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Resource Specialist

Need help in answering your questions about epilepsy? Read responses to the most frequent questions posed by our community or see answers to topics that interest you. Not seeing an answer to your question? Join this moderated forum where you can ask our epilepsy resource specialist questions dealing with epilepsy. We select questions of greatest interest and educational value to all our readers. We encourage you to contact your own health care provider for individual medical advice. We cannot provide second opinions or make specific recommendations regarding therapy.

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sashag930
sashag930
orgasms and seizures =
Created by sashag930at11/26/07 - 9:44 pm
Answered by epi_helpat11/28/07 - 2:59 am
If an ecg picked up on an orgasm during intercorse what side of the brain does it effect. My nuero said its not possible. But my timeline shows I was have intercorse at that moment and climaxing and it was all during an awake period at 10:44pm it only showed...
samant...
samant...
samantha
Created by samant...at11/25/07 - 9:10 am
Answered by epi_helpat11/26/07 - 5:04 am
I have been on Dilantin for 15 years. Now the Dilantin has changed and I am not feeling well at all. I am dizzy,confused, unfocused, sick to my stomach. Also my lips and tongue are numb. there are many other reactions that I am feeling. I have ended up in...
cgru2
cgru2
I keep having sezuires but doc says everything is OK?!?
Created by cgru2at11/25/07 - 2:22 pm
Answered by epi_helpat11/26/07 - 4:46 am
Hi there, My names Chris, I'm 24 and I'm from Melbourne, Australia. For the past year or so I've been experiencing a short (under 2 seconds) condition, usually when I'm excited or satisfied about something. Eg: While/After telling a joke, while scoring...
msbroa...
msbroa...
the stress of not knowing
Created by msbroa...at11/18/07 - 8:28 am
Answered by epi_helpat11/20/07 - 9:54 am
my daughter just recently started having seizures out of nowhere,and one doctor told me its pseudo-seizures. but since then she has had a ct-scan and it revealed a 7mm cystic area of the brain.could this cause seizures.she have the seizures,then she passes...
stevel
stevel
Working with Epilepsy
Created by stevelat4/20/06 - 3:59 am
Answered by epi_helpat11/13/07 - 10:26 am
I was diagnosed with Epilepsy in 2001 after having 2 grand mal seizures. Since that time, I have struggled in my job. Prior to that, I was fine(I think). I have attention problems, am exhausted a lot and my job is a very high stress sales position. I read...
lovemyson
lovemyson
stopping a siezure
Created by lovemysonat4/20/06 - 1:14 am
Answered by epi_helpat11/12/07 - 5:06 am
Can a siezure be stopped from a voice calling to the child If caught soon enough ?
Sugar ...
Sugar ...
Out-of-body experiences
Created by Sugar ...at11/10/07 - 12:34 pm
Answered by epi_helpat11/12/07 - 4:37 am
I was wondering if epilepsy sufferers report having out-of-body experiences, and if so, is there a "highly prone" category of seizure that is associated with such experiences?
sethmorin
sethmorin
I am trying to find information on Pedimol Siezures
Created by sethmorinat6/11/06 - 2:41 pm
Answered by epi_helpat6/12/06 - 12:19 pm
I have a 55 year old female friend that is having siezures 2 to 3 times a week just under 50 seconds a piece she goes into a blank stare and her mouth opens and basicly you can see straight down her throat but this is starting to get...
shari
shari
new to seizures/scared
Created by shariat6/11/06 - 6:12 pm
Answered by epi_helpat6/12/06 - 12:07 pm
hi there I am 35 and just had 4-5 grand mal seizures last Sunday out of the blue.... I had 2 febrile seizures before I was 18 months old sue to fevers and never any episode since then until last weekend. I know nothing about this......
lisa c...
lisa c...
being 14
Created by lisa c...at6/10/06 - 5:13 am
Answered by epi_helpat6/10/06 - 4:33 pm
yes, I have a son who is 14 and was diganosed a year ago and even though the doctors say there is no seizure activity now I still think my son is changing he is doing things thats not normal they say if it was his medicine it would...
colelu
colelu
Referral request for a epilogist is denied
Created by coleluat5/31/06 - 7:31 pm
Answered by epi_helpat6/6/06 - 10:41 am
I have requested an epilogist referral for my daughter who was recently placed on Trileptal. She had denied my requesting statting that epilogist are typically for patients who have tried 4 to 5 meds unsuccessfuly. Is this true? ...
Deanne...
Deanne...
Can Keppra cause a rash
Created by Deanne...at5/31/06 - 8:35 pm
Answered by epi_helpat6/6/06 - 10:33 am
My son Isaiah started keppra about three wekks ago. After 3 days he got a rash on his face and chest. we stopped the keppra, but his nurolaget was not sure the rash was caused by Keppra. Last friday we tried Keppra again. Today,...
sjt
sjt
'spells'???
Created by sjtat6/1/06 - 12:58 am
Answered by epi_helpat6/6/06 - 10:22 am
Hi I had my first visit to the neurologist yesterday as I keep having these really strange 'spells'. I imagine events that haven't happened, sounds become muffled and then I have a really hot flush. Then it is over and done with,...
kdouglas
kdouglas
Please help, Lost everything in lIfe
Created by kdouglasat6/1/06 - 7:13 am
Answered by epi_helpat6/6/06 - 10:02 am
I am a 27 year old young man who had my first seizure 4 months ago.I fell unconscious in the Mall(where i was shopping) and had convulsions.I chew my tounge during the act.My CAT-Scan is normal.But did not get a chance to do an MRI/EEG. I...
DJsMom
DJsMom
Ketogenic Diet
Created by DJsMomat6/1/06 - 6:11 pm
Answered by epi_helpat6/6/06 - 9:41 am
How does one find out where to go for ketogenic diet treatment? I was going to have my 7 year old enrolled in the program at St. Petersburg's All Children's Hospital, til I found out the dietician was quitting. St. Joseph's Hospital...
woodca...
woodca...
odd episodes
Created by woodca...at6/2/06 - 8:28 pm
Answered by epi_helpat6/6/06 - 9:31 am
im having a kind of episode im not sure what is happening.it happened in front of my doctor so i will give you his version. he said i was sleepy and my head jerked from the midline 2 or 3 times and i focused on my fingers for a while...
New Be...
New Be...
abrupt discontinuation keppra cloudy vision
Created by New Be...at6/5/06 - 11:11 am
Answered by epi_helpat6/6/06 - 8:57 am
Dear Sir,I was taking 200mg a day of keppra for 3 weeks.I had bad side effects an abruptly stopped taking it.My vision has been cloudy for 1 week so far.Eye exams prove normal.How long will it take to get it out of my system so my...
Sezm
Sezm
Do I have Epilepsy?
Created by Sezmat5/21/06 - 6:44 am
Answered by epi_helpat5/24/06 - 8:27 am
Hi. I have had several times in my life that cannot remember. Each time my memory is cut off abruptly, such as i can remember lifting a glass to my lips and not putting it down. The time that i'm 'out' last a long time, often a...
julieann-
julieann-
why
Created by julieann-at5/22/06 - 5:45 pm
Answered by epi_helpat5/24/06 - 8:04 am
Hello, in not the patient im the daughter of a wonderfull woman with a big hart we dont have a lot of money so she cant get the help that she needs im scared she has what the doctors call grandmal seagers and is not geting any beeter...
anamaria
anamaria
I recently found out I had ADD...help!!!
Created by anamariaat5/22/06 - 10:39 pm
Answered by epi_helpat5/24/06 - 7:51 am
I'm new to this site. my name is Ana. Hello to everyone! I'm looking information regarding epilepsy and ADD. I was diagnosed with absence seizure when I was 15. Recently I found out tha I have ADD as well. I'm 25 years old and in...
ScottM
ScottM
Medical ID Bracelets
Created by ScottMat5/23/06 - 8:41 am
Answered by epi_helpat5/24/06 - 7:34 am
Im trying to find a few sites that i can purchase my daughter a medical braclet that she is able to wear to school (nice one) and then have another to play outside (rugged one). not sure if this is the place to put this or not. thanks...
New Be...
New Be...
insomnia and keppra
Created by New Be...at5/24/06 - 4:35 am
Answered by epi_helpat5/24/06 - 7:31 am
I have been taking 2 500mg tabs of keppra.1 in the am and 1 at bed.Since the20th of may I have hAD No sleep.I also take 250mg of dilantin.Could the keppra be causing myn sleep disorder?...
bigkid...
bigkid...
Seizures???
Created by bigkid...at5/5/06 - 5:11 am
Answered by epi_helpat5/13/06 - 9:28 pm
Hi My name is Annie and I took convulsions as a child and I was on phenobarb and ritalin for them until I was 14 years old. And for a really long time I have been having this things happen and I am not sure and I really havent known...
Queenb...
Queenb...
queenbeeaz
Created by Queenb...at5/5/06 - 11:20 am
Answered by epi_helpat5/13/06 - 9:07 pm
What are the side effects for Topomax if taken regularly, and then for not taking it regularly? Is there an alternative drug that would be effective yet not have to be taken as often?...

