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People Stories

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To find a story or topic of interest, enter a username or keyword in the box below.

Share your story with friends, family and our community. Talk about your interests and experiences while sharing your photos and podcasts. Spread the word about your pages so other users can post guestbook entries, read your blog, and learn more about you! Customize your space however you wish! Begin creating your own Story by clicking the orange button below. Not ready yet? Use the links below to browse through others' Stories and learn more about your fellow epilepsy.com members! (Please note that any People Stories created on epilepsy.com prior to November 2007 can be found in the People Stories Archive.) Learn more in our People Stories Help Section.

Because these are your stories, submitted directly by you, they are not necessarily the opinions or positions of epilepsy.com. We suggest that you do not recommend medical or potentially harmful alternative treatments to others; because everyone's medical condition is individual.

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People Stories Index

 
arober...
arober...
New - My Story - Still Don't Know What it Means
Created by arober...at2/8/12 - 6:15 pm|7 Views
I'm 26 years old and I've had 3 seizures since I was 23 but I don't have a diagnosis.

Lindsea
Lindsea
New - Help me plz. I can't go on like this
Created by Lindseaat2/6/12 - 11:40 pm|15 Views
I dont know what to do or how to handle this

britni...
britni...
New - For my daughter
Created by britni...at2/6/12 - 10:58 am|3 Views
My 9 year old daughter was just diagnosed with epilepsy this morning.  I still have no answers.

dgreer27
dgreer27
New - Why can't I find out what is going on with me?
Created by dgreer27at2/5/12 - 2:25 pm|6 Views
I've had a few years of frustration trying to find the cause of my epilitic like seizures.    Several doctors, test, mri, xray, and other test have yeilded no results.

ishaq
ishaq
New - nightime seizure
Created by ishaqat2/5/12 - 7:10 am|7 Views
nightime seizure

krys
krys
New - my grandchild with possible panayiotopolous syndrome
Created by krysat2/5/12 - 6:49 am|2 Views
Hi, Last winter , my grandchild had several infections(ears and throat) during that time she had about 4 "dos" where after being asleep for about half and hour she would be sick, pupils fixethe left. Although it was strange we put it down to being...

WALLIG...
WALLIG...
New - Please Read and Help
Created by WALLIG...at2/4/12 - 11:38 am|6 Views
I felt dizzy then just blanked out and woke up on the floor.

Tom S.
Tom S.
New - Hello. I'm new to the forum
Created by Tom S.at2/3/12 - 7:45 pm|7 Views
Here's a brief story about my journey to this place.

MDS2006
MDS2006
New - Maxx
Created by MDS2006at2/3/12 - 7:34 pm|1 View
Hi! My name's Marie. I'm Maxx's mother. Maxx is 5 yrs old & has epilepsy, along w/many other med issues.

ssidah
ssidah
New - Lyme Disease as a cause for seizures
Created by ssidahat2/1/12 - 7:06 am|1 View
It is important to eliminate lyme disease as a cause of seizures.

cricke...
cricke...
New - new member
Created by cricke...at1/31/12 - 8:49 pm|24 Views
just found this yesterday.

photo-...
photo-...
New - Living with photo-sensitive seizures
Created by photo-...at1/30/12 - 7:59 pm|9 Views
I believe I'm the only one in my family with this.

rckout...
rckout...
New - My mom with what I think is partial complex seizures
Created by rckout...at1/30/12 - 7:38 pm|7 Views
I noticed my mom was experiencing weird symptoms or behaviors a few years ago. I never really acknowledged what it could be or what it could be caused by. She has these random trances or blank stares and rubs her hands together while doing a chewing motion with her mouth.

mlmetkit
mlmetkit
New - Hi New Here and really, really need help. Please!
Created by mlmetkitat1/30/12 - 5:27 pm|6 Views
Not even sure if I'm in the right place.  Sorry so long.  Please help!

