my village about  45% of the children between the ages of 12-25 are epileptic.My jenior sister had epilepsy...

babygi...
babygi...
New - epilepsy is still my # 1 cause........
Created by babygi...at10/3/08 - 5:55 pm|12 Views
lose ur best friend and then u see things in a whole new way...

jenn1217
jenn1217
New - Too disabled to drive, but not to work?
Created by jenn1217at10/3/08 - 4:42 pm|9 Views
Recently saw neurologist to get news I already knew.

pants
pants
New - hallucinations
Created by pantsat10/3/08 - 9:53 am|3 Views
This describes my post epileptic experience of hallucinations, hearing voices and music

twilight
twilight
New - 44yrs seizures
Created by twilightat10/3/08 - 7:33 am|14 Views
a lifetime of seizures

yyyyytab
yyyyytab
New - My life with seizure
Created by yyyyytabat10/2/08 - 11:43 pm|1 View
My life with the little devil

ferg75
ferg75
New - Seizures for nine years and the can't find the source
Created by ferg75at10/2/08 - 6:43 pm|2 Views
 On September 9th 1999 at 3:14pm., I gave birth to my first son Seth and there were complications during the pregnancy and delivery.  To this day genetics say it is not the cause of my son’s condition, and neurologist's can't find the source.

seakats
seakats
New - My Tale of Woe
Created by seakatsat10/2/08 - 5:53 pm|7 Views
This is how I came to have complex partial seizures in my left temporal loble.  I was officially diagnosed with TLE on 9/18/08 after a long 8 year battle of misdiagnoses.

Dee1
Dee1
New - Myoclonic Jerks
Created by Dee1at10/2/08 - 5:30 pm|11 Views
I'm new to this so pleas bare with me, but I'm hoping that any response that I recieve from anybody out there in this huge world that we live in will help me try and understand all of this mess just a little bit better.

jehobi...
jehobi...
New - 7 years of frustration
Created by jehobi...at10/2/08 - 7:57 am|14 Views
My story

capeco...
capeco...
New - Years of Searching For a Diagnosis
Created by capeco...at10/1/08 - 10:03 am|19 Views
I  can't find anyone that has the same symptoms as me.  I am diagosed with TLE but even when I read about that, everthing that happens to me doesn't seem to fit.

sexyho...
sexyho...
New - new to this
Created by sexyho...at9/30/08 - 8:25 pm|20 Views
If anyone has any idea about this please contact me

Enda
Enda
New - NO, I'M NOT: "Diabetic", "Crazy", "On Drugs", "Having A Fit" - I HAVE A SEIZURE DISORDER! :)
Created by Endaat9/30/08 - 5:26 pm|17 Views
Complex Partial Seizures  - I can always feel them coming on and try to get to a safe quiet place currently taking Keppra 250 mg x 2/Day

a323mo...
a323mo...
New - Evolution is LATE! (PARTIAL) Trisomy 15 & Uncontrolled Generalized Seizures.
Created by a323mo...at9/30/08 - 5:20 pm|8 Views
Our Daughter has (partial) Trisomy 15 with uncontrolled generalized seizures. How to make the executive disision?

emilyp...
emilyp...
New - Emily's Brain - using more electricity than necessary!
Created by emilyp...at9/30/08 - 4:02 pm|9 Views
35 year old RN in Colorado wondering if the seizures will ever stop! Frustrated with the doctors and medications and lack of transportation options to get to work! Have a VNS now, but it seems that it is only working to control the petit mal seizures that...

sularry
sularry
New - grand mal seizures
Created by sularryat9/30/08 - 2:29 am|8 Views
My first seizure was at 17. About 27 years ago. I had been taking Dexatrim (otc diet pills- speed really) like it was goin out of style. I think that is what caused the first one. If memory serves me, my next one might have been like two years later. My...

KatieF...
KatieF...
New - My Daily Philosophy.....
Created by KatieF...at9/29/08 - 11:22 pm|37 Views
My life as it has been so far with epilepsy.....and how I am coping with it....and what I would like others to take away from my experience with Epilepsy....

DBL
DBL
New - Nocturnal Only Seizures
Created by DBLat9/29/08 - 7:31 pm|16 Views
I have been having nocturnal only seizures all my life, I am now in my late 50's.....  I would like to talk with someone who shares the same profile ... see details below ....  in my story content section ... donleathe@comcast.net

mbemboom
mbemboom
New - New to this whole topic
Created by mbemboomat9/29/08 - 12:50 pm|12 Views
My Fiancee was just diagnosed after having several seizures in the last 2 years. 

Anwer ...
Anwer ...
New - Head injury / Traumatic Brain injury Pakistani patients Jawad Pasha 26 with Epilepsy/Seizure
Created by Anwer ...at9/28/08 - 2:13 pm|19 Views
Jawad Pasha injured in 2004.was found at one hospital in critical condition.Doctors said,"no hope"He is diaghosed as Presistent Vegitative State,He is also suffering with Epilepsy.But he is amomg only fewin the world who are improving.Tragedies meanwhile...

ak2006
ak2006
New - my epilepsy since it started.
Created by ak2006at9/28/08 - 5:48 am|12 Views
a few of the szrs i have had and some side effects/ warnings

majormana
majormana
New - my expeince
Created by majormanaat9/27/08 - 3:55 pm|8 Views
22 yr old learning and dealin wit seziures

msball...
msball...
New - Hailey's Story
Created by msball...at9/26/08 - 12:05 pm|4 Views
The doctor has put terms like "lennox-gasteaut syndrom" and "Dravet's Syndrom" on the table. He wouldn't go into any detail until we get blood work done and he reviews the video-EEG. We are scared to death as to what lies ahead of...

Vijay ...
Vijay ...
New - Anulika's West Syndrome
Created by Vijay ...at9/26/08 - 2:02 am|30 Views
My grand daughter Anulika was born on 5th October 2007 at 19.53 hours at Ranchi, India. She started having  convulsions in April 2008. The doctors at Ranchi thought that it was becuse of some promblem in the stomach. On 12 th June 2008 she was shown to Dr....

JMR050
JMR050
New - 17 years old, withepleptic seizures of partial and secondary generalized seizures*
Created by JMR050at9/25/08 - 5:09 pm|9 Views
Hi I'm jessica, I'm 17 years old and have had epilepsy for five years.  I have partial and secondary generalized sizures. I'm new to this chat room and would love to meet some new friends, who expierence  seizures aswell.

selmurphy
selmurphy
New - My teen with JME
Created by selmurphyat9/25/08 - 10:40 am|7 Views
6 years of undetected epilespy Regular EEG BEAM testing light filtering through trees hereditary

mimosaamk
mimosaamk
New - Daniel
Created by mimosaamkat9/25/08 - 9:42 am|6 Views
Understanding PNES and dealing with it.


People Story Activity