Anonymous
Myoclonus and Epilepsy
Created by Anonymousat5/7/06 - 3:40 pm
Answered by epi_helpat5/13/06 - 8:54 pm
I was diagnosed with Epilepsy a year ago. I was having TC seizures and Myoclonic Jerks in only one leg. After a VEEG with 17 seizures, they diagnosed me with Myoclonus because I had no abnormal brain activity. They performed a muscle...

Questions
General Health and Women's Issues
Effects of seizures or treatment on general health, bone health, sexuality, pregnancy and menopause.
28
Finding Help
How to find or access help in the community, talking to health care providers and navigating systems.
39
Insurance Issues
Concerns and questions about insurance and medication coverage
5
Lifestyle and Stress Management
Managing lifestyle and stress to help seizure control and general well-being.
2
Managing Social Issues
Impact on family, relationships, work, leisure and independent living.
11
Medication Management
Information about medications, practical tips, memory aides and problems taking meds.
42
Open Forum
Your concerns, ideas, or questions!
15
Parents and Epilepsy
Parenting children with seizures or management issues for parents who have epilepsy.
22
Products and Resources for Epilepsy
Products, equipment, and resources for people with epilepsy, their loved ones and caregivers.
6
Safety Management
Safety concerns, seizure first aid, and ways to prevent or lessen risks.
4
Sorting Out Seizures
Questions about diagnostic testing or concerns.
55
Surgery, Devices and Other Treatments
Questions about surgery, devices, diet or other non-medical treatments.
14
Thinking, Learning, Mood, Behavior
Questions about effect of seizures and treatment on learning, mood and behavior.
10