Ashleyy
Ashleyy
New - Scared and Worried
Created by Ashleyyat1/28/12 - 9:50 pm|5 Views
My mom's unexpected seizure

w_mira...
w_mira...
New - My Story- Partial Complex Seizures
Created by w_mira...at1/28/12 - 7:06 pm|5 Views
Hi.. I am 34 years old and a mother of two precious boys of 12 and 3 years old. I was diagnosed with partial complex seizures two years ago. 

simon4...
simon4...
New - My Teenage Daughter was Just Diagnosed With JME
Created by simon4...at1/27/12 - 10:55 am|10 Views
16 year old diagnosed with JME--used to describe having the "shakes" but attributed it to low sugar and diet--until the day I saw a curling iron fly across the room

edenmarie
edenmarie
New - Grand Mal, Nocturnal Seizures, and the Such
Created by edenmarieat1/26/12 - 11:46 am|17 Views
Misdiagnosed for over a decade with 'Anxiety Attacks', I still don't have all the answers but maybe someone else might be able to relate to my story. Mild Seizures every few minutes up to 20 hours in a single day during the peak of the hormonal changes......

psycic...
psycic...
New - Epilepsy almost ruined my life
Created by psycic...at1/25/12 - 5:53 pm|30 Views
I feel obligated to share my story of what I went through with epilepsy and all the meds the doctors force down your throat. And the lies that were told to me.

rctcra...
rctcra...
New - My Story
Created by rctcra...at1/23/12 - 8:10 pm|9 Views
Hi. My name is Cassandra and I am 26 years old. I have photosensitive epilepsy.

Harleyp1
Harleyp1
New - LIving or Surviving?
Created by Harleyp1at1/23/12 - 11:18 am|14 Views
Adult with nonepilectic seizures

cholledl
cholledl
New - New Member Concerned About Simple Partial Seizures
Created by cholledlat1/23/12 - 10:25 am|15 Views
Coping with simple partial seizures

bbookie24
bbookie24
New - My story...
Created by bbookie24at1/21/12 - 7:31 pm|19 Views
I'm 23 years old, and I've recently been diagnosed with Juvenile Myoclonic Epilepsy.

robj67
robj67
New - 29 years with epilepsy
Created by robj67at1/21/12 - 6:48 pm|15 Views
ive live with this for along time worked and drove just like anyone else but lately been getting alot of headaches little scared whether or not its going to provoke a seizure.Now reading the moods and behaviors part i never knew about cause ive been always...

kimber...
kimber...
New - 25 and Alone
Created by kimber...at1/21/12 - 4:42 pm|10 Views
I have had seizures since I was in junior high school. My parents ignored it. I crashed my car when I was 19, and was diagnosed only after the state of California made me see a doctor.

Bowlof...
Bowlof...
New - You have got to be kidding!
Created by Bowlof...at1/20/12 - 5:57 pm|50 Views
And so it began. My 8yr old daughter's epilepsy.

shelly...
shelly...
New - story by shelly1995 who is so confused
Created by shelly...at1/19/12 - 11:50 am|7 Views
THIS IS NOT WHAT IM USE TOO  DOES THIS SOUND FAMILIAR TO ANYONE IF SO PLEASE LET ME KNOW WHAT YOU KNOW IM ONE WHO DONT TRUST DOCS BAD PAST WITH THEM NEUROS SORRY DOCS. I KNOW THEY CANT ALL BE ALIKE.

dannyp
dannyp
New - dannyp54
Created by dannypat1/16/12 - 4:52 pm|10 Views
In 2008, at the age of 58, my journey in epilepsy began in ernest.

BookLo...
BookLo...
New - How it was discovered
Created by BookLo...at1/15/12 - 10:19 pm|12 Views
The story of how I was diagnosed

Bethan...
Bethan...
New - when it all really started
Created by Bethan...at1/15/12 - 9:49 pm|11 Views
this is the story of when I discovered my seizures developed more...

