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People Stories

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People Stories Index

 
annam
annam
New - My Son's Healing Journey with alternative therapies.
Created by annamat10/6/08 - 12:51 pm|2 Views
My Son has had seizures since the age of 10 years old. At one point , Ty, was being treated in the hospital for 3 months having 50 seizures daily. Medicines were not controlling the activity so I began researching alternative therapies. He now only has a...

jorgebeth
jorgebeth
New - My little sunshine
Created by jorgebethat10/6/08 - 9:50 am|2 Views
One year is already past, and we still working!

dupuisjr
dupuisjr
New - SURPRISE
Created by dupuisjrat10/5/08 - 7:51 pm|7 Views
Out of nowhere E jumped on me.

cherylr6
cherylr6
New - I had my first seizure- any chance this is just a precursor to my developing super powers?
Created by cherylr6at10/4/08 - 4:55 pm|3 Views
I had my first seizure at age 38. I have tenatively been diagnosised as having epilepsy. We are waiting to see how this goes before we start medication.

linmarie
linmarie
New - Keppra
Created by linmarieat10/4/08 - 2:46 pm|7 Views
5 yr old son with epilepsy

christ...
christ...
New - normal life?
Created by christ...at10/4/08 - 11:54 am|3 Views
christine /european person 26 years old junior lawyer

Dr.Ofe...
Dr.Ofe...
New - Dr.Ofembe Cornelius
Created by Dr.Ofe...at10/4/08 - 3:40 am|4 Views
Dear Friends.                      I am from Cameroon.From the North West Province in Momo Division.My village is called Teze.In my village about  45% of the children between the ages of 12-25 are epileptic.My jenior sister had epilepsy...

babygi...
babygi...
New - epilepsy is still my # 1 cause........
Created by babygi...at10/3/08 - 5:55 pm|12 Views
lose ur best friend and then u see things in a whole new way...

jenn1217
jenn1217
New - Too disabled to drive, but not to work?
Created by jenn1217at10/3/08 - 4:42 pm|6 Views
Recently saw neurologist to get news I already knew.

pants
pants
New - hallucinations
Created by pantsat10/3/08 - 9:53 am|3 Views
This describes my post epileptic experience of hallucinations, hearing voices and music

twilight
twilight
New - 44yrs seizures
Created by twilightat10/3/08 - 7:33 am|10 Views
a lifetime of seizures

yyyyytab
yyyyytab
New - My life with seizure
Created by yyyyytabat10/2/08 - 11:43 pm|1 View
My life with the little devil

ferg75
ferg75
New - Seizures for nine years and the can't find the source
Created by ferg75at10/2/08 - 6:43 pm|1 View
 On September 9th 1999 at 3:14pm., I gave birth to my first son Seth and there were complications during the pregnancy and delivery.  To this day genetics say it is not the cause of my son’s condition, and neurologist's can't find the source.

seakats
seakats
New - My Tale of Woe
Created by seakatsat10/2/08 - 5:53 pm|5 Views
This is how I came to have complex partial seizures in my left temporal loble.  I was officially diagnosed with TLE on 9/18/08 after a long 8 year battle of misdiagnoses.

Dee1
Dee1
New - Myoclonic Jerks
Created by Dee1at10/2/08 - 5:30 pm|8 Views
I'm new to this so pleas bare with me, but I'm hoping that any response that I recieve from anybody out there in this huge world that we live in will help me try and understand all of this mess just a little bit better.

jehobi...
jehobi...
New - 7 years of frustration
Created by jehobi...at10/2/08 - 7:57 am|14 Views
My story

capeco...
capeco...
New - Years of Searching For a Diagnosis
Created by capeco...at10/1/08 - 10:03 am|18 Views
I  can't find anyone that has the same symptoms as me.  I am diagosed with TLE but even when I read about that, everthing that happens to me doesn't seem to fit.

sexyho...
sexyho...
New - new to this
Created by sexyho...at9/30/08 - 8:25 pm|15 Views
If anyone has any idea about this please contact me

