Take control of your epilepsy and seizures. Seizure management has never been easier.
TAKE CONTROL TODAYShare your story with friends, family and our community. Talk about your interests and experiences while sharing your photos and podcasts. Spread the word about your pages so other users can post guestbook entries, read your blog, and learn more about you! Customize your space however you wish! Begin creating your own Story by clicking the orange button below. Not ready yet? Use the links below to browse through others' Stories and learn more about your fellow epilepsy.com members! (Please note that any People Stories created on epilepsy.com prior to November 2007 can be found in the People Stories Archive.) Learn more in our People Stories Help Section.
Because these are your stories, submitted directly by you, they are not necessarily the opinions or positions of epilepsy.com. We suggest that you do not recommend medical or potentially harmful alternative treatments to others; because everyone's medical condition is individual.BigTom_85 New - My life with epilepsy
Created by BigTom_85at5/24/12 - 9:48 pm|2 Views
I've had a crazy life since being diagnosed with epilepsey,depression,no friends,getting made fun of because of the medications i take. Came close to death with a gran mal seizure,mom saved my life.
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Mendoza87 New - I thought there was nothing wrong
Created by Mendoza87at5/24/12 - 8:05 pm|5 Views How I discovered I had Myoclonic epilepsy.
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kitkat... | ||||
frustr... New - Is it Emotional
Created by frustr...at5/23/12 - 6:39 am|4 Views I am frustrated because I was seizure and medication free for 12 years after having successful surgery and now I am right back to the place that I was before my surgery.
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goofyh... New - Adjusting with the thought of epilepsy after misdiagnosis for over 20 years
Created by goofyh...at5/22/12 - 7:04 pm|2 Views Getting an Ambulatory EEG a month ago led to a diagnosis to Epilepsy almost 2 weeks ago.
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nastaran New - Continuing with life
Created by nastaranat5/21/12 - 12:31 pm|1 View Hi, i´m 25 and i have tonic-clonic seizures but mostly clonic
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1505lo... New - Working my life around having epilepsy
Created by 1505lo...at5/21/12 - 9:28 am|4 Views From a young child age 3 i had grand mal seizures which was brought on by illness and high temperatures and my medicine was called epilem. my seizures stopped when i was about 9-10 years old and thought i grew out of them but recently as an adult i've experienced...
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cag122 New - The frustration of not knowing exaclty what is wrong...
Created by cag122at5/20/12 - 3:06 pm|3 Views This is my first time writing on this forum. I am so happy to have found this website and online community. My diagnosis is still kind of an enigma and I've learned that treating seizure disorders is far from an exact science. This can be very frustrating...
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Jayscott New - My first seizure.
Created by Jayscottat5/17/12 - 1:22 pm|3 Views I was just curious if anyone else had experienced a seizure from unknown cause so late in life.
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Mar1tza New - My Epilepsy story
Created by Mar1tzaat5/16/12 - 11:07 am|15 Views This is how it all starte... since day one, during pregnancy, till today.
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superc... New - Cooper my 3 year old amazing son
Created by superc...at5/15/12 - 8:37 pm|7 Views My 3 year old diagnosed with epilepsy. I am really struggling with all of this.
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Esmera... New - I want to get better
Created by Esmera...at5/15/12 - 7:08 pm|4 Views I hope that one day I wake up and no more seizures
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panter... New - Seizures under control
Created by panter...at5/14/12 - 8:40 pm|12 Views 1.5 yrs seizures free so far after energy healing
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girl4him New - Dizziness with topiramate/Diamox
Created by girl4himat5/14/12 - 1:17 pm|4 Views I am recently having is issues with med
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ckonstas New - pregnancy and lamictal and mysoline
Created by ckonstasat5/14/12 - 9:08 am|3 Views
Nervous of getting pregnant..with Epilepsy.
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Mommao... New - Cole
Created by Mommao...at5/12/12 - 9:09 pm|3 Views I want to know if anybody has information on seisure and agressive behavor and or night terrors.
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Fireba... New - seizure while sleeping
Created by Fireba...at5/11/12 - 7:29 pm|13 Views I think I have been having seizures in my sleep but I'm not sure so that's why I joined this site to see if I could get any answers
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lotusbri New - Neuro says it's not epilepsy but......
Created by lotusbriat5/10/12 - 6:34 pm|10 Views non epileptic seizures
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kristy... New - Nocturnal Seizures
Created by kristy...at5/10/12 - 9:46 am|8 Views Nocturnal Seizures- New to this
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lanale... New - Marijuana helps seizures?
Created by lanale...at5/10/12 - 8:26 am|11 Views Fiance has non-epileptic seizures, marijuana appears to help.
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flower... New - My boyfriend has epilepsy and is pushing me away what can I do
Created by flower...at5/9/12 - 11:11 pm|9 Views Boyfriend becoming distant after having a seizure in front of me
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Astras... | ||||
suzyq66 New - Keppra and behaviour issues
Created by suzyq66at5/9/12 - 1:52 am|5 Views Hi, we have a 10 yr old daughter who was diagnosed with Benign Rolandic Epilepsy 4 yrs ago she is currently taking 1000mg x 2 of Keppra plus 5mgx2 of Clobazam. She tends to fit during the night and her last big fit was November last year but she is experiencing...
