How I deal with my epilepsy, how it started, etc.
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Share your story with friends, family and our community. Talk about your interests and experiences while sharing your photos and podcasts. Spread the word about your pages so other users can post guestbook entries, read your blog, and learn more about you! Customize your space however you wish! Begin creating your own Story by clicking the orange button below. Not ready yet? Use the links below to browse through others' Stories and learn more about your fellow epilepsy.com members! (Please note that any People Stories created on epilepsy.com prior to November 2007 can be found in the People Stories Archive.) Learn more in our People Stories Help Section.
Because these are your stories, submitted directly by you, they are not necessarily the opinions or positions of epilepsy.com. We suggest that you do not recommend medical or potentially harmful alternative treatments to others; because everyone's medical condition is individual.sweett... New - Epilepsy does not control my life
Created by sweett...at7/2/09 - 11:32 pm|1 View How I deal with my epilepsy, how it started, etc.
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scott ... New - Police Officer Discharged Regarding Seizures
Created by scott ...at7/2/09 - 1:56 pm|2 Views Not allowed back to work in fear of seizures as a police officer. No seizure in 2.5 years and feel great.
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kimber... New - JAN 26,2006 CHANGED MY LIFE FOR GOOD
Created by kimber...at7/2/09 - 6:56 am|1 View MY JOUNEY THROUGH EPILEPSY
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Bystander New - Concerned Bystander
Created by Bystanderat7/1/09 - 5:34 pm|2 Views Accidents happen - but they can be prevented. I'm a mother and grandmother who is concerned about folks with epilepsy who tend to have a false sense of security in driving without continuous follow-up on medication and treatment monitoring.
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dennyxx82 New - temporal lobe epilepsy
Created by dennyxx82at7/1/09 - 4:43 am|9 Views how long is the operation
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Runnin... New - Epilepsy is now part of my life
Created by Runnin...at6/30/09 - 3:36 pm|12 Views I am a 40 year old female in Ontario, Canada. I've had this condition since the age of 8. It just developed in me - it wasn't caused by illness or a head injury. I am educated in bookeeping/accounting but now work part time in a fitness fascility. ...
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unicorn26 New - MY NEW LIFE WITH EPILEPSY!
Created by unicorn26at6/29/09 - 10:14 pm|12 Views In 2007 I suffered 6-8 mini strokes which caused me to have both seizures nearly daily as well as other medical problems. I have turned inot a hermit. I rarely see my Grandchildren anymore and 4 of the 6 live 35 min away. My son-in- law is afraid I will have...
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dannie... New - Track Day
Created by dannie...at6/28/09 - 12:55 am|9 Views
The first time seizures happend to me,,
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Magali New - My son's seizures
Created by Magaliat6/27/09 - 7:07 pm|3 Views My son has seizures and having side effects due to phenobar
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mjecker New - Looking for best meds for tonic/clonic for 51 yr. female
Created by mjeckerat6/25/09 - 8:03 am|6 Views
Have some other medical issues but had never had seizure. Unsure what to do next. Dr. & Neur advice conflicts. I had serious side effects from Topamax, Gabapentin which was not prescribed for seizure disorder.
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JValin... New - Endless Nightmare
Created by JValin...at6/25/09 - 1:24 am|13 Views A brief introduction into my nightmare, that is called epilepsy.
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elisasmom New - My daughter Elisa 20 yrs old and diagnosed with JME
Created by elisasmomat6/24/09 - 9:17 pm|6 Views Over 2 years ago my daughter Elisa, 20 years old at the time began having Grand Mal -Tonic Clonic seizures with no warning. She was away at college, about 80 miles from home. Living under stress, working part-time, full time student. She continued having seizures...
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freed New - crf
Created by freedat6/23/09 - 6:59 pm|4 Views I had the first Gran Mal Seizure when I was 54 years old. Also, every 5 years I have another seizure. Seizure appears to change each year and is always short or longer then 5 years. So far no medicine was given to me to try to stay the Seizure. ...
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adelle New - My Long History of Absence Seizures
Created by adelleat6/23/09 - 6:33 pm|4 Views I was diagnosed with Petite Mal epilepsy at the age of about 11 and still have it after 47 years.
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Natali... New - 16 year old on switched to keppra
Created by Natali...at6/23/09 - 3:36 pm|6 Views
Depression, agitation while on depakote , Wondering if Keppra will be worse
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dansmo... New - No support system
Created by dansmo...at6/23/09 - 6:14 am|11 Views Daniel has had 3 tonic clonic seizures. His seizures are mostly related to lack of sleep. We believe his seizures are caused from an accident when he was 8 yrs old. He had a slight concusion. Then he was kicked in the chest by a small horse when he was 17....
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relei01 New - EFFECT of Caffeine to my EEG results?
Created by relei01at6/22/09 - 8:01 pm|9 Views effect of caffeine to my EEG results?
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Kahentiio | ||||
blueye... New - My Story
Created by blueye...at6/21/09 - 4:31 pm|5 Views My Name is Amy and I am 24 years old and I suffer from Epilepsy. I live with my two children and loving husband of 3 years. We live in an a apartment in Fort Collins, Colorado.