Enda
Enda
New - NO, I'M NOT: "Diabetic", "Crazy", "On Drugs", "Having A Fit" - I HAVE A SEIZURE DISORDER! :)
Created by Endaat9/30/08 - 5:26 pm|13 Views
Complex Partial Seizures  - I can always feel them coming on and try to get to a safe quiet place currently taking Keppra 250 mg x 2/Day

a323mo...
a323mo...
New - Evolution is LATE! (PARTIAL) Trisomy 15 & Uncontrolled Generalized Seizures.
Created by a323mo...at9/30/08 - 5:20 pm|6 Views
Our Daughter has (partial) Trisomy 15 with uncontrolled generalized seizures. How to make the executive disision?

emilyp...
emilyp...
New - Emily's Brain - using more electricity than necessary!
Created by emilyp...at9/30/08 - 4:02 pm|9 Views
35 year old RN in Colorado wondering if the seizures will ever stop! Frustrated with the doctors and medications and lack of transportation options to get to work! Have a VNS now, but it seems that it is only working to control the petit mal seizures that...

sularry
sularry
New - grand mal seizures
Created by sularryat9/30/08 - 2:29 am|8 Views
My first seizure was at 17. About 27 years ago. I had been taking Dexatrim (otc diet pills- speed really) like it was goin out of style. I think that is what caused the first one. If memory serves me, my next one might have been like two years later. My...

KatieF...
KatieF...
New - My Daily Philosophy.....
Created by KatieF...at9/29/08 - 11:22 pm|27 Views
My life as it has been so far with epilepsy.....and how I am coping with it....and what I would like others to take away from my experience with Epilepsy....

DBL
DBL
New - Nocturnal Only Seizures
Created by DBLat9/29/08 - 7:31 pm|11 Views
I have been having nocturnal only seizures all my life, I am now in my late 50's.....  I would like to talk with someone who shares the same profile ... see details below ....  in my story content section ... donleathe@comcast.net

mbemboom
mbemboom
New - New to this whole topic
Created by mbemboomat9/29/08 - 12:50 pm|12 Views
My Fiancee was just diagnosed after having several seizures in the last 2 years. 

Anwer ...
Anwer ...
New - Head injury / Traumatic Brain injury Pakistani patients Jawad Pasha 26 with Epilepsy/Seizure
Created by Anwer ...at9/28/08 - 2:13 pm|19 Views
Jawad Pasha injured in 2004.was found at one hospital in critical condition.Doctors said,"no hope"He is diaghosed as Presistent Vegitative State,He is also suffering with Epilepsy.But he is amomg only fewin the world who are improving.Tragedies meanwhile...

ak2006
ak2006
New - my epilepsy since it started.
Created by ak2006at9/28/08 - 5:48 am|10 Views
a few of the szrs i have had and some side effects/ warnings

majormana
majormana
New - my expeince
Created by majormanaat9/27/08 - 3:55 pm|5 Views
22 yr old learning and dealin wit seziures

msball...
msball...
New - Hailey's Story
Created by msball...at9/26/08 - 12:05 pm|4 Views
The doctor has put terms like "lennox-gasteaut syndrom" and "Dravet's Syndrom" on the table. He wouldn't go into any detail until we get blood work done and he reviews the video-EEG. We are scared to death as to what lies ahead of...

Vijay ...
Vijay ...
New - Anulika's West Syndrome
Created by Vijay ...at9/26/08 - 2:02 am|30 Views
My grand daughter Anulika was born on 5th October 2007 at 19.53 hours at Ranchi, India. She started having  convulsions in April 2008. The doctors at Ranchi thought that it was becuse of some promblem in the stomach. On 12 th June 2008 she was shown to Dr....

