Need help in answering your questions about epilepsy? Read responses to the most frequent questions posed by our community or see answers to topics that interest you. Not seeing an answer to your question? Join this moderated forum where you can ask our epilepsy resource specialist questions dealing with epilepsy. We select questions of greatest interest and educational value to all our readers. We encourage you to contact your own health care provider for individual medical advice. We cannot provide second opinions or make specific recommendations regarding therapy.

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confus... New - Amusement Parks Created by confus...at4/21/08 - 9:31 am Answered by epi_helpat4/25/08 - 5:36 am My 14 year old daughter was diagnosed about 8 months ago with JME. She was put on Keppra and had a breakthrough grand mal seizure. After a video eeg, the doctor determined that she wasn't responding the Keppra and we started to put her on Lamictal with the...
redted... New - vns and autism Created by redted...at4/24/08 - 10:53 pm Answered by epi_helpat4/25/08 - 5:03 am My son has PDD (an autism spectrum disorder) and still has a breakthrough seizure about every 2-3 weeks after being on Keppra, Lamictal, and Zonisamide now at their maximum dosages...he is 19 years old...the Dr. says he has not had anyone with autism get a...
kenster1 New - Diagnosed with Psychogenic seizures Created by kenster1at4/12/08 - 8:47 am Answered by epi_helpat4/14/08 - 10:39 am
Kaye New - Petechiae Created by Kayeat4/14/08 - 4:36 am Answered by epi_helpat4/14/08 - 9:51 am Hi, My son developed tonic/clonic seizures at 15 and when he went to uni at 18 he took himself off all medication. Now 22 and in his last few months at uni, he has had two seizures in his sleep within a month. He's started taking Eipilim again but it obviously...
Rosiem... Down-side of Surgery? Created by Rosiem...at3/28/08 - 10:37 am Answered by epi_helpat3/29/08 - 6:21 pm   Hi,   I'm contemplating brain surgery (reluctantly) with no job experience, no education (thrown out of 9th grade due to seizures).    I've heard several good sides but have also heard several bad about having it at age 42.   What are...
Denaya 21 any thing out there Created by Denaya 21at3/22/08 - 11:54 am Answered by epi_helpat3/24/08 - 8:16 pm i have epilepsy and i have to kids some time befor i have my seizures i feel bad and then they come .some are big ones and some are not is there soming thing out there like a ring or some thing that can let you know you are going to have one or to let you...
Mark C... Stopped taken mysolin Created by Mark C...at3/10/08 - 1:33 pm Answered by epi_helpat3/16/08 - 8:20 pm I had been taking dylintin and mysoline to control my petite mal sizures for 33 years. I now live in  Latin American and was told that mysoline was no longer available.  I stopped taking mysoline about 9 months ago. I have had no seizure issues within...
Kellydoug Husband Refusing to Stop Driving Created by Kellydougat3/11/08 - 3:55 am Answered by epi_helpat3/16/08 - 8:09 pm My husband has had 4 seizures over the past 10 years with 3 of them in the last 2 years.  The last one was a week and a half ago.  As with so many people, we have been trying to figure out the triggers.  In the meantime, he is pretty much required to drive...
Denaya 21 what to do Created by Denaya 21at3/11/08 - 1:56 pm Answered by epi_helpat3/16/08 - 7:58 pm i have to kid and one is 8m and the other is 4yrs and im24 i love my kids and will do any thing for them but about 2m ago  i was told i have epilepsy and i was passing out for a yr be for that .well i keep my kids most of the day even if im not feeling so...
brodie comming down on ed stress Created by brodieat3/13/08 - 10:10 am Answered by epi_helpat3/16/08 - 7:39 pm when it comes to community college and epilepsy,how far would you take things?seems seizures block pathways toward my goal,so far 48 credits though it took a couple years due to many problems to get this far.                how far would...
missb Dilantin and surgery Created by missbat3/13/08 - 4:23 pm Answered by epi_helpat3/16/08 - 7:23 pm I need to know about Dilantin and having dental surgery.  I am scared to death because I read that Dilantin does not mix with a lot of things, so I'm worried about anesthesia.  Also, I read where valium should not be administered.  Is there anything that...
rr4422 video eeg-continue Created by rr4422at3/6/08 - 9:53 am Answered by epi_helpat3/8/08 - 5:33 am
Barbar... caffeine/stimulant to control late afternoon seizures Created by Barbar...at3/6/08 - 7:29 pm Answered by epi_helpat3/8/08 - 5:20 am Hello,
Arnold92 Why are they saying that alot of AED meds are causing suicide Created by Arnold92at3/3/08 - 11:54 pm Answered by epi_helpat3/4/08 - 1:56 pm I am just wondering why they are saying that alot of seizure meds are causing suicide? I am taking 2 seizure meds that say can cause suicide. I take 600 mgs Tegretol XR and 3000 mgs Keppra a day. Should I be concerned about this and talk about it with my doctor...
ledetjohn hydrocortisone cream Created by ledetjohnat2/18/08 - 7:19 am Answered by epi_helpat2/19/08 - 6:51 pm One area of the site mentions that stress causes the body to generate the hormone cortisol which can provoke seizures.  Another possible source of cortisol is the OTC hydrocortisone cream used for rashes but this cream is not mentioned in the OTC area. ...