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jeffsa... New - I am a man with Epilepsy it doesn' have me!
Created by jeffsa...at6/21/09 - 4:05 am|9 Views Tonic Clonic Complex Partials
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heayacap New - same ol', same ol'...
Created by heayacapat6/19/09 - 11:44 am|4 Views I am an identical twin with gran mal & petit mal seizures. We both have it, both take Laimctal & Depakote. Same DNA, blah, blah, blah. So why is mine worse than hers?
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Chitown44 New - My special needs son
Created by Chitown44at6/18/09 - 10:40 pm|4 Views Raising a son who is autistic and suffers from seizures
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nashima26 New - Seizures
Created by nashima26at6/18/09 - 2:45 pm|2 Views trying to find out what type of seizure or epilepsy my sister is having
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Evelyne New - Does this sound like epilepsy?
Created by Evelyneat6/18/09 - 12:19 pm|22 Views Have had feelings of deja vu for about ten years and recently had a grand mal seizure.
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Jaiden... New - Our story
Created by Jaiden...at6/18/09 - 8:58 am|4 Views This is the story about my daughter JaidenDawn who at this time is 2 and was born June of 2007
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jmbrook New - Mom of 2 diagnosed with seizure disorder at 37
Created by jmbrookat6/18/09 - 8:10 am|5 Views Mother of 2 diagnosed with seizure disorder at 37 after experiencing a grand mal seizure while shoe shopping with my 8 year old daughter. Have been having tremors, twitches, migraines and petit mal seizures for several years without recognizing the symptoms. ...
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mikest... New - Uncontrolled Sporadic Tonic-Clonic Seizures
Created by mikest...at6/16/09 - 11:44 am|7 Views
My experience with epilepsy.
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stacey... New - New Experience while having Epilepsy since I was 10 years old and now I am 49 years old
Created by stacey...at6/15/09 - 8:06 pm|8 Views
Anyone known with having Epilepsy since they were a kid and now at the age of 49 I have a Stroke!
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Cajunjay New - Everyday Is Exactly The Same
Created by Cajunjayat6/15/09 - 5:25 pm|11 Views This is my story I don't know or think it will help anyone very much.
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cccrrt New - Menopause Epilepsy
Created by cccrrtat6/15/09 - 12:21 pm|14 Views
When I started going thru menopause I started having seizures. Never before had I had a seizure.
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gamilh New - How my life was when i had epilepsy
Created by gamilhat6/15/09 - 11:07 am|6 Views I was diagnosed with epilepsy at the age of 2, then at the age of 16 i had the operation that changed my life.
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caw New - Successful treatment for eyelid myoclonia?
Created by cawat6/15/09 - 7:39 am|4 Views 20 yr old Looking for control to be able to drive
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pauliej New - My 5 Year Old Son - How he developed Complex Partial Seizures
Created by pauliejat6/14/09 - 9:03 pm|24 Views Unexplained seizures, complex partial seizures, trileptal
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proudm... New - cammi's fight
Created by proudm...at6/14/09 - 7:20 pm|1 View well cammi has had seizures since she was 2 days old. she is now doing now doing very well but is back on phenobarb and about to start the ketogenic diet.
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sevans59 New - Flash and freeze
Created by sevans59at6/14/09 - 9:54 am|6 Views Freezing of visuals and consciousness with strange 'momentary' hallucination.
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LindaJean New - my son rylee
Created by LindaJeanat6/13/09 - 11:17 pm|5 Views in this story you will get to know my son
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butter... New - plz pray 4 me!!!!
Created by butter...at6/13/09 - 7:24 pm|5 Views
I hv had Epilepsy since I was 5 mo. old. I hv petit mal seizures. I will b 36 nxt month. I hv alot of sz (seizures)
a month 3 or 4 . my dr. whos in Omaha wants me to hv a Vido EEG. I hv 2 stay over night in the hospital 4 abt. a weeek.
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shirle... New - Shirley's Story
Created by shirle...at6/12/09 - 9:02 pm|9 Views I had 1 seizure August 19,2006 and haven't had one sence.
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carlat... New - Comfused
Created by carlat...at6/11/09 - 7:48 pm|12 Views
After having surgery to remove a large colloid cyst from the third ventricle of my brain...I had a small stroke. I was left with left side paralysis and epileptic seizures. I am now able to use my entire left side and have no after effects except for...
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lanie New - Meet My Son
Created by lanieat6/11/09 - 11:24 am|8 Views My son, whose name is Trever, just recently started experiencing seizures, this is our story.
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jacelyn New - Dissertation Topic for Medical Practitioners: Epilepsy
Created by jacelynat6/10/09 - 6:09 pm|6 Views One of the most interesting dissertation topics for medical
practitioners would be about epilepsy. This is because not all people
do have an idea of what are its causes and what are its effect to the
patient and to his families
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van.ch... New - living with epilepsy
Created by van.ch...at6/10/09 - 11:18 am|16 Views My name is Van. I am vietnamese and chinese. I was diagnose with epilepsy when I was 4 years old in vietnam.
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sperkins New - My son
Created by sperkinsat6/10/09 - 6:52 am|5 Views My son was diagnosed with BRE last year in August. He was five years old at the time.
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