JMR050
JMR050
New - 17 years old, withepleptic seizures of partial and secondary generalized seizures*
Created by JMR050at9/25/08 - 5:09 pm|9 Views
Hi I'm jessica, I'm 17 years old and have had epilepsy for five years.  I have partial and secondary generalized sizures. I'm new to this chat room and would love to meet some new friends, who expierence  seizures aswell.

selmurphy
selmurphy
New - My teen with JME
Created by selmurphyat9/25/08 - 10:40 am|5 Views
6 years of undetected epilespy Regular EEG BEAM testing light filtering through trees hereditary

mimosaamk
mimosaamk
New - Daniel
Created by mimosaamkat9/25/08 - 9:42 am|6 Views
Understanding PNES and dealing with it.

wesley...
wesley...
New - wes/theromantic
Created by wesley...at9/24/08 - 7:58 pm|9 Views
I AM SINGLE , IAM 37 YEARS OLD , I HAVE HAD EPILEPSY SINCE I WAS 19 YEARS OLD

yvette...
yvette...
New - yvette garcia
Created by yvette...at9/24/08 - 11:41 am|4 Views
 IM I NORMAL

ny2ga67
ny2ga67
New - learning as much as I can
Created by ny2ga67at9/24/08 - 7:23 am|8 Views
My 8 year old son is on a lot of medicine to control his Juvenile Myoclonic epilepsy. I feel like he has chnged and is a different child due to the medicine he is on. He has a lot of difficulty focusing and has a lot of mood swings. I feel that Epilepsy has...

aidensmom
aidensmom
New - Aiden's Life (www.aidenslife.com)
Created by aidensmomat9/23/08 - 9:14 pm|13 Views
Aiden was born on February 15, 2004. We were so glad that baby Aiden had arrived. Right away, we noticed he had a very large birthmark on his face and scalp. The doctors called it a Port-Wine Stain and warned that Aiden might have glaucoma as the birthmark...

jane doe
jane doe
New - jane doe
Created by jane doeat9/23/08 - 11:00 am|17 Views
hi i am 35

Sumitra
Sumitra
New - Living my life
Created by Sumitraat9/23/08 - 12:39 am|6 Views
My Journey- from underconfidence-Independence Treated like smething weird-misconceptions-where I am now Am opening my heart

adisyn...
adisyn...
New - Adisyn
Created by adisyn...at9/22/08 - 9:12 am|8 Views
My daughter was diagnosed with seizures and polymicrogyria w/ mild heterotopia at 2 months old, infantile spasms at 3 months old. She is now 15 months old. We have tried almost everything.

lucylu
lucylu
New - my life story
Created by lucyluat9/22/08 - 8:37 am|18 Views
i am writing about how i found out i had epilepsy and my life b4 and after.....

grhyink
grhyink
New - Gary Hyink
Created by grhyinkat9/21/08 - 8:12 pm|9 Views
...

tamika...
tamika...
New - My Story.
Created by tamika...at9/21/08 - 9:21 am|23 Views
My Life

prince...
prince...
New - why do things have to change?
Created by prince...at9/20/08 - 3:38 pm|61 Views
3o yr old female diagnosed with E.  Counting all of my blessings.

LoveBe...
LoveBe...
New - Depakote CAN and DOES cause behavior changes
Created by LoveBe...at9/20/08 - 8:29 am|10 Views
Alert all about serious side effects of Depakote.

ruguti...
ruguti...
New - Ruthie
Created by ruguti...at9/19/08 - 11:03 pm|13 Views
ONLY HAVE SEIZURES AFTER BEING UNDER ALOT OF STRESS, NEVER DURING THE STRESSFUL SITUATION .

Tatiana1
Tatiana1
New - Always wear a helmet while on a motorcycle
Created by Tatiana1at9/19/08 - 7:18 pm|7 Views
I jumped on the back of our harley and broke my skull in which lead to my epilepsy. 

day_me_in
day_me_in
New - My Life with Seizures
Created by day_me_inat9/19/08 - 6:22 pm|14 Views
My Story

baby19677
baby19677
New - A WIFE AND MOTHER OF FOUR TEENAGERS
Created by baby19677at9/19/08 - 3:27 pm|6 Views
I'M SHEILA, FROM LOUDON,TN. I HAVE NEVER HAD EPILEPSY TELL NOW FIRST SEIZURER 9-2-08 AT 12:30pm AT WORK.

shoefer
shoefer
New - Steve H.
Created by shoeferat9/19/08 - 11:10 am|6 Views
What went bad but guess what!


People Story Activity