Drewbie09
Drewbie09
New - My beautiful baby boy
Created by Drewbie09at1/15/12 - 1:10 pm|7 Views
Young baby/toddler with epilepsy

Mounta...
Mounta...
New - 7 Year Old Daughter Developed Childhood Absence Epilepsy
Created by Mounta...at1/12/12 - 8:42 am|4 Views
My daughter developed Childhood Absence Epilepsy when she was 7 years old. She is now 9 and is seizure free after 2 years of natural therapies and meds. This is our story.

sydney...
sydney...
New - nightmares
Created by sydney...at1/11/12 - 11:47 pm|5 Views
hi. i don't know if this is a seizure or something? so i was hoping if you guys can tell me. i never told my doctor this. cause im not sure. so please help me if i do have epilepsy?

kj1989
kj1989
New - The closet
Created by kj1989at1/10/12 - 2:02 am|10 Views
This is my story of realizing the simularities between my epilepsy and sexuality. Especially regarding the secrecy surrounding each one.

amydoboss
amydoboss
New - Seizure disorder
Created by amydobossat1/10/12 - 12:07 am|9 Views
( DID THIS HAPPEN TO ANYONE IN YOUR FAMILY?)

Shaelu...
Shaelu...
My seizures
Created by Shaelu...at1/7/12 - 11:44 am|7 Views
I've seizures since I was 31 years old and my son was 8 years old at the time he found me shaking on the floor.

Pnal
Pnal
B6 and Magnesium
Created by Pnalat1/7/12 - 7:28 am|10 Views
My son has been seizure free since taking b6 and magnesium along with his medication.

rosema...
rosema...
Seizures with little hope
Created by rosema...at1/6/12 - 4:58 pm|8 Views
Told border line epilepsy, no insurance, unemployed applying for disapility and was denied.

Agnija
Agnija
Just Need Help
Created by Agnijaat1/6/12 - 5:47 am|3 Views
I dont know how should i start. I am a father of a three years old kid. She is suffering from epilepcy. We just started her treatment. I am reading diffrent blogs browsing diffrent website to find one simple answer " Is it curable ?". My doctor...

mic_1985
mic_1985
My Story from age 20
Created by mic_1985at1/5/12 - 9:14 pm|26 Views
Moving through life from my first seizure

jmzubler
jmzubler
Funny Bone Strike Triggers Seizure?
Created by jmzublerat1/5/12 - 7:50 pm|1 View
High School Freshman hits his funny bone in class and has, what appears to be, a seizure.

grease...
grease...
my story
Created by grease...at1/5/12 - 7:31 am|12 Views
what i am going through now

hadi20
hadi20
Hope or despair
Created by hadi20at1/4/12 - 3:43 am|21 Views
I'm twenty-eight years old and have epilepsy at the age of six...

wendyu...
wendyu...
Temporal lobectomy surgery July 2011
Created by wendyu...at1/3/12 - 11:14 am|12 Views
temporal lobe

epilep...
epilep...
My Epilepsy Story
Created by epilep...at1/2/12 - 11:51 pm|6 Views
simply about how my life and how its been living with epilepsy. the medications I've tooken, dr's, hospitals, etc.

michelet
michelet
Recently diagnosed with Epilepsy.
Created by micheletat12/31/11 - 7:07 am|19 Views
23 yr old recently diagnosed, extremely depressed and not sure how to deal with it all :(

tiffy4681
tiffy4681
EPILEPSY AND ME
Created by tiffy4681at12/30/11 - 11:23 pm|6 Views
I started having seizures around three years old.I was told by family it was due to an injury.I have grand mal and petite mal siezures. I dont have a very good memory and its hard for me to make friends because of my memory.I have tried most medications...

Ramjet
Ramjet
Simple partial seizures - excessive sweating
Created by Ramjetat12/29/11 - 3:50 pm|10 Views
Interested in hearing from others with possible similar symptoms

Iblis92
Iblis92
My story.
Created by Iblis92at12/28/11 - 7:18 pm|8 Views
Im a 19 year old guy. My mother has epilepsy, although hers was caused by an injury.

shknno...
shknno...
My Adventure
Created by shknno...at12/27/11 - 12:57 pm|6 Views
The story/history of my seizure condition.


People Story Activity