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Resource Specialist

Need help in answering your questions about epilepsy? Read responses to the most frequent questions posed by our community or see answers to topics that interest you. Not seeing an answer to your question? Join this moderated forum where you can ask our epilepsy resource specialist questions dealing with epilepsy. We select questions of greatest interest and educational value to all our readers. We encourage you to contact your own health care provider for individual medical advice. We cannot provide second opinions or make specific recommendations regarding therapy.

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jess1a
jess1a
Does my 2.5 year old realize she is having absent seizures???
Created by jess1aat9/27/09 - 7:15 am
Answered by epi_helpat10/4/09 - 5:05 pm
My daughter is 2.5 years old and has been having absent seizures for 3 months.  She was put on keppra 3 months ago and it seemed to be working but now we are changing to Zarontin since the seizures seem to be getting longer and maybe more frequent.  Until I...
spring...
spring...
EEG
Created by spring...at10/1/09 - 1:43 pm
Answered by epi_helpat10/4/09 - 4:54 pm
CroninS
CroninS
Enviroment
Created by CroninSat9/29/09 - 6:16 am
Answered by epi_helpat10/4/09 - 4:50 pm
We have a 10 year old daughter with epilepsy. She has petite mal seizures that cause her to often "blank out" and forget where she is, much less watch where she is going. We live in a semi-decent community where there are suppose to maintain...
likely...
likely...
Seizures and Computer Malfunctions?
Created by likely...at8/25/09 - 9:30 am
Answered by epi_helpat9/5/09 - 8:59 am
emw
emw
Well-Controlled Defined?
Created by emwat8/26/09 - 11:44 am
Answered by epi_helpat9/5/09 - 8:53 am
Hi, At what point can I call my seizures well-controlled in my profile? What is the accepted definition? Thanks!
noels ...
noels ...
Need to get educated fast!!!
Created by noels ...at9/4/09 - 10:25 am
Answered by epi_helpat9/5/09 - 8:41 am
eckard
eckard
Is this Epilepsy?
Created by eckardat8/18/09 - 11:28 am
Answered by epi_helpat8/24/09 - 2:21 pm
maBenzi
maBenzi
Osteopaenia a side effect?
Created by maBenziat8/19/09 - 12:07 pm
Answered by epi_helpat8/23/09 - 1:23 pm
I am on a med called Epanutin (Phenytoin Sodium) that has controlled my TC seizures for > 30 years. Can the osteopaenia  I have developed be a side effect? From South Africa  and don't know the AED equivalent name elsewhere.   
bgt
bgt
should I have LTL surgery or not
Created by bgtat8/21/09 - 7:28 pm
Answered by epi_helpat8/23/09 - 1:11 pm
I have had the the Wada test  and they want  to do the grids.  If some one says no to surgery does that mean they will get worse with out it..   I hear all about how I needs surgery, but I never hear about people who don't have surgery and how they...
KellyS
KellyS
Grasping for straws
Created by KellySat8/5/09 - 7:35 pm
Answered by epi_helpat8/8/09 - 3:45 pm
I have absence and grand mal seizures which have been well controlled with Keppra for the past 2 years until this past April. I switched to genric Keppra and had 3 absence seizures and quickly switched back to brand Keppra.
epi_help
epi_help
Where have I been?
Created by epi_helpat7/19/09 - 8:47 am
Answered by epi_helpat7/19/09 - 8:49 am
HI everyone, This is epi_help and I want to apologize for not being here to answer your questions lately.  We don't and can't give medical advice, but we try to educate people whenever we can. Those of you who visit chat know that we've been doing...
liz_la...
liz_la...
Siezures came back
Created by liz_la...at3/24/09 - 6:13 pm
Answered by epi_helpat3/30/09 - 5:13 am
I had 3 maybe 4 seizures from age 12 to 19. Then I was seizure free. Today I had a grand mal seizure at age 51. I was extremly tired and working in a convention hall with flourecent lights. I Problably have not had that light, tired combination before, though...
cvahedian
cvahedian
Memory loss
Created by cvahedianat3/25/09 - 9:15 pm
Answered by epi_helpat3/30/09 - 5:00 am
My daughter had a seizure almost one month ago. She has had this conditon since middle school but for the most part it has been under control.  This last seizure was different is was very confussed, disorientated, emotional and did not seem to reconized the...
cherri...
cherri...
Resourse Dogs
Created by cherri...at3/27/09 - 10:18 am
Answered by epi_helpat3/29/09 - 5:14 am
I have been researching for information on resource dogs.  I haven't had any luck with finding anwsers to any of my questions. Hopefully someone here can. My son and I both have seizures. But I also have other aliments such as social disorder and etc. I was...