Truffle Music causes me to have vivid hallucinations... Created by Truffleat2/19/08 - 10:32 am Answered by epi_helpat2/19/08 - 6:47 pm When I listen to Music, I sometimes have very vivid hallucinations. Glowing yellow rain falling from the cieling, black figures,and the very real feeling of having hot and cold water poured over my arm! I thought my boyfriend was pulling a prank ,...
shuehmom LENS or pROSHI? Created by shuehmomat2/19/08 - 11:15 am Answered by epi_helpat2/19/08 - 6:33 pm Looking for alternative therapies to treat 5 year old non-verbal, non-ambulatory CP child.  Contacted Lilian Marcus at Brain Wave Therapy to ask about neurofeedback and she suggested LENS or pROSHI.   Can you give me any other information about...
saketome Liz RN Created by saketomeat1/22/08 - 2:08 pm Answered by epi_helpat1/25/08 - 6:56 am I actually have a couple of questions. 1. How definitive are EEGs and can they tell you what type of epilepsy someone has? 2. Do many people experience refractory seizures? How common is it that a medication will work for awhile then quit working?...
joyce1 911 braclet/no push botton Created by joyce1at1/22/08 - 7:50 pm Answered by epi_helpat1/25/08 - 5:52 am Hello, I had seen part of a tv segment about a braclet that notify's 911 by the shaken of a seizure not pushing a botton. Are you awear of such a thing/ thank you Joyac2@aol.com
angel5812 Medications are making my child crazy Created by angel5812at1/15/08 - 11:23 am Answered by epi_helpat1/15/08 - 7:15 pm Since my child has begun taking medication for seizures he has been acting out. We have changed medications 5 times and when we first start out with a small dose, his behaviors are good. Then when we increase the dose, because he has had a seizure, he gets...
happygirl Seizure Management Created by happygirlat1/11/08 - 9:43 pm Answered by epi_helpat1/12/08 - 5:41 am Hi I have been unsuccessful in holding down a job since being diagnosed with epilepsy 2 years ago. Prior to this I had a very successful career so you can imagine I am finding it very difficult to cope with not being able to work succesfully.
Tereasa Life after surgery for epilepsy Created by Tereasaat1/12/08 - 4:10 am Answered by epi_helpat1/12/08 - 4:51 am I am going threw tingaling on the left side of my face and sometimes my complete left side. And I have times when it makes me feel like I'm go to lose my mind. I was told it can take up to 2 years for the nerves can finish repairing and can cause deppretion....
RoxanneC Please could this still be febrile seizures - I need answers Created by RoxanneCat1/7/08 - 4:35 pm Answered by epi_helpat1/8/08 - 6:10 am
RJ Keppra tolerance Created by RJat1/1/08 - 1:30 pm Answered by epi_helpat1/2/08 - 12:12 am Is it possible to take Keppra for a while and then become tolerant to it? My doctos says no. But why would it work for 6 months and then my seizures return to the way they were?
eanj Explaining possible side effects of meds to child's school Created by eanjat11/12/07 - 6:47 pm Answered by epi_helpat12/29/07 - 5:06 am Help! I have two children with E who have been given precriptions for Keppra! I know that they both need to give meds a try but I am at a loss as to how to prepare the school for possible emotional effects that might arise from this med. I am a former teacher...

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	Questions
General Health and Women's Issues Effects of seizures or treatment on general health, bone health, sexuality, pregnancy and menopause.	10
Finding Help How to find or access help in the community, talking to health care providers and navigating systems.	18
Insurance Issues Concerns and questions about insurance and medication coverage	2
Lifestyle and Stress Management Managing lifestyle and stress to help seizure control and general well-being.	2
Managing Social Issues Impact on family, relationships, work, leisure and independent living.	7
Medication Management Information about medications, practical tips, memory aides and problems taking meds.	32
Open Forum Your concerns, ideas, or questions!	4
Parents and Epilepsy Parenting children with seizures or management issues for parents who have epilepsy.	10
Products and Resources for Epilepsy Products, equipment, and resources for people with epilepsy, their loved ones and caregivers.	3
Safety Management Safety concerns, seizure first aid, and ways to prevent or lessen risks.	2
Sorting Out Seizures Questions about diagnostic testing or concerns.	43
Surgery, Devices and Other Treatments Questions about surgery, devices, diet or other non-medical treatments.	5
Thinking, Learning, Mood, Behavior Questions about effect of seizures and treatment on learning, mood and behavior.	7