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Strumm... New - masturbation causing seizures?
Created by Strumm...at5/8/12 - 6:23 pm|8 Views I'm looking for an explanation or cause to my seizures
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dramaq... New - Learning to Deal
Created by dramaq...at5/8/12 - 4:59 pm|10 Views How my family changed after my daughter started having seizures.
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noodles22 New - How Epilepsy Taught Me to Live
Created by noodles22at5/7/12 - 7:39 am|7 Views How Epilepsy Has Taught Me to Live By Danny Rosenfeld As someone who has lived with epilepsy for almost 17 years, my life has been filled with experiences that no one should have to endure. Epilepsy, however, has also brought out the best in me as a mentor...
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Luanne33 New - Horrible, Acceptable, final?
Created by Luanne33at5/6/12 - 6:38 pm|6 Views When they first started all the way to today
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jayemzs New - Exercise problems getting really bad. High dosage of Epilim combined with Lamotrigine side effects
Created by jayemzsat5/6/12 - 4:06 pm|7 Views I'm having serious problems exericsing without suffering at least one form of seizure. Increased medication dose resulting in many more prominent side effects
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ameyers6 | ||||
prowla... New - Gee Thanks God
Created by prowla...at5/5/12 - 6:29 am|3 Views 42, epileptic but glass half full!
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purple... New - Someone living with Complex Partial Seizures
Created by purple...at5/4/12 - 7:47 am|19 Views My name is Heather and I have epilepsy. I was relieved to finally find out whatever I had, had a name.
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ampooh25 New - Healed At Last
Created by ampooh25at5/1/12 - 7:43 pm|12 Views My healing from uncontrolled seizures while on several medications that has now stopped since surgery!
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Timmeharg New - Seeking help
Created by Timmehargat4/30/12 - 1:51 am|5 Views 21 year old male having girlfriend leave me due to brain surgery
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shonjon83 New - medication side effects
Created by shonjon83at4/28/12 - 4:41 am|5 Views 24 yr old male, before and after right frontal lobe surgery.
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adidas... New - Women's Adidas Originals Adicolor Shoes
Created by adidas...at4/27/12 - 9:55 pm|3 Views Shop Adidas Women's&Men's Originals Country II Shoes Red/White,Newest Style Adidas Originals Shoes Sale On Adidas Shop.
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casael... New - Newborn Baby Girl with Frontal Lobe Seizures
Created by casael...at4/26/12 - 2:59 pm|7 Views Looking for answers, any input much appreciated!
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chloe-may New - my story
Created by chloe-mayat4/26/12 - 3:05 am|13 Views well im 17 and i feel abit upset as im recently new to epilepsy
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Gillette New - OMG, Epilepsy .... surely not!!
Created by Gilletteat4/25/12 - 10:02 pm|29 Views Just to say Hi and tell my story
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BootsDion New - My Epileptic Journey
Created by BootsDionat4/25/12 - 6:02 pm|4 Views
I began having epilepsy right after college, had various
seizures (simple partial, complex partial, and tonic clonic), utilized a VNS,
had a scar tissue on the left temporal lobe removed, and now seizure-free.
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kmusic... New - Lamactil Withdrawl..Dr says no--Help!
Created by kmusic...at4/25/12 - 12:52 pm|6 Views Weaning off of Lamactil, irritable, emotional, dizzy, fatigue
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Mrober... New - 13 yr old Daughter recently diagnosed with Epilepsy
Created by Mrober...at4/25/12 - 10:45 am|6 Views
Healthy 13 yr old daughter has grand mal three times so far with no known reasons.
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iluvmy... New - infantile spasms
Created by iluvmy...at4/25/12 - 4:43 am|5 Views abnormal eeg reading 8 years on from west syndrome
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drr75 | ||||
Bubbles29 Bubble's Story on How she got seizures
Created by Bubbles29at4/24/12 - 11:07 am|10 Views It all started in January 2012
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luvblo... | ||||
reggaegrl To many pills
Created by reggaegrlat4/23/12 - 12:23 am|16 Views ive had siezures since i was four,i'm 39 now starting to feel hopeless
they control most parts of my life,i have 3-4 a night every night 14
pills a day,
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katu | ||||
ogriffith ogriffith
Created by ogriffithat4/21/12 - 9:30 pm|4 Views Hi, my name is Oscar and I have lived with epilepsy most of my life. I had brain surgery a little over a year ago. Well my license were revoked last month. I still having seizures , but I'm taking less medication and I mean much less. It's about 100mg. of...
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ashuar... Epilepsy
Created by ashuar...at4/21/12 - 7:27 am|8 Views hi, my name is ashish and am 17 years old born in 1995,02,02. I am from india but living in china.
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