My life has just recently been turned upside down. This is my story
about my brain tumor and the dark places it is taking me too. What it
has done to my family and how it has strained my relationship with my
fiancé. How it has turned me upside down and...
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People Stories
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To find a story or topic of interest, enter a username or keyword in the box below.
Share your story with friends, family and our community. Talk about your interests and experiences while sharing your photos and podcasts. Spread the word about your pages so other users can post guestbook entries, read your blog, and learn more about you! Customize your space however you wish! Begin creating your own Story by clicking the orange button below. Not ready yet? Use the links below to browse through others' Stories and learn more about your fellow epilepsy.com members! (Please note that any People Stories created on epilepsy.com prior to November 2007 can be found in the People Stories Archive.) Learn more in our People Stories Help Section.
Because these are your stories, submitted directly by you, they are not necessarily the opinions or positions of epilepsy.com. We suggest that you do not recommend medical or potentially harmful alternative treatments to others; because everyone's medical condition is individual.People Stories Index
 Maria7 New - My Meningioma Story
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SteveDaw | ||||
amberb... | ||||
 zeus1223 New - The crazy spiritual journey that is a seizure.
Trying to analyze what exactly happens during one of these things being a natural born philospher and all.
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 dkalra New - 29 years old; epilepsy since I was 8.
29 years old, first seizure at the age of 8, controlled by medication for 21 years, sudden inexplicable increase in frequency and intensity of simple partial seizures, not controlled by multiple medications, next step is surgery evaluation.
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Sabia New - my experience with epilepsy
How epilepsy has affected me and what I experience during a seizure
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thunley | ||||
 bass_b... New - My Story Of How I Was Diagnosed With Epilepsy.
This is my story of how I was diagnosed with epilepsy. Not a good writer but bear with me =)
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Lorrel... | ||||
Rhiann... New - i guess this is my life now.
16, trying to get by, epilepsy - its a part of me so they have to get used to that.
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Liam.Mc | ||||
kimbo2 New - Kimbo2
Epilepsy diagnosed after serious head injury. My seizures are controlled with medication except after orgasm and that is what brought me here :o)
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Coriana New - New to epilepsy
Here is my story... reading other peoples stories and finding this website gives me comfort is understanding what I am going through and what other people have to deal with also.
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tia25 New - Seizures rule my life!
My seizures started when I first signed up for cheerleading
I had a tonic clonic and I was sick
All I wanted to do was be like the others at school
I was put on meds and was too dizzy to keep cheerleading.
Now I try not to let it control my life...but...
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Grr | ||||
MartyFitz New - Siezures That Occur One Day Every Six Weeks.. Is this epilepsy???
The feeling I get is deja vu feelings with a huge head rush. It lasts for a couple minutes. I'm unable to talk when this happens & I break out into a intense sweat. This happens approx. every hour for 24-36 months. The strange thing is it only occurs...
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fanny | ||||
 mark_88 | ||||
 korenat New - How Epilepsy Came Into My Life
I was about 27 years old when I experienced my first seizure and did not know that thats what it was. Things have progressed from there.
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 sjchou... New - Eliane and her journey on the Modified Atkins Diet
Hi! My daughter is 7 years old and has difficult to treat absence seizures. She was accepted into and went through a Johns Hopkins study (with Dr E.Kossoff) for the Modified Atkins Diet for seizures. After 7 weeks on the diet, she has achieved full seizure...
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HAWK270 | ||||
 JUSTHOP New - JUSTHOP's Seizure history
Vega nerve stimulator, complex and partial seizurees . My seizures usually start with a de ja vu aura. I am consious during the ones I have had as an adult. I seem to have complex and partial seizures during the time of the month I used have periods,...
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lokay New - Infantile Spasums/Seizures-many drugs, Ketogenic Diet Worked Best!
Infantile Spasums/seizures-4 mo old/many drugs-ketogenic diet worked!!! 9 mo old now Nov 09.
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bloods... | ||||
watchpm New - Minute Repeater with Tourbillon
The case in 18 kt white gold, measures 44mm x 15.5mm. He has an
AR-coated sapphire crystal and display back. The crown and
bracelet-bolts cabochon sapphire. It is water resistant to 10 meters.
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shelby... | ||||
ginger... | ||||
bdeck00 New - JME sans J
Started experiencing seizures at age 13. Diagnosed with Juvenile Myoclonic Epilepsy at age 16. Now 27, and have had hundreds of the smaller bilateral convulsions, but only 3 generalized tonic-clonic seizures. I have taken Depakote, Topomax, and currently Keppra XR.
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ccouki | ||||
swimrlady New - tween having seizures
My daughter had a stroke before she was born. Not sure why. 2 days after she was born she had a seizure. she was on medication for 3 months. She has had no seizures until 12 years old this august it was a grand mal and she got her period 2 days later. 28 days...
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martin... New - Martin's Rollercoaster
We really struggled to find the cause of Martin's Epilepsy. After trying several drugs and surgeries we are now considering an alternative therapy.
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Ruizde... | ||||
tab4371 New - Tom
Encephalitis at age 10 in 1980. First seizure in 1983. Only about 3 more seizures until 2002. May have had more, but was alone so often, never would have known. On 4 medications.
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Livz2ride New - Epilepsy & me
I'm a kind hearted husband & father of 6, with tonic clonic & tempral lobal break through siezures.trying to live. With my condition it can be difficult some days. I have had them minamal controlled for 15 yrs! Love helping others understand & support others...
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maryja... New - MaryJane Kharma Bott
im Breaenne Mj's mom im going to tell you her story from the parents point a view, if Mary was older i would be able to tell you her story in her words. But since she is a baby i will be telling her story for her.
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nancyjudy New - Justice for Judy
My sisters' Vns implantation almost cost her her life. This is about her having it explanted and trying to get it back.
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 lchaku... | ||||
BDuerock | ||||
 tec1871 | ||||
gio New - help topomax and hair loss
Hi there i would like to ask for help,,as my son has been on topomax for the last 6 years now,,he is 24 years old and used to have such beautiful healthy thick hair,,and now its so sad to see his hair thinning day by day,,and brittle with no shine at all....can...
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afielder | ||||
ara New - accident
i had a bad car wreck on 4/07/2001 i got a sub dural hematoma and had 7 brain operations. since then i have sps. i want to stop taking my med pheno and trileptel can any one talk to me about that
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preacher New - dont know what to do
I start having seizure seven years ago I know when going to have them i guess that a good thing.
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mother... New - emotional roller coaster
I'm a mother with epilepsy trying to ballance me & my childs well being
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 kmacphee | ||||
Christ... | ||||
cryste... | ||||
Jaes Mom | ||||
BlueKe... | ||||
Roslyn... |