sherri...
sherri...
I need help
Created by sherri...at3/27/09 - 11:16 am
Answered by epi_helpat3/29/09 - 5:05 am
I am 31 yr old female. I had my first seizure(that I know of) in October 08. I didn;t know what happened my jaw hurt really bad afterwards. My husband said I just fell down and started shaking my eyes were open but I don't remember any of it. He said this...
midas
midas
smoking and epilepsy
Created by midasat3/28/09 - 7:01 pm
Answered by epi_helpat3/29/09 - 4:51 am
Hi, fellow epilepsy individuals. I fell of of a ladder ten years ago and my seizures seem to be under control. I take 300 mg of dilantin daily but I smoke cigarettes. I have been smoking since I was 18 I am now 36. Can cigarretes induce a seizure? I need to...
butter...
butter...
I NEED A SECOND OPINION
Created by butter...at3/6/09 - 7:38 am
Answered by epi_helpat3/14/09 - 12:38 pm
tamsims00
tamsims00
Fingernail problems
Created by tamsims00at3/10/09 - 11:07 am
Answered by epi_helpat3/14/09 - 12:25 pm
kathyl...
kathyl...
Help My Chat wont fully open
Created by kathyl...at3/10/09 - 1:23 am
Answered by epi_helpat3/14/09 - 12:13 pm
When I reformatted my pc I can no longer get into chat.  Does any one know is there a seprate application I need to download so that I may fully open the chat room?   Thank you,   kathylewiss@aol.com
wmdin93
wmdin93
seizure disorder VS. seizure secondary to POTS episode?
Created by wmdin93at3/13/09 - 8:36 am
Answered by epi_helpat3/14/09 - 12:11 pm
R Wilk...
R Wilk...
coughing and vomiting
Created by R Wilk...at3/13/09 - 3:14 pm
Answered by epi_helpat3/14/09 - 10:54 am
One of the clients I support experiences coughing following his seizures with phlegm or phlegm/brown stained vomit if more severe. I have been told that these episodes of sickness are many small seizures following the main seizure. Is this true or is it...
Lkaplan
Lkaplan
cold switch
Created by Lkaplanat2/20/09 - 6:33 pm
Answered by epi_helpat3/5/09 - 1:24 pm
my son 23 has had 3 tonic clonic on carbatrol in the last 30 day 1 was a double. level 9.04 after yesterday's seizure the office said to stop carbatrol 400mg 2x a day & Start lamical 25 mg this morning. I have never cold stop any medicine. So now I am...
babzy
babzy
surgical wonder
Created by babzyat2/13/09 - 8:58 pm
Answered by epi_helpat2/15/09 - 5:27 am
i will be going for a temporal lobectomy next mont . ive done lots of readings and i am curious as to results from surgery.  can surgery cause seizure activity to  re-ocurr at a later time in life due to continued use of medications.?most meds claim...
alyshad
alyshad
tracking
Created by alyshadat2/9/09 - 2:19 pm
Answered by epi_helpat2/13/09 - 6:38 am
I have brief but many absent siezures through out the day, how am I suppose to track them when I am not aware, do I asume that when I miss a minute or two that that was a siezure, I also have psycomotor with out memorie how do I track those?
momina
momina
absense seizures
Created by mominaat2/11/09 - 8:41 am
Answered by epi_helpat2/13/09 - 6:25 am
I am 20yrs old Pakistani female, 46kg body weight& still suffering from absense seizures even  when I am on medication with lamictal at dose@ 150mg/day since last 2yrs.Please suggest how long I should take this drug or suggest some alternate treatment or drug

Questions
General Health and Women's Issues
Effects of seizures or treatment on general health, bone health, sexuality, pregnancy and menopause.
28
Finding Help
How to find or access help in the community, talking to health care providers and navigating systems.
38
Insurance Issues
Concerns and questions about insurance and medication coverage
5
Lifestyle and Stress Management
Managing lifestyle and stress to help seizure control and general well-being.
2
Managing Social Issues
Impact on family, relationships, work, leisure and independent living.
11
Medication Management
Information about medications, practical tips, memory aides and problems taking meds.
42
Open Forum
Your concerns, ideas, or questions!
15
Parents and Epilepsy
Parenting children with seizures or management issues for parents who have epilepsy.
21
Products and Resources for Epilepsy
Products, equipment, and resources for people with epilepsy, their loved ones and caregivers.
5
Safety Management
Safety concerns, seizure first aid, and ways to prevent or lessen risks.
4
Sorting Out Seizures
Questions about diagnostic testing or concerns.
55
Surgery, Devices and Other Treatments
Questions about surgery, devices, diet or other non-medical treatments.
14
Thinking, Learning, Mood, Behavior
Questions about effect of seizures and treatment on learning, mood and behavior.
10